I don't want to discourage you, but to tell you honestly that neither prednisone nor 6MP has helped me. I sat out my last flare only on Lialda, probiotics and antidepressants and that's all I take...
I can imagine that taking Flagyl and Levaquin should get rid of a possible antibiotics-induced colon infection C. diff). I take Levaquin AND Flagyl at least once a year when I have a flare, because...
My flares - the heavy ones with bleeding and that last 4 months - always start at the height of summer, end of July. I live in Texas. Before that, I lived in England and in Germany and couldn't...
I just switched from Asacol to Lialda due to financial reason and a letter from health insurance that Lialda is cheaper than Asacol. I was wondering if someone had better results with Lialda than...
How did you find out? I mean, obviously you got tested, but did you have any symptoms or suspicions? Diabetes is kinda my scary disease, something I am very scared of....
I'm sorry too, I just laughed out loud imagine the dust cloud out of the mouth as if you punch into a big mountain of flour ... hee hee...
WBC in your stool can also mean that you have an infection in your colon - I have one right now that sent me into a major flare. My doc said that people with UC can easily get colon infections...
Can you lay on your left with your left elbow in a stack of pillows and your head resting against your hand? Or does the shoulder hurt that way too? That's the way I usually try to administer enemas....
Well, after having this cruel disease for over a decade, my personality certainly has changed too. It is the nature of every chronic disease I guess and just imagine your wife has to deal with the...
Doctors like that should be stripped of their licence. Sorry Susie for such an experience. Not that you already feel shitty enough. There is still someone else who makes you feel even worse. I ran...
I am not on Remicade, but ... I have taken Prednisone for 3 months to no avail and 6MP fails me too. The reason for it is that I am very prone to colon infection (WBC in my stools) and I seem to get...
I started 6MP a year ago. Well, 6MP and Imuran are not exactly the same. They metabolize differently. You need a certain enzyme to break down 6MP and I don't have enough of that, thus I am a low...
So I have this big flare up since 3 months and I have taken Prednisone for 3 months (started at 40 mg) and a total of 144 Pred pills (10mg each) and since it didn't do anything, I tapered off and I...
Hi Christine, I can relate and commiserate, because I am in a similiar situation. I don't have a colonoscopy coming up, but I have this flare now for almost 3 months and I take Pred since 2 months...
i also get the nightsweats with flares, it doesn't take Prednisone to be soaking wet at nights. When I take Pred,I literally sweat all day and love to sit under the ceiling fan switched to full...
I am on Pred right now (since 4 weeks, started at 40 mg, now at 25 mg) for the second time in my life and it doesn't do much for me either. My flare started 6 weeks ago and I am nowhere where I...
Hi there, well ... I was a heavy smoker for 18 years (age 18 until 36) and got UC when I was 25. When I was diagnosed, I was still a smoker. So it wasn't like that UC broke out when I quit smoking....
Wow, I have exactly the same issue on the left side! When I am flaring, I can't be on the left side or I have urgency. Very practical when you are on enemas. I have to lay around on my left side for...
Well, that's truly amazing. I always had big problems with raw fruits and vegetables, long before UC. And like I said, lots of veggies I can't even eat steamed or cooked....
Sorry to hear that, I can relate. I started a flare three weeks ago that mainly consisted of regular BMs encased in lots of white mucus. One week ago, it all went downhill with bleedings. I am on the...
Just a question: How in the world can you eat raw foods? i can't even eat raw foods (thinking of carrots, most fruits except bananas) or most vegetables like spinach, broccoli etc, when I am NOT...
Ooops, sorry for the mix-up Elaine and Christine! Thank you for the nice replies. It makes me feel better. No, I won't throw in the towel, although I really want to. I've been through this before. I...
Thanks Elaine and Christine. I had the prometheus test while I was on 75 mg and it showed that I am a "low responder". I had unbearable side effects under 75mg (one was strong headaches that never...
I'm sorry for being ironic and sarcastic and this is a major rant, BUT .... I am royally p.o.'ed that I have a flare although I am on 6MP. Yeah, what was I expecting? I had this wishful thinking that...
Yes, I second that. Every other flare I have is without bleeding. Actually it is more like having a stomach bug (without throwing up) for a few weeks....
