Yes, I was reading through the list of doctors they have listed for digestive diseases. I've heard good things about the Cleveland Clinic....
I will be moving to Cleveland in a few weeks. Anyone know of a good GI in the Cleveland area?...
I like the chocolate silk. It definately doesn't taste like regular chocolate milk but once I got used to the taste it was pretty good....
Virgo....
My very first flare lasted about 4 months and it was very bad. It went away on it's own though almost overnight. I never got diagnosed at that time so I didn't know what was wrong with me. I didn't...
I noticed improvement at about 2 weeks but I wouldn't say I was in remission until about the 3rd infusion. I did start flaring again though just before my 6th infusion and had to go back on pred to...
I did tell them I was pregnant the first time I called them. I think it was between 8 and 12 weeks for my 1st appt. when I was preg with my daughter so I wasn't too worried about the wait. I'm taking...
I just found out that I am pregnant (about 4 weeks). When I called my GYN/OB office they said that they couldn't get me in till the end of July. I was okay with that until I started reading some old...
I take a coconut oil supplement and it seems to help pretty well. Twice I've run out and forgotten to buy more and each time I noticed a return of slight symtoms after a few days. I didn't notice any...
I flared for the 1st time about 6 1/2 years ago. It was a bad one too. 20+ bm's a day, lots of blood, urgency, pain. I was never diagnosed though. It lasted about 3 or 4 months and went away on its...
Hmm. This is all pretty interesting. I myself am Mexican American. I know 2 people with UC and 1 with Chrons. The two UCers are white males and the Chronie is a white female....
I was on birth control pills for years and it didn't give me any problems. It did make my periods shorter and lighter! About 5 years ago I switched to the patch and loved it. Not having to take a...
My first flare was 4 1/2 months long. I never got diagnosed though. It cleared up on its own and I was in med free remission for about 5 years....
I've been on Remicade for just over a year now. I was in remission by the 3rd infusion. I have not suffered any side effects from it and have not had any problems being around sick people. It hasn't...
I do notice the cramping with sex. Sometimes during (very mild), after and sometimes the next morning. I don't ever notice an increase in symtoms when I don't get much sleep though. Maybe it's...
I started getting joint pain for the first time about a month ago. It was starting to fade until I had my last Remicade infusion about 2 weeks ago. Then it became more frequent and painful. It's...
I was commenting on this very topic to my husband the other day. I've actually had to push a little the last few days. It's funny how you forget what that feels like. My poos weren't this solid...
I go to a hospital infusion center also so it gets billed as chemo. The cost that gets billed to my insurance company is $22000! I guess costs have gone up because it used to be $19000. I have a...
I'm the only one in my family who has UC or any digestive problems. My daughter was having bloody stools when she was 2 weeks old. She spent a few days in the hospital and switched up formulas and...
Thanks for all the feedback everyone. I did a little reading up on it myself. It's these kinds of "super bugs" that worry me. I'm going to call my PCP and see if he thinks I should get tested for it....
So what's the deal with MRSA? My husband just came home from work and told me one of his co-workers was just hospitalized with MRSA. This is someone who works at the desk next to his. I guess he has...
I don't have much pain with my flareups but I do get kinda of a feeling like there is a brick in my gut. I have urgency where I have to drop what I'm doing and get to the bathroom within 30 seconds....
My insurance companies website has a search so I can look up what precsriptions it covers. They don't cover the prescription vsl3 ds so I bought the regular one. It worked great at first. I felt back...
I take one with each meal. I found that if I stop taking them for a while some slight UC symtoms stir up....
I got acne about 2 weeks after starting pred this last itme. I've been off pred for a little over a month now and It's still there. It's actually a little worse than when I was on pred....
When I was hospitalized for my 1st severe flare the medications weren't working very well and the doc was talking surgery. My husband had read about the benefits of coconut oil and bought some...
I has those with my 1st severe UC flare up. I think a lot of things can cause them. Supposedly it indicates an interruption in nail growth due to serious illness. I wouldn't be surprised if the meds...
I've been on prednisone twice. The first time wasn't so bad. I was started on 60mg in the hospital and the only side effects were the insomnia and increased appetite. My hair also started falling out...
I didn't have a period for 3 months during my last nasty flare. Both my gyno and GI said it was because of the flare....
I don't know what the odds are but I think it's happening to me. I started noticing problems after my 5th infusion. I am having my 7th infusion next Wednesday and hopefully things get better because...
I started getting a cold about 1 week before my last Remicade infusion. I loaded up on Zicam and was fine in a few days. The Remicade didn't seem to make the cold worse or last longer. It was my...
I was shocked when I got the EOB from my insurance company showing how much they were billed for my 1st infusion. I am at 10mg/kg which is the high dose. I called the hospital to get a detailed bill...
I started noticing a decrease in BMs after the 1st infusion but I was also on pred 60mg. By the 3rd infusion things were pretty good. 1 BM a day, formed but soft, no blood or urgency. Things were...
I was on ortho evra until April of this year. I had to switch to ortho tricyclen lo because my insurance stopped covering the patch. I didn't notice any changes in my UC one way or the other....
The rx info sheet that came with them had the cost of $600 per month. That is about 360 pills (400mg) a month for me....
I like the taste of ensure better. It does help me gain weight when I'm coming out of a flare until I get my appetite back. I like the chocolate. If you're looking to save a few bucks the kroger...
I went into remission by the 3rd infusion but started flaring again after my 5th infusion and had to go back on pred. I've had 2 infusions since then and have noticed improvement but pretty sure that...
Remission for me is a fromed BM once a day usually sometime in the afternoon. No pain but it seems like i can actually feel my food digesting...or maybe I just pay more attention to it now. No blood...
Because of it being a maintenance med I have to use my insurances mail order program. I get 3 months worth of pills for $60. When I would get them at the pharmacy each month I was paying $100 for 1...
Has anyone ever experienced sore or tender gums while tapering prednisone? I floss everyday with no problems but this morning things were a little sensitive. They don't look red or anything....
I hope Remicade works well for your son. Since I've been on Remicade (Feb 08) my daughter has been sick twice and my husband has been really sick once. I've also been around a few sick friends. I...
My GI told me that it would be ok to get/be pregnant while on remicade. I would agree with tooth fairy though and talk to a high risk OB about it....
That's wierd. I had my first UC dream last night. I dreamt that I was stuck on the toilet with painful D and my daughter was crying in her crib. I just kept telling her that I would be right there...
I was actually started on the higher dose. I was hospitalized for a very severe flare and was almost rushed off to surgery. I was getting worse even on prednisone so I started Remicade and noticed...
I was once every other day for as long as I can remember before UC. In remission I am once a day with formed stools but softer than they were before UC....
I was started out at 10mg/kg. I was in pretty bad shape then. GI was talking surgery. I am taking zicam also. I know it's helping because the cold isn't getting any worse as it usually would by now....
I noticed that while I was on prednisone the last time I wanted to have sex all the time. When I weaned off of prednisone I lost the desire to have sex for a while but it did come back. In the...
I know you are not supposed to get an infusion if you have active infection but what if its just a slight cold? I've started to get the sniffels and an oh so slight scratchy throat. I'm scheduled for...
I just got mine yesterday. So far so good! V...
I went to Vegas less than a week after getting out of the hospital for my last flare. I'm sure you'll be fine. I didn't eat on the planes either and stayed at machines or tables that were close to...