Yes but we're monitoring to make sure the sulfa is not causing the kidney issue (which has been corrected as of last test). Honestly, I'd rather listen to my doctor, who does this for a living and is...
@JM I'm so sorry about the diagnosis but it's great that your doctor is monitoring you. I hope things stay the same for you or improve! @subdued I went back on the sulfa because my doctor told me to....
I hope your new results come back good! Please do keep me updated. I went for my second test today and the good news is my results came back completely normal. Yay! Since we're not sure if it was the...
@zippy123 I've been taking the sulfa for 2 and 1/2 years. @aguywithuc: I don't know what the basis of his conclusion was, but he compared my blood test results from yesterday with ones from last year...
My sulfazalazine prescription costs me like $20 a month. I think there's a 120 pill count in the bottle. There was one month where I was between insurance so I paid out of pocket and was shocked to...
Hmm...that is strange. 6 months versus 2 days is quite a difference. My doctor said he wanted results before the weekend so we could figure out a plan of action right away. Uh oh. Now I'm thinking...
I've already stopped the medication, so I'm not ignoring my doctor's request or anything. I didn't mean to imply that. I'm just nervous and wondered if anyone else experienced something similar and...
Hi everyone, I posted here a bit when I was first diagnosed but I've been in remission now for a long time, probably since a month after my colonoscopy. I've been going to the GI every 4 months,...
Okay thanks. I took nyquil, so hopefully it will clear my nose without causing a flare. Ugh, getting a common cold stresses me out so much more than it used to before UC. Thanks for the quick answer....
I can't breath right now, I'm so stuffy. I think I went through this a few months ago but I can't remember the answer. Are either of these safe to take on UC? I currently take 4 sulfasalazine daily....
I have been on sulfasalazine since May of this year. First, I have absolutely zero side effects for the pills themselves. I am seriously in love with them. They are miracle workers! They also began...
I just wanted to say, I go to Mt. Sinai also and use Dr. Itzkowitz, and I adore him! My aunt has a j-pouch and goes to him too....
Hi everyone, I haven't been here in a while because I've been doing so well, I barely even remember that I have UC. I am still taking 4 sulfasalazine a day. I'm really nervous though because I'm...
If I'm about to take my last 500MG dose of sulfasalazine tonight, is it also safe to take Nyquil? I have a cold, and I can't breathe. I won't sleep without something to decongest me. Thanks!...
Okay! So I called the insurance company and apparently they have a policy where they will only cover 2 refills for maintenance meds and after that, I have to order them through the insurance company...
Hi everyone. I've been happily using sulfasalazine 500mg x4 a day since I was diagnosed in May. The pills work wonders for me. I've had no problems. Until I tried to refill my monthly prescription...
Sorry I've been MIA. I went back to 1pill x4 a day (instead of 3p x2 a day). I definitely notice a difference in my joints--the pain in my wrists and knees is somewhat unbearable, esp at night...
I just switched GIs and this new one upped my dose from 1pill x4 a day (2000G) to 2pills x3 a day (3000G). He did it because I was having major joint pain (on July 4, I was just standing at a bbq,...
I disagree. I was put on Sulfasalazine and nothing else in May, and I'm pretty much 100% sure I'm in remission now. If I'm not...I can't even imagine how I could improve anymore. I'm going to the GI...
I have 1-2 glasses of wine with dinner on the weekends and haven't had any issues with my UC. I'm a bit hesitant to try beer after reading threads on here....
I'm late to this discussion, but hope I can still join. I've been on Sulfasalazine for exactly 30 days. I have to say, I'm pretty sure this drug is working for me. I don't know if this means I'm in...
I'm pretty sure high instances of iron can cause dark/black stools. When I used to take iron, mine were always really dark and slowly lightened until I took the next supplement. It scared me the...
I just started using Sulfasalazine a month ago. Before that, I was going somewhere around 15 times a day with urgency and blood. Now, I have to go exactly five minutes after I wake up, whatever time...
I only tried the cherry because I'm not really a fan of the other flavors. The cherry tasted like I'd expected it to. But I didn't have high expectations. It reminded me of the gross cherry-flavored...
I did the Half-Lytley prep kit last month. Had to take two Biscodyl pills and then drink a jug of salty stuff that I flavored with the cherry packet. I have to say...I was expecting worse. I thought...
