I'm not sure if it's the smell gets better as you eat more solids or that I just got more used to it. :) I used the Hollister M9 drops for the odor. I was sent home with a small bottle from the...
I had similar issues when I had my ileos - esp my end. My doc said that at the time I still had my rectum and it still had UC which was creating blood and that blood is one of the most irritating...
Mine's pretty boring and obvious if you're into motorcycles. I ride a Ducati motorcycle....
I'm feeling like Dan...but I know there are people from WI here. :) I'm outside of Milwaukee, WI....
I remember post surgery #3 when I was adapting to my new plumbing I would lean forward and back and also side to side to make sure that I got everything out in one trip while my pouch was growing. 1...
I would just make a quick call to the surgeon's office and ask. It's better to be safe rather than sorry....
I was a 3 stepper because of both my steroid use and the fact that they had recently determined that if you are/have been on Remicade you have a better chance of recovery with fewer side...
I cut mine and usually got 2-3 uses out of each one once my stoma was done shrinking....
I used Calmoseptine pretty regularly right after surgery and am down to only when the BB gets bad now. I also used flushable wipes (read the packages - most are not flushable). Others have used Ilex...
It's good that you found out what you're allergic to and it's something that can be eliminated without too much trouble. Is your skin weeping and that's what led to the wafers falling off? I had...
I don't know if this helps, but yes, I have heard of having to do what you are doing (essentially an adhesiveless wafer). I started with the non-tape wafers because I am allergic to many adhesives...
For me it also made a difference if I drank a lot at once vs small amounts all day long. If I guzzled a large amount of anything it would go right through me but if I sipped it would absorb more....
I had many iron infusions prior to having surgery. Mine were Venifor (sp?). They took awhile and sometimes the nurses had trouble getting my IV in because I was pretty anemic. Other than that I...
When I scheduled my eval at Mayo, they scheduled it for a certain date - and then my GI said that wasn't soon enough. I called back and told them what he said and they found an opening for me. I...
I also had the vomiting 4-5 days after. My docs thought it was from the anesthesia wearing off. I didn't have it after surgery #2 when they changed my anesthesia to a spinal block which allowed them...
Congratulations and Good Luck!!! One thing to do to get through the next 2 weeks is make a list of all the things you're going to be able to do or free of once this is all over that you can't do (or...
Sorry for the book - it's a bad habit of mine.... I was nervous, scared, and excited all at once. They put the catheter in while I was in surgery and took it out the next day so it didn't hurt - it...
I drove (with helpers) the 5+ hours each way just to go to Mayo in Rochester, MN. I am a 3 stepper so I had to go 6 times for sure (surgery and checkup). I also went an additional time to do my...
In addition to switching to the tapeless wafers, you might want to try shaving the area where your wafer goes when you change (carefully) and also try using an adhesive remover (preferably alcohol...
YAYAYAY!!! That's awesome. Doesn't it feel awesome to go out and enjoy life again? BTW - the bump - might be a scar from the drain tube. I know that I had one also and it seems to be reducing in size...
xmommy - The decision of if/when to have surgery is yours. I tried many meds (skipped the 6MP/Imuran though) and ended up at Remicade every 4 weeks but many of the diet modifications I didn't try....
DRINK DRINK DRINK and WALK WALK WALK!!!! Is it an urgency like the old run to the bathroom or you won't make it urgency and you can't hold it or do you feel that you need to go (ie - your pouch is...
One thing to remember is that walking does help get (and keep) things moving along (hence the need to go) and your pouch is still in its adjustment stages. The more you walk the better you will feel....
I drink G2 a lot of the time but I make it from the powder packets. I agree that the bottled stuff gets old fast and to me it tastes funny. I usually make my G2 weak so that it's more of a flavored...
The cramps should go away with time. I know that mine did but it did take awhile (months - not days or weeks) but they did decrease as the months went on. Now I only have cramps when I have bad gas...
I was on pred and 12 pills of asacol/day. Add in UC caused anemia and I lost a lot of hair (and I didn't have much to start out with and what I had was thin - I blame my dad). I started taking Biotin...
Chevy - Good luck tomorrow!! I know all will go well. I wanted to update you on my trip. I took a 2 hour snowboarding lesson and fell non-stop on my front and back. I was in pain for the next 2...
I was on coumadin while flaring with no new issues. The coumadin was because of a blood clot found while in the hospital for severe anemia. I have always been good at clotting - I guess I got too...
My GI offered me surgery from day one as an option. After almost 2 years of dealing with severe pancolitis, anemia, iron infusions, blood transfusions, and the lovely side effects of pred and many...
Chevy - I understand the hatred of the catheter. I woke up w/ 3 drains, a catheter, and a rectal tube after takedown. The plus - I didn't have to get up to go to the bathroom on my own for the first...
Chevy - as Ohio said - check w/ your surgeon and post on j-pouch.org as there's probably a motocross rider, wakeboarder, football and soccer players there. I would expect that you will need to wait...
This might sound bad...but my 1st anniversary of my sub-total came and went without any fanfare because I was out living life. I realized it a few days later and wrote a bit in my blog about all the...
Are you having small leaks before this occurred that you noticed when you changed? Which version of the Hollister wafer are you using? As I recall they had 2 variations without tape and one was...
WIMOMOFTHREE - I'm in Eagle. My GI is Dr. Joel Lans at GI Specialists in Waukesha. I went to Mayo in Rochester, MN for surgery because the surgeon he referred me to in Milwaukee wasn't on my...
WIMOMOFTHREE - As a jpoucher who was in your shoes last year (anemic, failing remi, and given the option of humira, trials, or surgery), I took a look at all the things I had missed in the last year...
Take a look at what's in the juices and other things that you are eating/drinking. A lot of juices and popsicles contain apple and grape juice as their primary ingredients for filler and also may...
It happened for me every time I went to the bathroom until takedown....
Wow - I think we have the same GI. At my first appt after my scope my GI said that the only thing I had to stay away from was NSAIDS which would cause a flare. No food was on my do not eat list as he...
I was asked to bring my slides when I went to Mayo for my pre-surgery workup. I forgot to ask specifically for them when I got everything else (xrays, CT's, scope photos, etc.) so they weren't in the...
+1 on wait for your stamina to return. It takes time. I learned to drive the scooters at Walmart really well during each recovery from surgery and walking through the grocery store was something I...
Outside Milwaukee, WI. No ileos anymore. I'm now a jpoucher....
I had bright flourescent lime green output after some Starburst. It was quite shocking...and then cool and interesting....
Christine - I was one of those that had no prep other than no food after midnight. The nurse gave me a warm water enema when I got there and that was it. Maybe you won't have to go through the prep -...
I'm not sure what the amount of leakage is but if it's just a small leakage you can just use an ARD pad (hopefully the hospital would have these) and you don't have to worry about your boxers. Keep...
+1 to Clicky's post. I am a 3 stepper and I would do it all over again in a heartbeat and wish I had done it sooner also. I only had a UC diagnosis for about 2 years before surgery but was never in...
I voted for you!...
Do you take an immodium before bed? I have found that when I have leakage problems (haven't had a full-out loss since recovering from surgery *fingers crossed*) I find that it is related to having...
I went to vote but when I registered it says "Registration and contest entry is reserved for Canadian residents who have achieved the age of majority in their province or territory". Does this mean...
The left side of my stomach has a lot more fat than my right side where my stoma was and when I had my ileo I was lopsided as I gained weight but the ileo made it look even. Even without my ileo if I...
Pam - I hope they find something soon that will help you. I can't imagine going back on Remi (I had bad reactions). Can I recommend that you take some probiotics or are you eating yogurt daily to get...