Hi, I found a long lost link to this thread in my favourites and thought I would write an update. From being sick and unwell all the time, I've turned into a gym junkie and coming back to this site,...
Hi Cher, glad your op went well. You must be feeling fit and well going to the gym 5 times a week! I'm having the same problem, going to the loo 2-3 times a night, but even so, my energy levels are...
its now 13:40 and i have been "holding it in" since about 11:00. I have a j-pouch and i have to hold it in to increase the size and capacity of the pouch. i tried remicade, humir and abadacept as...
Hi Sorry to hear that you suffered all that pain but glad to hear that its resolved. Its a real bummer that you have to wait 6 to 9 mos before the reconnection, but that time will fly by. Hopefully...
3/12/2009 slowly started to feel better. wasn't sure if the endone or maxalon was making me feel ill! still off food. was strange not having bag to clean or change. 3/13/2009 surgeon started the day...
had a tough night. wound was sore and i felt v bloated. later got ticked off by the surgeon for taking it easy! apparently the idea is to get up and walk as much as possible. well it seemed to work...
farted and first bm. u might say i passed some more milestones! still feeling a bit icky tho....
its been bout 20 hours since the op. pain settled quickly after about 2 hours.feeling a bit of nausea. onto clear fluids atm. got a single room this time so its a lot quieter....
thanks for the best wishes. 30 minutes go!...
hi its the day before my reversal operation. i had the barium enema leak test and that seemed ok so its all go. on my last day of work i was in a small meeting and my stoma decided for one last go at...
Its awful, some of the things we have to do and the sound effects must have been interesting!...
after all the bad news, its fantastic to get some good news. /community/emoticons/turn.gif ...
i have always been against taking decisions which limit your options unless you have to. i think a permanent ileostomy limits your options. if you have a 2 stage j-pouch operation, you get to trial...
Its a really tough decision deciding on whether to have surgery or not. The first time the question was posed to me was about 14 years ago and i thought "no way". Now, I have had the first J-pouch...
sorry to hear that your path to wellness is being so difficult. but it will all be worth it. in 12 months time UC will be a distant memory. /community/emoticons/tongue.gif ...
In australia, surgery is quite accessible and compared to the US, I think cheap. Insurance is personal, so it doesn't matter if you change jobs or not, you still have the insurance that you want and...
Congratulations on making the decision to have surgery. Its a hard one altho once you have made it, its a relief! I am sitting at work with my temp ileostomy. Funny noises are coming out of my stoma...
Paul Great to hear that in a couple of weeks, life will become normal! PF...
Wow Its all happening so quickly now! Good Luck, hope it goes well. PF...
Hi all Its been a bit over 2 months since my first op. I saw my surgeon yesterday and I had a couple of worries which he dispelled. The first was that about 3 weeks after surgery, I started to pass a...
Comedydork i think there were 5 of us who had the first part of the j-pouch op in a 4 week period over Oct/Nov. As well as those previously mentioned, there was also Cher, Nascaron and myself. i have...
Hi Paul, glad you are feeling stronger and especially so that your wife was alright after the accident. I have had swelling/inflamation of the ankle which seemed to come out of nowhere. If i apply...
Hi kazygirl, did you bounce me out of your guild? /community/emoticons/confused.gif I had acupuncture treatment and some Traditional Chinese Medicaine from a lady who was trained in China and also...
Hi Paul, sorry to hear that your recovery has been so arduous, but i am sure that you, like me are focused on the long term outlook. Hope the planning and reversal operation go more smoothly. I had a...
Cher, hope your recovery goes well and well done for making that tough decision. Seems like there were 3 or 4 of us who had operations in the 30 days starting from 20th Oct. Is that a coincidence or...
stoma output still high but they let me go. was around 1.6L but i have to monitor electolytes thru my gp. currently (14:55 on 26th) at the airport waiting to board and i DON'T know where the nearest...
stoma output still too high so exit delayed at least two days. dam! immodium didn't work so will try the other one and some metameucil. should have tried nuggets and chips! o well - maybe wednesday....
its sunday morning and things r still looking ok for monday altho stoma output is a bit high at 1.5L. gonna get some anti-D tablets. potato crisps work a treat for this cos of their high salt...
if today had been fridaythen i think i would be out of here but its sat and all the support staff r away for the w/e. :( anyway the extra couple of days rest will ensure i don't get ahead of myself....
a better day today! had some D overnight but that is not unusual and it seemed better this morning. sharp stomach pains subsided mid morning and i got around without too much discomfort. one of the...
thanks all your words of support. i need them and the odd pep talk. some pain comes with the territory and it will be gone soon enuf. can't remember first solid meal but it wasn't that special. howse...
just saw the specialist and he told me not to be such a baby. well he didn't actually use those words but he and the zillions in his group were probably thinking it! will be on oral antibiotics. and...
catheter out yesterday, drain supposed to come out today. some blood under the stitches seeped out which might show an infection. still painful to get up and move around. definately 2 foward 1 back -...
i think i may have mislead u - sorry. my earlier post was supposed to be a humorous dig at the pain numbering system, altho i did go thru that dilemma of whether to pick 7 or 8, because i wanted to...
The pain is unbearable. u feel the worst u have ever felt. someone says rate your pain out of 10. u start thinking of Bo. wrong 10. but wot if the pain gets worse. have to reserve some space just...
Thanks for all your kind encouragement. its great to hear from the outside world. The stoma nurse came to see me earlier this afternonn. so much to learn and remember. also had a visit from the...
i think i meant to say my white bloodcount was up. anywy, had a good night. i have found that i have to be careful regulating my body temp. it seems to take me a while to warm up and cool down. still...
its great to hear that remicade is still working for you LL. hope u don't lose its efficacy. i thought they were giving me placebos when i was on it. take care everyone....
yes, hate to think how much tp i have used and how many hours i have spent on the can. another night without much sleep altho that was because i was so sick yesterday afternoon. i had special...
one of the guys is leaving tomorrow so hoping it willbe quieter tomorrow. also had too much output like paul. and pain was really bad. two steps forward one step back. but the really cool thing is...
seems like i came off all the meds at the same time so i am in some pain now. they stopped the pca yesterday. in a five man shared ward and its v noisy. no fun at all. hopefully will get on fluids...
my cousins were in this hospital having a kidney transfer 4 weeks ago. anyway apart from the twinges of pain, i am going good. must b cos of all the best wishes! thanks for the support. the bad news...
the day after! went quite altho surgeon decided not to do keyhole. v tired and blurred vision cos of painkillers. will do longer posts when i reduce painkillers. cheers....
really glad to hear that u r home. best wishes and thanls for taking the time and making the effort of keeping us uptodate....
today is the day. waiting to go into pre-op. already thinking about nuggets and fries....
Its T -1 for me. I have had my last solid meal for at least a week (Nuggets and fries with my kids!) and I am heading to Sydney later today for my pre-admission clinic. Part 1 keyhole surgery will be...
Hi Paul Can't be long now - hang in there. Hope you are not going for the record for the longest stay! PF...
Paul sorry to hear there is no discharge date. have they ruled out a 'day pass'? guess you won't be forgetting this anniversary in a hurry! my preadmission clinic is in 2 days and i'll be in hospital...
Being a teenager is all about carefree and indestructable - sorry to hear that you daughter has missed out on that - Katmom. On the other had I am sure she is going to be a tougher customer as a...