I had my first scope a month ago and was told I wouldn't need another for 7 years, but then I'd need one annually after that. I'm not surprised though becuase all the adults in my family have to get...
"What proof would there need to be?? I mean, what constitutes as being an official domestic partner... isn't it just if you're dating and living together?" They want us to send copies of our lease...
I'm a little scared because I'm covered by my boyfriend's insurance as a domestic partner (we've been living together for over five years now.) I'm freelance, which means no health insurance on my...
Okay, I'll start taking an extra 400mcg folic acid supplement for a total of 1200mcg per day. Thanks for the advice. It's good to know you can't overdose on it. Yes, I've been eating a lot of red...
Hi Malka! Thanks so much for thinking about me! I wish I had a more upbeat post... I'm still pretty much the same. My doctor gave me a prescription to get blood work to test my iron levels, but I...
Yes, I swear by the stick-on heating pads! They make my work day much more bearable. I think the cramps have subsided this month, so that's good. My flow is unusually heavy, much moreso than ever...
The tylenol pretty much did nothing for my cramps today (which was why I had the naproxen prescription in the first place for past months.) Sigh. Looks like this is something I'm just going to have...
Thanks for the reply. I tried to go to bed without the painkillers, but by 2:30 am, it was unbearable. I took tylenol, waited approx 40 minutes until they finally started working, and then slept...
I asked my doctor about this when I saw him last week, but since I think he's been giving me the wrong advice regarding other interactions with my Sulfasalazine medicine (if you haven't read my other...
Yeah my dad is an eye doctor. Very far from a GI. So he knows about vitamins and all that, which he sometimes has to prescribe for his patients, but he doesn't know anything about the medicine I'm...
UGH trust me I know. I'm really angry and upset right now. Looks like I'm in for a fun weekend of researching doctors! woohoo....
If you are near a hotel, they have the cleanest bathrooms. And there are hotels all over. That's my recommendation. The restaraunts like Cosi and Starbucks have bathrooms, but I find they're not...
Sigh. I just got back from the doctor. The appt didn't go as well as I'd hoped. -My doctor did not prescribe folic acid for me even though I'd asked more than once. He doesn't think I need it. -He...
Thanks for thinking of me! I just took the 400mcg of Folic Acid, so I've had a total of 800mcg today. I'll see how that goes. And I'm going to my doctor tomorrow morning. I will definitely ask about...
I found Folic acid 400mcg and 800mcg. I bought both. Together with my multi-v (which has 400mcg), I can have 800mcg or 1200mcg. Which do you think is better? 1200 too much, or okay? I think the cvs I...
Aha! That's why I couldn't find Folic Acid. I didn't think to check for B-9 (and I am very shy so it's hard for me to ask a pharmacist's help, just like it waas hard to call the dr.) I prefer ferrous...
Wow! So I avoided oatmeal this morning and had two hard boiled eggs instead, and I didn't have to run to the bathroom immediately after eating breakfast. In fact, I've only had one BM first thing in...
I'm going to the doctor Friday! It's the first time I could get to him since he has multiple offices and I don't have a car. But Friday is better than Monday. I had blood in my stools again today, so...
Thanks everyone. My doctor didn't prescribe folic acid which really upset me after coming here. This is something I'm definitely going to talk about at my appt. My dad (a doctor, but not a GI) was...
Huh, this thread is an eye opener for me. I eat oatmeal most mornings, and then immediately run to the bathroom. I'm going to experiment tomorrow and eat something else (eggs?) and see if things...
Update: well, I'm stuck in the same spot. Dr told me not to take iron until he can see me. Unfortunately, that's not until Friday. (I don't have a car, so I can't get to the secondary offices.) I'm...
Yeah the meds are new. I've only been on them two weeks. I didn't seem to have any other side effects until very recently. I was really lightheaded and dizzy on my commute today, the escalator was...
I actually get this blacking out thing a lot. It happens when I go from laying down/sitting to standing. My vision goes away for about 10 seconds and everything turns black and then it slowly starts...
I just went to the pharmacist, and though I'd stumped him and he skirted around all the options, he basically told me to take the iron and the worst case scenario is that it will make both drugs...
I'm utterly confused and not doing well the last few days. I am anemic. I used to take OTC slow-release iron supplements about once every three-four days. I have not taken a pill in nearly three...