I have finished a course of mesalamine enemas for a flare. I now have started feeling aches and fatigue etc. - is it possible it is a withdrawal from the 5-ASA/mesalamine? I know this happens when...
July...
I persuaded my doctors to treat me as if I was infected too. I did doxycycline, Flagyl 3 times, Cipro several times, Flomox, and Iodoquinol, and probably more, I 've lost track. And it all just made...
My UC cleared up when I went to Japan for 2 years. I went despite the UC, determined not to let it destroy my chances at experience in life. My advice would be to just go and see how your gut adapts,...
I had a similar result from a bone scan. I am a 53-year-old male with a healthy diet and regular exercise, and the scan came up with osteopenia, especially in the neck, arms and shoulders. I have...
I had the classic situation of quitting smoking and then being hit by UC. Starting smoking again has put me back into remission - although work and home life circumstances make it almost impossible...
I do not have a pouch but I find similar effects from the hand held shower too....
I took it for 6 weeks and it did nothing for me. Took VSL#3 for 2 months, also with no results....
University professor, mostly involved in teacher education....
Originally, in 1985, after quitting smoking, I was stricken with UC with blood, pain, colonoscopies showed severe distal inflammation, and it lasted 6 months then simmered for about six months more....
I thought calcium carbonate, not citrate, was the one to use for D prevention? Because the carbonate is absorbed less into the system and therefore goes into the bowel instead, preventing D?...
Ask your doc about cholestyramine, a drug specifically used for gallbladderless people with chronic diarrhea. It works for many....
Heavy antibiotic use is really the cause of my gut woes, I swear. I seem to have a predisposition to sinus infections and despite the fact that those antibiotics helped lead to my first flare, I have...
When I use it it I take it (1 pill) after the usual morning round of BMs. It makes the next morning easier, with 1 more formed poop if I am lucky....
Funny how this miserable condition so often hits people in their prime, their 20's. I was 28 when first afflicted. That was 24 years ago, and I am still here!...
I see that the thread about Linda's calcium info has been removed, but she stipulated use of calcium carbonate to keep D in check, as I recall. I actually tried it and found it to be no help, but it...
LOL! Reminds me of this past winter when I was having a hard time shaking a cold/flu, and a student came to my office and saw me blowing my nose and hacking away. She remarked that I was sick because...
I have had daily IBS-d for over 3 years, relieved several times by entocort (taken for a number of weeks then tapered off, bringing the IBS-D back), and controlled in emergency cases by taking...
I had a similar experience to Old Hat. I took Pentasa for 7 years with no side effects. Was off for over a year and when I went back on, I couldn't tolerate the effects of nausea, crushing fatigue,...
Don't fear snus, it is not like spit tobacco, just sits between gum and lip and quietly releases nicotine and no juice. Doesn't help UC, though.......
NRT as in patches and gum don't work on UC, to my knowledge, nor does smokeless tobacco like snus. The combination of carbon monoxide and nicotine in cigs do the trick. Nicotine alone might help some...
kops2da said... I had immediate help from Align about 2 years ago - but we are all different. I tried Philips and another stronger one but they just made me more gassy and more diarrhea. Once I ran...
tap said... Mitzo said... 23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or...
Hi Diana, I find neither DA nor Florastor help either....
Align seems to be making my D worse, if anything, now after like 15 days. Enough, I'm throwing it on the "fail" pile which is composed of stuff I have tried over the last few years: VSL#3,...
I have been taking this for 2 weeks with absolutely no effect whatsoever except some gut gurgling. Has anyone experienced success with it and if so, how slowly does it kick in?...
I am thinking of going for the seed powder, I have taken husk powder before but not seed powder. AussieDogMom, I have only been taking Align for 5 days and it is helping a lot so far, no negative...
It has few if any side effects, although long, long term use might bring some on. It has helped me 3 times, it takes a few weeks to kick into gear but is effective when it does....
Thanks - I have afeeling it maybe just slowly stopped working. Right now I'm on Pentasa and just started Align a few days ago. Incessant D and urgency are my symptoms, no blood etc....
Is it possible that psyllium could cause D? I have been taking a spoon twice a day for over 15 years. Could it be just now causing trouble, have I developed a sensitivity? Does such a thing even...
Great news, I hope it keeps working! What probiotic have you been using that has 80 billion?...
You are lucky to have such a mild case of this crappy disease. My MO has been to do my best to carry on with life as if I am fine. Since diagnosed with UC years ago and having IBS too, I have moved...
Reading this thread might help a bit: http://www.healingwell.com/community/default.aspx?f=38&m=1825751...
I took Pentasa for 7 years with no side effects I was aware of. I quit it last fall on Dr.'s advice, since it was doing nothing to help my current symptoms. I went back on Penatasa for a short while...
It has helped me a bit. Makes you retain water, though....
I took 3 weeks of flagyl lately and it helped while I was taking it, but am now deeper in the D hole than ever after finishing the course of flagyl....
Lots of trolling on this thread. And the "exit only" stuff is really helpful. Not....
I have tried nicotine replacement and oral smokeless tobacco and they do not work - only cigarettes put me into virtually full remission. It is amazing, actaully, how well and fast they work. For...
I have noticed some improvement in D after about a week on this....
If you have found it pleasurable before, you will again, especially if you are in remission or find that it is not painful or having unwanted effects. Thanks for bringing up the question, it is...
Coping with anal sex and UC depends on several things. First, how low is your inflammation? If you have low sigmoid or even rectal inflammation it is 99% likely to be too painful and even dangerous....
I really think more stool tests to check for parasites might uncover a cause - bearing in mind that most docs are reluctant to order the tests, and that the tests themeselves often give false...
4 - 5 times every day. I need at least 2 hours before I go anywhere....
I feel your pain - I was doing OK until I got a horrible flu and made the mistake of visiting a clinic, getting prescribed Zithromax, and immediately lapsing into liquid explosive D which has been...
Like Levi, I have had fantastic results from Entocort, but the doc will not prescribe more than a few weeks at full dose, and when I taper, I fall apart again. Oddly, the docs will prescribe Pred...
Does C-difficile always involve fever and abdominal pain and all that, or just watery D? I am in a mess after a short Zythromax dose for sinus infection, and I know C-difficile can hit after the...
It's not available in Canada....
Entocort has been a wonderdrug for me the three times I have been on it. Docs will not leave me on for more than a few weeks before tapering off, though, and so I end up back where I started....
Ottawa,Canada, originally from Prince Edward Island....
Aren't mouth ulcers often a sign of a vitamin or mineral deficiency?...