Wondering what everyone's thoughts are or what they have done for the social distancing while being on an immune suppressor ? Are you going to family or friends gatherings? I've been on Immure for...
Ive eaten a vegetarian diet (some eggs and cheese) for the last 18 years, so I get plenty of fiber from mostly veggies. My one caveat is that I need to probably exercise more to get things moving. I...
Constipation = my nemesis Ive always had issues with constipation with my UC. Ive been in remission for over 5 years and just now had a flare a couple weeks ago. Started 40 mg of prednisone, down to...
Funny how hand washing seems to be the prevailing theme for staying healthy during flu season. I too am a hand washer, wiper of shopping carts and one to never open a public bathroom door when done...
Just got word from my GI that I should stop taking the Azathioprine for a week to get over these Shingles. Feeling better today, but hope all will stay ok in my gut....
Besides getting a flu shot, what do you do to ward off the flu? Certain vitamins, hearts, teas? My husband is getting over the flu (3 days of fever and coughs) and his doc told him to stay at least 6...
Was feeling better today after 3 days on the antiviral. Now tonight, I've got an stabbing earache on my left side. THiS is exactly how they started last Saturday night on my right side! I didn't...
Thanks for all responses! I'm definitely checking on the vaccine when I'm over this. Red, usually before the zingy feelings, you might feel flu like symptoms. I was nauseous 5 days before and had a...
Have had UC for about 19 years. Been on Immuran for 3. No flares and feel great. But was just diagnosed with Shingles on Wednesday. Put on an antiviral and just resting as much as I can. I know our...
I have been on Imuran since Sept. 2010 and have been in complete remission. NO symptoms what so ever! Its been a life saver for me. 125mg. per day for me has been good. All bloodwork has been normal....
What is Saccharomyces Boulardii? Where do you find it?...
Thank you for the great information! I SO wish I liked regular yogurt. The texture just makes me gag. Is frozen yogurt with live cultures just as beneficial?...
Ive been prescribed to be on 50mg of antibiotics (Minocycline) - 2x/day for a month to get rid of a Perioral Dermatitis rash on my face. UG! I used to take a probiotic Primal Defense by Garden of...
I take 125 mg. (2.5 tablets). I weigh around 112 lbs....
Chiming in here with a question.. Which brand multi vitamin is the best? Currently Im taking the Target brand Women's with iron....
Did you get it through food or supplements?...
i know there have been a million questions about Prednisone and it's side effects. But Im wondering if anyone has any tips of how to "de-puff' the moon face..even while taking the minute amount? I...
I too get this pain and have posted questions to see if anyone else experiences it. I just have always chalked it up to the start of a flare and or just very bad gas pains. If I feel any start of the...
YOU made me back out of my driveway and put a dent in my husband's car!!!!!! UG. So I started 40 mg of prednisone last week..now down to 30 this week. Other than insomnia, I dont get too jittery. But...
Thanks again for the feedback. Hearing others who are on it helps it not be so scary. Gosh, you'd think I was 10 years old. MyUC..our stats are almost the same. I commend you for being a dentist with...
As I literally just sat down at my computer after an sigmoid scope from the doc an hour and a half ago. I have some pretty severe inflamation in my rectum and lower sigmoid. Yea! This weekend was...
I was so glad to see this post today as I literally just sat down at my computer after an sigmoid scope from the doc an hour ago. In front of me, I have a bottle of prednisone and and new bottle of...
For my last colonoscopy, I did the Gatorade and Miralax combo. It was so easy. I am a believer that the prep is worse than the procedure. And have always had huge issues with the Moviprep, etc....
So I had my appt. with my Gi yesterday. I left feeling very good with a plan of attack. ( I love having a doc that takes a lot of time to listen and answer questions!) So rather than going straight...
NiRo, When I was first diagnosed, I took Azulfadine for 6 years. That stopped working, and my doc put me on Asacol, which did absolutely nothing to help me. He decided to try Pentasa because at the...
