Hey Eliane! I am sorry to hear about your troubles. I was there! My 6MP has been increased to 100mgs and I am now on another taper of prednisone. Down to 10mgs. Right around the time you are at (one...
I am now on 100mgs of 6MP. I started the drug January 20th. I hear it takes at least 3 months to work. I have no side effects EXCEPT loss of appetite. I had to go back on prednisone and increase my...
What is an anti-inflammatory diet? I am still suffering today. I have such horid pain in my stomach. I scared to eat. I don't get it. I am on 75mgs of 6MP. Is that enough??...
What does l-glutamine do? I would say probiotics & fish oil. I have been taking aloe vera caps for many many months and that has done nothing for me....
yup Eliane...thats exactly where the pain is!...
I am sorry to hear that Eliane. That pretty much happened to me when I tapered down on the prednisone. I started to bleed again. My GI decided to continue the taper and get me off the prednisone and...
I too have been bleeding since last January! Hospitalized twice already. I am now on 6MP and have been on it since January 20th. I thought by now the bleeding would stop. I wish I had an answer. I...
hey all! yes, i actually started the 6MP while I was in the hospital back in january. i was on IV steriods and then released on predisone. I weened down and am off the prednisone....but never really...
JRob - whats up!! Have not seen you around in a while! I too am now on 6MP. Everybody...March 20th will be 2 months on it...and I am still bleeding??!!!! Is that normal? I take it at night. I have...
Hey hun! I would def. recommend taking it at night. I have been on it since January 20th when I got admittted to the hospital. I just got off the prednisone yesterday. Unfortunately I am not yet in...
I have an Rx for clonazepam .5mgs. I take it at night to help sleep. I was prescribed it for major panic attacks years ago. It is addicting. I am also on prozac. I have tried paxil CR in the...
I quit after smoking for 15 years. This June will be 2 years for me. I used chantix! It was a miracle. My husband used it too and as of 2/19 is a year smoke free....
are they keeping you on liquid diet or low residue? are they giving you any pain medication or photonex for gas/indigestion? do they offer any sleeping aids/anti anxiety? the IV steriods whacked me...
I was on 20 mgs every 6 or 8 hours...both hospital stays. I was then released on 60mgs of oral prednisone. I am so sorry you are in the hospital! please let me know if you have any questions. wishing...
bleeding is my #1 concern. i have been hospitalized twice. i have been on prednisone many times and seem to be dependent to it. so now i am on 6MP. make sure you are getting enough iron and make sure...
This is a great thread! I was going to post the same question in regards to 6MP. I am sitting here feeling like I am about to get strep throat. I am trying to wash my hands all the time...but...
I have heard nothing but great things about Dr. Dan Present. In fact I think he wrote a paper on 6MP and pregnancy. I am not yet pregnant but planning on it soon via IVF. Been at it for years....
No...they live in south florida...Boca. I actually found the article on the Palm Beach Post website :)...
Kiss...how ya feeling these days? are you still doing the spinach diet? I still can not believe you are in remission. I also can not believe I do not motivate myself to give it a whirl....
I ordered the supplements last night from vitamin shoppe. Vega19...how many mgs do you take?...
My grandparents just called and read me this article : By Joe and Terry Graedon The People's Pharmacy Sunday, February 22, 2009 [b]Question: Thank you for writing about coconut for treating...
Good Luck Elaine!!! Wishing you the best. I am tapering and down to 5mgs but still have blood! And I am on the 6MP. Ugh....
i am confused....6MP seems to work miracles...but everybody says they ultimately end up flaring at some point. Why is that? I know there is no cure for our disease...but I feel like these drugs are...
Thanks guys!!! I appreciate your support!!...
Hi! This might be a dumb question....but I have not had any gum in months and today decided to chew a lot of gum. eclipse sugar free gum. It contains maltitol and sorbitol. I have not ate anything...
I am doing okay. Definitely in much better shape than I was on January 20th when I got admitted. Today after dropping from 10 to 5mgs...I can feel a lot of activity going on in my belly. I also have...
