Thank-you to all who have read and responded to my post. I have a lifetime to decide where to go from here. It is hard to say what the best option is at this point. I feel like I am a high surgical...
So, I just had phase II of J pouch Surgery and less than 2 weeks out I went to my doctor to drain a liter fluid filled abscess from my rectum that apparently caused the pouch to separate from the...
You were all right! After a trip to the surgeon he advised I get things checked out back at the hospital under anesthesia since I could not tolerate an in office rectal exam. He found an abcess...
I am looking for advice from people who have undergone stage 2 J pouch surgery where the rectal region has been literally dissected and connected to the J pouch for future voiding. I am having more...
Bennie, I am glad to hear that your daughter can live life as a normal 17 year old and that she has had a positive experience from the J pouch. It gives me hope to hear success stories., So far there...
RobinByrd Thanks for the reference. I am a 32 yr old Mother of 2 and also a wife of 6 years. It is nice to see someone so young like myself accept the Ostomy which I am having a hard time doing....
I have some questions about the J pouch surgery that my surgeon scared me half to death about . 1) Am I really going to have 5-12 Bowl Movements per day? What was your experience with this. 2) How...
Thanks for all of your support and experiences with the surgery and people you know who have had it. I can't wait for the day I can wake up and feel well again. Things are not improving as planned...
The docs came in this evening. They put me on another 48 hour IV cyclosporine then will send me home on oral cyclosporine. At that time I will be meeting wth a Colorectal surgeon at Washington...
So, the cyclosporine got me down to 10 trips to the bathroom which was much improved from 27. I had been on that plus, zofran for naseau, protonix for reflux, probiotics, adavan for anxiety and...
I have been in the hospital for 3weeks and counting . What prompted me to go was the fact that I lost count about how many trips I was taking to the bathroom, I was dehydrated, throwing up, could not...
Hello I am in a pretty severe flare and have been in the hospital for 2 weeks and counting...This has been the only flare where nausea has been a problem. I entered the hospital averaging 1-2...
Subdued I have been in a on and off flare for about 4 years. This being the worst one to a close second about 3 years ago. The doctor could not promise me that once she gets this under control how...
ediekristen The docs did not want to try remicade becuase they said that if my body does not respond to it and I stay in this unrelentless flare that it would be 6 weeks until they could consider...
It has been a week in the hospital and after not responding to steroid therapy and other failed medications the doctor has decided to put me on cyclosporine along with a cocktail of antibacterial and...
Ever_Hopeful Yes, the doc has mentioned humira and I have weighed my options with that verses Remicade and Methotrexate. It has been decided that Remicade and prednisone is the final treatment plan....
Thank you to all for your insight. They did actually increase the prednisone IV to 60 millagrams per day 20 mg every 6 hours. They have me on a clear liquid diet too which was mentioned here. I...
My doctor today said it's time for a second opinion. I was scratching my head since she has been my doctor since I was diagnosed. I was supposed to begin Methotrexate today but instead was send to...
Pushing Forward, I have just recently starting seeing a Nutritionist and have been introduced to a brand new test that I will definitly be taking advantage of since I am very much interested in...
Hello, I am starting Methotrexate on Monday which are 1x per week injections to calm down a flare I have been in for over 2 years. I was diaganosed in 1999 even though I had symptoms and was...
I took Imuran for 6 months in 2006 but had to stop it becuase it made my joints ache. I was limping up stairs and felt like it was really impacting my mobility. This was also after a course of...