Try Chester’s Puffcorn. You should be able to find the butter/original flavor at WalMart, Albertson’s, WinCo for sure. I find that it’s the most popcorn like and I actually prefer it to regular...
I feel like I've been dealing with this issue for about the last year. I am still wearing a mask when indoors in public as I am on two immune suppressants and I'm not 100% comfortable going without...
I've been dealing with some kind of eczema/dermatitis/psoriasis on the palms of my hands the whole year. I think it resembles Dyshidrotic eczema, but mine doesn't itch. I think it's a very mild form...
It could be a delayed reaction to Remicade. I just went through something similar myself. I took Remicade 16 years ago when first diagnosed and then stopped when I went into remission with Asacol and...
Just wondering if anybody has any suggestions on volumizing or hair thickening shampoos or hair treatments. I have fine straight hair and while I wouldn’t say my hair is thinning, I have noticed that...
If you are newly diagnosed, I am surprised your GI would jump to biologics so quick. I would think they would try mesalamine, imuran/6-mp, corticosteroids options first. It just doesn’t seem like...
I just had my first Entyvio Infusion yesterday. Neither my GI or the infusion nurse said anything about having a blood test kit after the induction doses. I’ll ask my infusion nurse when I go for my...
So yesterday was my first Entyvio infusion... definitely faster than the Remicade infusion. My appointment was at 12:30 pm and I was out of the office by 1:35 pm. 30 min infusion plus 20 min reaction...
Edited 7/7/18 After antibiotics triggered a flare in Jan, my GI said my current meds weren’t working and the next step is a biologic. I had done Remicade about 16 years ago and had a good response to...
Connor77 - Wow, thanks for the info. I’ll have to do some research on the dysbiosis and see if it matches my symptoms. I did read about how antibiotics can kill off good bacteria as well, but I’m not...
notsosicklygirl - I haven’t taken Remicade or anything else for UC other than the meds listed in my signature since Aug 2002 until my GI just gave me budesonide. As for asking for asking for a second...
A little background: I was diagnosed with UC in 2001 when I was 11. Hospitalized twice for two bad flares (Sept 01 and June 02). Finally found a combo of meds that worked. Asacol and Azathioprine. I...
PhotoGirl - I actually just listed the meds I have taken since my last major flare, which I was hospitalized for in 2002. From my diagnosis in the fall of 2001 to then I had taken other meds. I've...
I came across this post and just wanted to share a couple suggestions. 1) You may have come to the point where you've taken too many laxatives and it has caused more constipation 2) You might want to...
Well, my two meds are on your fail list and so is Remicade, which I had a couple of infusions of during my year of UC ups and downs and felt pushed me into remission. Have you tried Prednisone or...
I was originally diagnosed with mild UC / indeterminate colitis in 2001. I have been in remission for 15 years now and symptom free in my opinion. If I have any symptoms, I've been experiencing them...
So, it's been a long time since I've been on the forum. I just had my annual follow-up with my GI on Monday. To preface, I have not had a flare or major symptom of UC since the first year of my...
I was a bit anemic on my lab work last year and my GI told me to take Feosol. I take it every other day and every day 1 week a month (if you catch my drift). I have had no constipation issues. One...
I have never suffered food poisoning, but I did have a case of pneumonia back in high school about 8 years ago. I too am taking Azathioprine (since 2002) and pneumonia kicked my butt. I had no energy...
I take Azathioprine, which is a generic brand of the same type of immune-suppressant.... I first started taking it back in June of 2002 and if my memory serves me correctly, it took about 3 months...
Of course everyone is different, but... I have been taking Azathioprine for 10 years and the worst symptom I have ever felt is a lack of energy. As it is an immunosuppressant, it is necessary to have...
So, at my last appointment my long-time pediatric GI finally kicked me out ... LOL... because I am now 22 and just graduated from college. He recommended two female GIs in the area (I prefer a female...
My signature basically says it all. Diagnosed at 11. Two big flares with a year period. Remission ever since... 10 years now. Still take meds as I was still in school and did not want to take any...
Hi, It sounds like your doctors haven't been too helpful, which is unfortunate. I would definitely get a second and maybe third opinion. Your symptoms were different than mine when I was first...
