UC is IBD. Colitis? I don't understand what "colitis" is? IBD is an autoimmune disease. When the immune response is fully understood, a plethora of diseases will disappear....
I think you're well on your way to getting a life back....
I had pain behind my belly button, that's where the transverse colon resides, However, from years of UC my colon had narrowed to the width of a pencil. Passing stool in this area became painful. I...
I'll echo a plus for the j-pouch. Everything that Suebear and Bennie has said is my story as well. You should know that an ostomy bag will have to be emptied constantly as well. There is no reason...
I couldn't tolerate 6mp either. As soon as the doseage was increased to the regular dose, I started hurling. My best long term experience was with a colazol/cyclosporine combo. Then the dysplasia...
A good thought for you from me. 19 years old is too young to be saddled with a disease. You should be enjoying life. With God's help this flare will go and not appear again ....
I take immodium whenever I can remember. Potatoes seem to be an excellent food for forming stools in the pouch....
Two months after my father died in my arms....
Maybe a different 5 ASA drug would help. At the end of my bouts, Cyclosporine and Colazol worked better than Asacol. 6 MP was a no go....
I only vomited from anemia....
"IN any case I have yet to come across a person in India, who is really doing well after surgery" --------------------------------------------------------------------- If this doesn't speak volumes...
Psa, come to NYC and Mt. Sinai hospital. I'm sure that they can improve on your surgery. I do best when I take a daily dose or two of immodium. After j-pouch surgery, it's important to drink max...
I'm sure the scope will tell the tale....
I hope that Paul L will return a positive verdict on the surgery in a few months time. I had J- pouch surgery in September of 2001 in NYC. PaulL is right. It's MAJOR SURGERY! Once you've had it, you...
Megan will have the rest of her life back soon. I'm sure of it. She's a very brave young lady....
I'll ditto Suebear's remarks. J-pouch surgery has an excellent potential to give your daughter her life back. I wish I had done it years sooner. Dysplasia took the decision from my hands....
They don't stitch you closed after the resection. Here's a good thought for quick healing....
The J-pouch site explains it fully. Your doctor probably hasn't mentioned it because it's generally not a primary option....
I had the big incision surgery (j-pouch) and the recovery from the first surgery is difficult. The first few days are painful with movement (and you MUST move) The resection is not nearly as bad....
When they rip you up in surgery, the catheter is the least of your worries....
I was under the care of Dr. Burton Korelitz on the upper east side. I can't speak for the other physicians whom I am sure are fine. My GI doc in Westchester was impressed that I was able to see Dr....
It's okay. I did it for years. Don't double dose the Tylenol....
When I had a colon, Tylenol helped with the pain of passing gas/feces through a narrowed, tranverse colon....
Research and find the best doctor you can get....
My wife has MS and is taking Tysabri. Although you can't go by her, 3 infusions seems to be the minimum. My wife felt better after stopping the Betaseron....
Zoe, wife took a disability 3 years ago. If I pushed her she would work. She may be better now than when she stopped working. I don't know? She's a bad girl when it comes to structured physical...
Wife DX'd in 1991. She had tingling in extremities. She said that she had similar tingling for a period 9 years earlier. Her walking and balance are compromised by a bulging disc. She uses a walker...
My wife is much more tolerant of heat since starting the Tysabri. I have noticed that she seems less ill and more motivated. This is strictly anecdotal. She has no side effects from Tysabri, and even...
My wife just completed her 3rd Tysabri infusion. She had been taking the CRAB injections for 10 years and had been getting progressively worse. The absence of the side effects of Betaseron alone has...
My positive thoughts? I've read that Tysabri will be the cutting edge therapy for the next 5 years (that was about a year ago) and then something newer and better comes along (effective oral...
Mod note: Edited due to no duplicate post rule #16. The original post can be found in Buckeyes thread New to Post, Hello Everyone!...
I'm going to jump in here. I've posted on the Ulcerative Colitis board as I'm a UC survivor (cured with a total colectomy and j-pouch surgery). The missus has MS. She was diagnosed in 1991 and is on...
Frank, I can only speak for the j-pouch. The urgency is not an issue. I have held up for hours after the first urge. A shortened colon might present different problems....
Frank, I had J-pouch surgery. The reconnection should be a breeze compared to what you've been through....