As the mom to a 16-year-old with UC, I can't thank you enough for the post... The one thing us moms want for our kids is a normal, happy life... Your post has helped to give hope that even though...
Beth75, I see from your signature that you also have some kidney disease issues....If I were you I would call my doctor and go in for evaluation just to make sure you don't have something more going...
You are most welcome!...
This is from the Mayo Clinic site: ThisSite/AM00057"> By Mayo Clinic staff The first step in treating C. difficile is to stop taking the antibiotic that triggered the infection, when possible. For...
And just so your doctors don't try to discount the Florastor as adjunctive and preventative treatment for C difficile infections, Mayo Clinic's protcol for recurrent C diff infections calls for the...
Dear UCParent, I am so sorry that you are dealing with this...It is so hard to watch your child go through all of it. The tests, the pills, the disease itself. Every day I just wish it were me...
It sounds like you have mainly lower inflammation, i.e. proctitis or proctosigmoiditis. My 16 y.o. son has proctosigmoiditis and does well with Canasa suppositiories and Colazal (same as your generic...
Will be thinking of you and sending healing thoughts your way!! On to a new and better quality of life for you! Jo (son 15 y.o. UC)...
I am so sorry that you have to deal with this while your child is so young...My son was diagnosed right after he turned 13. I don't have any experience with Remicade, but I wanted to mention to you...
The pharma reps tell the doctors that it is "normal" to see whole pills. I think that they think we don't know the difference between whole pills and empty pill shells. It is obvious to me that if...
Okay...Well, good luck and I hope you find relief soon.. Jo...
I remember my son having those tissue/skin-like things in his bowel movements. He was then diagnosed with a c diff infection. Pseudomembranous colitis apparently has a characteristic look to it,...
To make sure you cover all the bases, I'd make sure you get some stool cultures if you haven't already...Just to make sure no C diff...My son's bleeding didn't seem to want to stop until the C...
I just got an email this week from the Michigan chapter of CCFA that there will be one on September 11th from 9 a.m. until 1 p.m. at The Inn at St. John's. If you go on the CCFA website you can...
I am so sorry that your daughter has ulcerative colitis ...My son was diagnosed with proctosigmoiditis a little over 2 years ago when he had just turned 13. He is 15 now. I remember all too well the...
I would also suggest getting stool cultures done, especially the one to check for C difficile infection. My son (who has proctosigmoiditis) was having a hard time for a while before I asked for these...
My son tested positive for a C diff infection in the fall of last year. The doctor put him on Alinia (my request as son hates Flagyl due to metallic taste). I also put him on Florastor after reading...
I'm not sure where you are writing from, but if you are in the U.S., the foam is not available here. Your 5ASA rectal choices are the enema or the suppository (Canasa). I called the pharm rep about...
Eva Lou, I guess this is what bothered me most about the interview: "These people need to journal . They are most at risk for a disease called Ulcerative Colitis. They have a lot of intestinal...
Thanks, Songlady--in solidarity with you, too... For anyone who hasn't seen the clip (On abc GMA under Thursday's show), here are direct quotes: "These people need to journal . They are most at risk...
The name of the book is "So Stressed" by McClellan and Hamilton... My review did get posted, but someone responded that it sounded like I needed the book...LOL Try being the mother of a child with...
Head on over to abc Good Morning America and watch the segment on Women and Stress....A couple of MDs wrote a book and were being interviewed. They came up with cutsy little categories of how...
My son was diagnosed about a year and a half ago with proctosigmoiditis (though I think he had it for quite a while before diagnosis)...He is now 14 years old. It was a devastating time...I think one...
My 14 year old had to go on iron supplements. The doctor put him on ferrous gluconate tablets which caused a lot of stomachaches/cramping for him. We then tried SloFE, which did the same thing. I...
If it makes you feel any better, my (then 13 year old) son after having his colonoscopy with conscious sedation patted me and said, "Mom, you don't have to be worried when you get your colonoscopy....
Thanks, Old Hat...I just got onto the Shire Pharma website, selected the United States group, and sent an email. Maybe if enough of us do the same, they will take note and realize that there is a...
It is available in Europe---not in the US or Canada...Has been available there for at least 9 years. Still nothing here. It is disappointing. My 14 year old son could greatly benefit from it....
It sounds like you might benefit from taking a long-term "SSRI" medication (ie Celexa, Lexapro). These are daily meds taken once a day. They don't take full effect for a couple of months or so,...
Ah, okay...Hope you feel better soon---with or without the antibiotic!...
Unless they took a swab of your throat and sent it for a culture, they can't know for sure if it's viral or bacterial....If they did send it for a culture, it should come back with a result saying...
My son likes it mixed with yogurt......
Thanks for posting that! Very interesting...Good luck with your appointment with him-let us know how it goes! Jo...
Sending thoughts of successful surgery and speedy recovery your way!...
You are right, it would seem logical to offer it here...I'm sure there would be at least as big of a market for that as for Cortifoam, if not more so...Rectal 5ASAs are supposed to be more effective...
We'd be very interested in the foam, as well...(14 yo son does well with administering his own cortifoam). I have a book here "Ulcerative Colitis: focus on topical treatment" from the year 2000. The...
Julie, I'm so sorry that your little girl seems to be starting a flare...I know what you mean about just wanting to curl up into the fetal position sometimes. My 14 year old was diagnosed about a...
I needed a little help last year getting through the anxiety when my son was diagnosed. My doctor put me on Celexa. This is one of the SSRI medications for depression and anxiety. It is not a short...
The bleeding took about a week or so to stop completely. It was really a drastic change from blood with every BM to no blood...We were very thankful for that...And we were only doing the cortifoam...
It took my son less than a week to stop bleeding after using the cortifoam. He's still on it every 3rd or 4th day now as the doctor didn't want to stop it yet....
Have you tried cortifoam? I think it was the med that got my son's bleeding under control. I know the foam only reaches the distal portion, but that must be where my son's bleeding was, because it...
Sweetie31105, Sorry you had to suffer all those years without a diagnosis...That must have been scary for you. neednewbody, Thankfully my son hasn't had to miss school...He had his colonoscopy last...
gutsy123, You were young when you were diagnosed...I hope life hasn't been too terribly hard for you. You sound like a mature guy---probably had to get that way early to deal with all of this, huh? I...
Bennie, Your poor daughter---40+ BMs a day sounds terrible...I'm so glad that she is doing so well with her j-pouch. She definitely should write about the UC in her college admissions essays-for her...
Jjc2007- Thanks so much for your reply...It helps to hear from someone who was diagnosed early, like my son, and who has lived a full life. Really, I got tearful (in a good way) just reading your...
Christine1946- Yes, we haven't had to do oral prednisone yet. This is mainly because from the beginning, my son has felt pretty well and was only going 2-3 times/day. He did have blood with every...
Have you had liver enzymes checked lately? I'd definitely let your doctor know.......
Hello all... I am mom to a 13 year old son who was diagnosed last June with Ulcerative Colitis. I thought I would post about our experience because it helped us so much to read about others with this...
My 13 year old son (diagnosed in last May-proctosigmoiditis) was on Asacol for months and I would see whole pills in his stools. Even though our doctor said that this was "normal", I had a hard time...
My 13 year old was just diagnosed last June. He also has limited UC (one time they refer to it as proctosigmoiditis, the next as left sided disease). We started out on Asacol for at least 2 months....
I posted about a month ago with the same type questions! I was thinking I was doing something wrong or that the little can was empty! I agree with bbc about making sure it is well shaken before you...