I take Centrum Women's and Caltrate. Every once in a while my stomach gets a bit queezy, but I think that's a side effect of Centrum. other than that no problems at all. ~ UChick...
Posty626 - Here's my how to avoid flares 101: - don't drink milk or eat too much dairy products until you are pain free - avoid red drinks like fruit punch, Big Red type sodas, red Gatorade etc. - no...
Oh, well, then you're good to go. LOL! Thanks for letting me know. I didn't even think to consider you weren't from the US. I know most other teens don't share my view of underage drinking here in...
I had to do a quick google search because the HD to Asacol HD is new to me. I take regular old Asacol. According to the website asacol.com the HD version is prescribed in 800 mg tablets, so depending...
Hey Sammi, I'm 21 now, but I was diagnosed when I was 11. I've been extremely fortunate as to have had no flares in 9 years. I know it's a lot easier said than done, but try your hardest not to worry...
I had two big flares and one mini flare during the first year I was diagnosed. I have been in remission for 9 years come late July....
Thanks for the tips. I think quality of life of patients is the aspect I'm looking for. It fits the structure of the class best....
I only had like three infusions (on three different occasions about 8 years ago now) and they pretty much worked immediately for me. I sincerely believe that Remicade pushed me into remission. Don't...
Hi, everyone. I am taking a Health Psychology class that is centered around Behavioral Medicine and one thing we have to do is write a summary/critique of two journal articles that are related to the...
Also, when it comes to Health Insurance through companies sometimes people with IBD (as well as with other disorders/diseases) won't be covered for a year because it is a pre-existing condition....
If you're in remission or at least in a non-flare period you can probably eat a little bit here and there. I have a little bit once in a blue moon and nothing bothers me, but because I haven't had...
i was kind of in the same boat as you when i was first diagnosed. my GIs called it Indeterminate Colitis. Apparently, (and I'm going by what my doctors told me) there are some locations of symptoms...
it galls me to say it, but i hope the yankees win. Only because they are in the AL and only because they are playing Philly who won last year. about the snacks: stay away from popcorn, milk, spicy...
I only had symptoms during the first year of my diagnosis. I was hospitalized twice because of dehydration and loss of appetite, but I only had a mild to moderate case of UC to begin with. Although...
I was in remission when I joined this forum and I'm in remission now. I'm one of the long-timers I guess as I've been in remission for 7 years (last month actually). I think it's all about finding...
I've been taking 75mg of Azathioprine for 7 years and never had a problem until my GI upped my dosage to 100mg because blood work showed my inflammation count was high. Went back to 75mg and...
Hi, I took Remicade a few times and it helped a lot. In fact, I firmly believe it stopped two flare-ups within 24 hours. I was always under the impression that Remicade treatments last 2 months at a...
Hi, I'm 19 and have been in Remission for almost 7 years now. I took Remicade a few times back in 2002 and I truly believe that it gave me the jump start into Remission. My GI always says he thinks...
Hi, Welcome to the forum. Ah, I remember colonoscopies. I couldn't stand that Ginger-Lemon stuff I had to drink the night before- ugh! Give me Barium for an endoscope (or whatever it's called) any...
sbaur07 - no offense, but your comment made me laugh. It just sounded so funny, but thankfully I haven't experienced that....
I don't have any ideas about bathroom troubles, but I found on www.apple-cider-vinegar-benefits.com that mixing some ACV with 8 oz. of water (I prefer honey) in the morning can help with female...
I know it's so weird. Sometimes I feel my insides are moving and readjusting because there are times when my stomach makes gurgle noises like when I'm hungry, but I'm not. It doesn't hurt it's just...
Can anyone tell me what it means to have an increased ESR level? I had lab work done recently and now my GI wants me to up my azathioprine dosage form 75mg to 125mg a day. I have to have more blood...
I read about the apple cider vinegar & honey for treatment of sore throat, but then I found that it can be used for UC too....
I drink Gatorade all the time. One because I love it and two because Gatorade is good for electrolytes. Since I take Azathioprine I figure it can't hurt to have a little extra help in that department....
Hi, I took Remicade, but only three times. It helped me a lot and I really think it jump started me into remission (along with my other meds of course). A home remedy that I like is apple cider...