I am also an endo girl. I have had 2 laps done and on monday I am having an endo biopsy. The endo is one of the reasons I am an IVF patient, that and male factor. Please email me at *** if you have...
I recently went through a year long flare. I was hospitalized back in January for the 2nd time in less than a year. I am now on 75mgs of 6MP (today is ONE MONTH) and just got weened down to 5mgs of...
I am so confused because I went to a high risk OB and she said that it is SAFE to take 6MP & asacol during pregnancy. She said she has delivered many many babies who's moms were on 6MP. I asked why...
Anybody take pain meds if they are having terrible withdrawal from prednisone? My joints and body are KILLING ME! In addition I have left sided pain that really hasn't gone away since being admitted...
I have to agree with Erica...I have met with High Risk OB's at the best hospitals in Boston and they said it is ok to take 6MP and remicade while be preggo. They said they have delivered perfectly...
Christine...how are you feeling on the 6MP? How long have you taken it? How long did it take to start to work? Tomorrow I am going down to 10mgs of prednisone and I am on 75mgs of 6MP. I have no...
Hi there! Sorry to hear about your recent hospital stint. I can totally relate to you. Unfortunately every time I would come off of prednisone my flare would come right back. I have been hospitalized...
Elaine...remember I was hospitalized on IV steriods so they released me on 60mgs of prednisone. I was a mess. I couldn't sleep, I was running around the house cleaning, my heart was racing,etc. Then...
Hi All, I am now on 75mgs of 6MP and tapering my prednisone (currently at 20mgs). Since being released from the hospital I have lost 14 pounds. I have no desire to eat. Is this typical of 6MP?...
Unfotunately yes it does spread. My inflammation has gone from my rectum (about an inch) now up my left side about 7 inches....
Sorry to hear about your troubles with 6MP...I was really using you as my inspiration. I am on 50 mgs of 6MP. I go to the GI on Friday to see what my blood tests show. I am doing so much better but I...
Hi Elaine! I have been on steriods therapy about 3 times. I wish I had a great story for you. I just wanted to let you know I am RIGHT THERE with you. I am weening off my prednisone (on 20mgs) since...
Scarlett....definitely not low in body weight and I am turning 34 years old. I see my GI on friday as a follow up from being released from the hospital last week. I will ask. Thanks!...
This article might help you: http://www.uptodate.com/patients/content/topic.do?topicKey=~_jwjjvUMq.OAM3h From all the 2nd opinions I have gotten and from the high risk Ob the other week...all the...
Emory - where do I get the natural calm? did you first try it for your headaches or for your UC? I have 2 jars of the sun butter in my house. I have not buckled down to start the diet. right now i...
I have only been on 6MP for a week now combined with 40mgs of prednisone. I was hospitalized and ran out of options. So far on 50mgs I have no real side effects. I have no appetite though but I...
Emory - i missed you!! how are you feeling? still flaring? have you changed anything up? Kiss - i still can not believe you are in remission!! how much inflammation did you have? i remember when you...
Thank you all for your responses. ...Scarlet...your response def. has given me a lot of hope. I have been in a nasty flare since January 08. Been hospitalize now twice and basically never stopped...
hello, i am sorry for everything that is going on. i know exactly how you feel. i would also just try the prednisone before going to Imuran. after you taper the prednisone see what happens and then...
Hello Friends! I would love to hear some encouraging stories about how 6MP has put you in remission. I just got started on it while I was in the hospital. I have been so scared to take that step...
Thank you all for your advice and care/concerns. I just got so confused because one Dr. said left-sided colitis and one Dr. said it was proctosigmoiditis. It really looks like anytime inflammation...
thank you all for your responses!!...
Anybody out there that is using haldi drinks for their UC? Is it helping? Are you on other meds? Please share your experience?...
I got released yesterday from the hospital on 40mgs of prednisone, 50mgs of 6MP, and 12 asacol pills. NO RECTAL MEDS. Which I find strange. Anyway, I was told that my proctitis has moved into my...