Another quick question for those on it.. What dose did you start on when you first went on it. I want to gauge what the doc suggests for me......
Great replies everyone! My appt. with my GI is Wed., so I'll see what he says. I guess for me its always been a matter of "I dont have it so bad..I dont need those strong(er) drugs.". My UC has...
I've got my GI appt. next week and I know this question is going to come up. Ive done fairly well on Pentasa with a round of Prednisone every couple of years. After having a long flare and getting...
Thanks for the feedback. Back from the doc and no strep. Im sure it will come soon enough. As I usually get it a couple times in the winter. I too have used the z pac and I dont remember it affecting...
Considering the debate about whether antibiotics play a role in causing UC or starting a flare..If you are told by a doctor, do you request a certain brand? I am very prone to strep throat and that...
These last few days I have been a bit stressed lately and I can definitely feel this "knot" then..it almost feels like Im SUPER hungry. (And I've just eaten.) Could quite possibly be a correlation...
Does anyone get a weird "tight", almost feeling stressed feeling in their stomache before or during a flare? Ive noticed that if I have a not so good day, that my middle almost feels like its wound...
Great feedback! Thanks. Not sure if I'll try Flax seed, but it was worth it to ask others. :)...
I've been taking Fish oil supplements, but have read that Flax Seed oil is just as good. Anyone with any preference or does one seem to work better than the other?...
I agree. Remission means something different for everyone. Mine would be no blood (or at least a very minute amount) and just being able to not think about my insides. Also, just a state of mind....
I've been in remission for about a month now. Yesterday I had just some "gas pains" in my abdomen. Today, feeling better. I DID do a very long walk (about a 3 mile) yesterday, so I am thinking that...
Thank you for your responses. My son went (pooped) again on Sunday and besides being a little soft, there was no blood or mucus. whew. Funny..today, after I picked him up from school on the car ride...
Of course for all of us with UC, we are afraid to pass this along to our kids. My son who is 3 woke up last night at 4 in the morning with "a tummy ache". He sat on the potty and all that came out...
I was on 40 mg. and now to 10 mg. of Pred. Constipation is ALWAYS a sign of healing for me. Pred. causes (for me) everything to slow down or stop completely for a while. The first 2 weeks I was on...
I use Garden of Life Primal Defense. Ive tried Culturelle in a pinch when I ran out of the Garden of Life, but they didnt seem to work as well. I just order the big bottle online and it lasts me a...
I am currently on Pred. (20 mg) down from 40 mg. I ALWAYS get constipated when I start taking pred after a flare. My husband has gotten so used to my daily "poop reports", it's become a joke. But...
Im am 100% Scandinavian (Danish, Swedish, Norwegian). My mother was diagnosed with UC at 18. Im from Minnesota, USA....
Minneapolis, Minnesota...
I used the Lemon Lime flavor. The drugstores usually have a little side cap with all of the needs for the prep at hand. I think the lemon lime is good since you are not supposed to use red or purple....
Good to know. So is Azathiorpine a generic name for a 6MP? Is Imuran the same type of meds?...
My doctor told me on Friday that he might want me to look at starting Azathiopriane after Im finished with my prednisone treatment. Im not familiar with this drug and have been able to sustain a...
Yes. I am a vegetarian. Have been for for over 15 years. I started mainly for the humane reasons. And it's always just felt right. If you put your mind to it, it really is pretty easy. There are GOBS...
Sitting here enjoying a nice cold glass of Cranberry/Miralax cocktail as I type. (Just wishing there was a little something more in it. ha ha. :) I've been trying to up the fiber too. Veggies, even a...
I've used Miralax for years and really think it is one of the most helpful products out there for us with these issues. I think I'll just use a bit of that every couple days. Thanks! Yep. Agreed with...
I was trying to think of something clever to title this question, but this is all I could come up with. SO..after many weeks of diarrhea and blood (getting off Lialda and getting back on Pentasa), I...