@ celeriac, I got a call from the Acreedo (my Xeljanz Supplier) yesterday to go through a question and answer session. She asked specifically about the side effects and I told her my experience and...
Hoping you get this under control soon. Feeling for you...
@ celeriac hoping you see an improvement in how you are feeling...
@celeriac the 5mg dose has done wonders for me instead of the not tolerated 10mg dose. If you read the literature closely, the difference between response on the two doses is very small. The dose for...
@celeriac how are you doing the last few days?...
@celeriac I do not want to jinx myself but this seems to have been the right combination. 5mg working well twice a day with food. Big xmas dinner last night and this morning, no issues so far. Solid...
@celeriac amazing difference yesterday. I had peanut butter toast before taking the 5mg dose. No nausea or D. Had a little bit of gas around 4pm, but thats it. Ate dinner, took my 5mg dose before...
I just had some food and dropped the dose to half a pill, so 5mg. i will keep you updated. I too have no blood and its not the same feeling of a UC bowel movement.....So maybe it is working but to...
Celriac, thanks for the reply. I will try taking it with food as you suggest. Are you on the 10mg dose or 5mg dose? In the trials it was obvious the 10 mg worked better but not that much better. I...
Celeriac, I am just a week behind you on starting Xeljanz and I am questioning stopping due to the same issues you are experiencing. Nausea, Cramping and Liquid stools that are way worse than I was...
Thanks so much for the reply. I do have an MRCP scheduled for a week from Monday. My Gi wants me to do it since my ALT and AST have actually come down from where they have been before, even before...
Quincy, what were you enxyme levels when your Gi decided to test you for PSC. I have been on MTX successfully to remission for almost 2 years now, and my levels are slightly elevated...AST is 50, ALT...
Well, it;s been a long time since i posted. Been on Methotrexate (25mg) per week injectible and Apriso since scope in Jan. Scope showed much improvement with Pseudo polyps and slight inflammation. I...
So it's been a long road for me and I am making progress but I have a question for anyone to respond. I have been having formed stools...some thin and narrow, but no D and not any real other issues...
thanks for the reply./....I wil try that and i appreciate the positive words......best wishes...
Why does it seem that the tapering past 20 mg of pred always brings back some symptoms? does anyhone have similar re****s? Methotrexate has helped me get here after 3 months, and i am generally...
This is such an interesting post because my guy is telling me the same thing. However, my symptom list also includes watery mucus expulsions and nighttime mucus once or twice that wakes me up. I have...
thanks for the replys...My doc and I are at wits end.....been on remi for over a year...no D, narrow stools that hurt coming out with some dried up blood that he says is from internal hemmies he sees...
Iknow they are in the same class of drugs but the question is if I was toxic on low levels of 6mp, am I going to be the same if I try imuran?(azathioprine)...
If you just have watery cloudy(mucus) exulsions with no stool and no blood, does that mean UC or IBS. Right now that is the biggest complaint.....several nighttime mucus movements...no stool and once...
probiotic....I would love some more info on your usuage and success with dmso.....I use it in horses and have seen it work wonders for inflammation....I have read reports of using it for uc but never...
I have been on Remi for 8 months now. When I started I was at 15mg pred with slight symptoms, and if I went below that I would flare. The intial response was ok, and I was hell bent on getting off of...
Is it at all possible Metamucil could cause D? I do not have any blood, limited mucus and slight urgency in the morning. It seems like when I take Metamucil sometims is casue D and loose stools? I...
Would psyllium like metamucil be considered a member of the Gluten family, and if someone were Gluten intolerant would metamucil not agree with them? Any advice would help....
So the biggest question I have concerns fiber supplements like metamucil. Gi keeps telling me to increase Fiber. I have been trying and have no blood, but continue to get some days with D, and some...
Quincy, as I have said in other posts, my last scope ( end of August) showed only mild inflammation and the Gi said I shoul dbe feeling great. Anyway, as I continue to complain about the watery,...
Red, does it help out with the mucus or watery movements at night....that is my biggest complaint....the watery clear fluid a couple of times during the day and once at night.....no stool...just...
Did you get a response from Remicade before you had your reaction?.....how swift was the Humira to induce remission?...
Sweetie thanks for the reply....did you try remi first or go straight to the Humira.....thaks in advance....
Why in the world would three doctors I have seen tell me Humira will not work if Remicade has not fully worked. On here there are countless stories of people who have done much better on Humira than...
Great news.....are you surprised or do you feel like your in remission too....I mean no symptoms...glad to see some can put this thing in the closet for a while...
My Gi wants me to give a stool sample to check for C Diff.....I have read many posts on here and done some research and it appears this is quite an infection that seems to show in tons of trips to...
Meesh...glad your feeling better.....do you feel the remicade has helped at all? I see you were on 10 infusions and it only now seems your better from rectals. I have had seven and this last couple...
is there a maintenance schedule you still use after you feel like you achieve remission? do you still take the enemas every week?...
mudua...can you give your intructions for use please?...
Have you actualy used any your self Dr a? does it act similar to fiber?...
anyone ever try this to clean the colon of toxins and nast bacteria? my wife bought me some but I am scared to take till I hear more about it?...
Eva I agree with your assesment on humira versus remicade. I also agree with the calrie thing, or the volume. I also went on remi due to thepred thing, but I had only been on pret to flare terrible...
Eva your not crazy about the short course of Pred. My GI is actually going to give me hydrocortisone with a fast taper of pred for my next infusion.(next wed). He is thinking that since there may be...
I tried proctofoam.....is the cortifoam stronger? someone said it was......procotfoam does not so much...have trouble holding the enemas in all night due to the nightly gas around 2.....but is the...
I am so sorry you have never reached remission. I know i can get there with 20 mg of pred, but I am trying so hard to do it without. I have been on remi for 7 months and it has helped...
do you think your urgency is due to the narrowing of your intestine? when you get some days of remission does your urgency abate?...
Oh the frustration. Does anyone else feel they get so close to remission and then can't quite get there. I have been having formed movements in the morning from 2 to 4.....the nagging thing I can't...
thanks for the reply.....I was always a metamucil guy, but Doc told me to switch to Konsyl...I take one to one and a half teaspoons in the morning.....It has 5 g of fiber in one teaspoon. The only...
Question for some of you. Doc reccomended taking fiber to bulk things up and that has worked.....still have urgency in the morning, but stools are formed and no blood....well maybe a touch here and...
You know, I am exactly like you. I had a scope the last week in august and my GI told me I was 90% healed....I said wow thats great, why do I still feel like crap, and have the symptoms. I don't have...
Valtrex? this is what I thought a herpes medicine.....am I wrong? Does it help for UC?...
winter....do you think it is helping you? did you take it from the start witht the remi? are you in remission? if so how long did it take?...
Hi everyone, my GI wants to try using Methotrexate as an extra therapy to try and get me in total remission...80% there, but lingering with 7 doses of remicade. We tried 6 mp but my toxicity levels...
I know that yellow colored watery stools are a product of too much bile coming out of the liver. In the past it seemed like colozal at 9 perday made me much looser with more issues than when I...