I am sorry and I know exactly how you feel! I am pissed as hell right now too, because I have a frigging flare myself after being put on 6MP. I took 75 mg for a while, but needed to lower to 50 mg...
How often do you all on 6MP have bloodwork done? I will only be scheduled monthly if the last blood test is a bit off from the previous or I slide into a low count. I am supposed to be due in October...
Excuse me??? Don't twist my words. I said that I feel nauseated when I take Tylenol, because too much Tylenol can be damaging to the liver. Why do we go for liver tests while on 6MP when it has no...
Consuming alcohol while on 6MP is not recommended as per information sheet that comes with the prescription from the pharmacy. Like I said, I don't drink and I can only imagine that 6MP in...
I am sorry to hear that. I am surprised that there are people who can eat red pepper sauce or even hot food. I have never been able to do that, even pre-colitis. Hot food makes me feel someone is...
6MP also put me into remission from the third week that I took it - initially 75 mg a day. That would be 1 1/2 pills a day. I am now at 50 mg, because the side effects were too bad. PROS: Puts me in...
I have two cats named Mister Willis (Maine Coon Mix) who is 13 years old and the most arrogant and megalomaniac cat i have ever come across. He struts down the hall and if the dogs dare looking at...
Elaine, I am on 50 mg of 6MP myself since a few months and that metabolize test (Prometheus Test or whatever it is called) also showed that I am not in the therapeutic range. But still it is doing...
I am sorry that you are feeling so poorly. I remember that one time I took Prednisone and got off of it. I felt like crap in every regard and it took some weeks before I felt myself again. I have no...
I had the red rash that you describe almost immediately when I started 6MP. The rash went away, but since then I have acne/very bumpy skin/zits around my chin and jaw line. Using Noxema products has...
I also take Align and it is working for me. I take since almost a year. It is not true that refrigerated probiotics are better, if that were so, why? I tried refrigerated probiotics and they send me...
I have taken Celexa in the past and trust me, hang on in there! It takes around a week or two when the jittery feeling disappears. Been there, done that. Did your doc give you some Xanax with it? In...
I couldn't agree more that CBT and yoga are extremely helpful. Also vigorous exercise like spinning as hard as you can for 30 minutes 3-4 times a week to burn off all that excess adrenaline that...
I'm living without antidepressants and anti-anxiety meds since I gave cognitive behavioral therapy a try and it works wonders for me. I just didn't want to take pills anymore and thought, there must...
I'm so sorry that this happened to you. I can relate. I had many panic attacks about this disease and especially about how fast to find a bathroom. I even get a little feeling of panic when I am not...
Sherry, if it turns out that the gums around the teeth are bleeding and/or very sensitive, the hygienist can do a flouride (?) treatment. I had it done several time. It is like applying a paste on...
Little correction on my previous posting: Of course I meant uninterrupted sleep, not interrupted sleep. I take 6MP with my dinner no later than 6 PM, but I feel the most fatigue towards the late...
I use Listerine myself - maybe it is psychological that the burning mouthwashes make me think that my mouth is cleaner. Did anyone also hear that Crest mouthwash makes your teeth yellow over the...
Yeah, the fatigue is pretty annoying. I need at least 10 hours of interrupted sleep per night before I feel rested, but how realistic is that it happens every night? I tried naps, but strangely over...
I have very sensitive gums and they bleed easily since I am on 6MP. Almost daily I can strip off some skin of my gums and inside the cheeks. Yeah i know, gross. I use Sensodyne and am very careful...
I'm in the lucky position that 50 mg is doing the trick for me (although I am also a low responder due to that Prometheus Test). Started out with 75 mg, but that was way too much for me to handle and...
It could also be a panic attack. Unfortunately I have a pretty good track record regarding anxiety and panic attacks. Prednisone can cause anxiety and panic and the one time I took it so far (not...
I also use sinus wash on a regular basis. I use a neti pot and the little saline pouches you dissolve in water. It takes quite some getting used to running salt water through your sinuses, but since...
Elaine, I am not at therapeutic level according to the Prometheus Test either and I take 50 mg also. Since I take 50 mg, my blood work is okay (blood count just slightly down, liver is okay) and one...
There is no reason to be scared as long as you have a good doctor who will answer all your questions and also, do your own research. Your body is your own responsibility, so when you decide to go on...