It's scary and sad. This thing is no picnic. Thank god there are these medicines that can help us - even temporarily. I've had a good 6 year run in remission with 6MP and for me it just seemed to...
I was having real trouble around 7 years ago. Pred didn't help and only made me feel weird emotionally and rotten about the moonface thing. I started on 6MP and a month into it I was feeling much...
Unclebubba, That's so forward! So nosey!! LOL! I think that's a great question...love to see where everyone is from. I'm from Toronto, Canada. Eliza...
About a year ago I had an incredibly stressful period and I have no question it was this experience that brought on the bad flare I'm in now. I believe that for me, the stress can bring it on and...
Taylor, Oh my!! I feel so badly for you and for your husband. What a crazy, rotten time for you - for us!! My mom is very supportive and encouraging and when I feel really down, she tells me that...
Hi Peety, Which probiotic do you think has helped you most?...
I've been on 6MP for about 6 years and it helped me get into and stay in remission throughout all that time. I had some serious stress in early 2008 and I've been in the worst flare ever since, still...
Hi TaylorB, Yes, of course, let's communicate outside the forum. I'll handle it any way you'd like ie. getting in touch with the moderator- hi there- can you help?! The fact that the study...
These replies made me laugh...I needed that seeing that I just had a horrible night! I like the comment about knowing where the bathrooms are - that's so true! Today it's hard for me to come up with...
Hi Unclebubba, That's so funny! This is a crazy disease isn't it? I think that maybe it's just coincidence, but maybe not. Maybe the spinach and seeds are really kicking in now. I would hesitate...
Hi Snwbunny, It's a very unpredictable disease and it's really tough to take at times. Sometimes you'll think you're doing better and then you'll have a terrible day for no apparent reason. Make sure...
Hi Colitis Confusion, I agree with what Bennie said, I don't think cause of death was colitis, but if so, it's very rare and with the meds and treatments of today, you should be fine. I have 2...
therearemiracles, I live in Canada and the meds are covered but I too sought out help from a naturopath and I was hugely disappointed. I've also tried reflexology - and no change. The reflexologist...
Thanks, BBC! Eliza...
Dr A, Sounds like you're doing great- congratulations! Do you attribute this to the Golimumab? I'm in the second phase and believe that I got placebo in phase #1 (just hoping, because nothing...
Hi UCW, Ok, I'll buy the explanation, but how is it going to help us? After 6 years in remission I find myself in the worst flare ever. I'm familiar with the concept of this being a genetic problem,...
Thanks, cfromutah. I appreciate all your information! Have a great night. Eliza...
Hi Cfromutah, Will a couple glasses of wine cancel out the magnesium? I'm eating the spinach (had a great omelette this morning) and lots of sunflower seeds... Eliza...
I find if I fast or even eat very little in an attempt to give my colon a rest, that I get extremely tired. I'm anemic and not eating just keeps me exhausted...keep that in mind. Eliza...
Oh brother- sorry for the repetition- I thought my first message got lost so I re-wrote!! I'm fairly new to this! Eliza...
Cfromutah, Please don't disappear- I'm in the worst flare ever and after reading a lot of this thread, I went out and bought spinach and sunflower seeds today. I'll follow your instructions and hope...
Hi Paul, Hi TaylorB... Paul, I'm doing the Golimumab study at Sunnybrook under the care of my Gastro, Fred Saibil (great doc). I'm sorry to hear that you had no results from the studies you've been...
Hi TaylorB, Sorry to hear about your husband. I seem to be going to the bathroom about the same as him- 15- 20+ a day. The first 6 weeks in the study were the same, that's why I think (I hope) I was...
Hi TaylorB, I've had UC for over 20 years (diagnosed at 18). I'm in the midst of the worst flare ever. My gastro suggested the Golimumab study. I've been in it for several weeks. I am hoping that for...
Sorry to hear about your wife...hope you're feeling better. Thank you for the info on the Golimumab... Eliza...
I feel for you Jblue65- I'm a 43 year old female and going through similar stuff to you. I am in the worst flare ever after 6 years in remission. I am on 6MP, salofalk and 1 prednisone a day (if I...
Hi Dr. A It's a very weird, annoying disease where there is no rhyme or reason most of the time. It may be certain foods you're eating- maybe keep track for a few days and see if there is a...
You may be in an appropriate situation to get into the Golimumab study. I'm in it (without any benefits yet, but hopeful). It's for someone who is flaring - speak to your Doctor- or your new Doctor...
I don't think the urgency in the car was in your head. I think that maybe the motion contributes to the urge. I have the same thing. I think that I may get really nervous about the fact that I have...
If he is really good when you are sick and when you are healthy, it's worth pushing forward but if you find he's stressing you, you may want to consider a change. UC isn't the sort of disease that...