All good with Remicade - just avoid stress where humanly possible, because that is a main instigator of UC in my view....
Me too - Remicade wipes me out for a couple of days. I am also on 10mg / kg but every 8 weeks. The infusion lasts about 90 mins. You will just have to plan your life around it, I ensure that I take...
Remicade has done ok for me. Doubled up on dosage like previous poster. Now I suffer from immune side-effects which include; streaming eyes, chronic sinusitus, cold sores, tiredness. The UC is under...
Have you checked if your pillows are still around?...
Thanks all for your responses, I will ask to reduce the Remicade to 15mg per kilo. I was on 10mg previously every 2 months but started to flare after about 6/7 weeks. I then started to have the...
Hi DC, Prednisolone worked for me down to 10mg pd. Consultant very keen to get me off it because of known bone-thinning issues. Suffered a lot of joint pain when coming off it, which might be an...
Thanks for the reply - I will, I think (hope) we are entering a new era with regard to the treatment of this horrible disease. But I agree there are bound to be side effects somewhere along the line....
There are great advances being made with regard to UC and a number of new drugs are expected to come to market within the next two or three years...one note of caution, the surgeon did say, don't...
Just been told that I can no longer stay on Remicade. Although it sorts the UC out my immune system is knackered, cold sores, weeping eyes, chronic nasal congestion, cracked lips, wounds that don't...
Yes - I managed to catch TB, no doubt aided by the fact I have to travel to India a lot and / or I've got badgers living somewhere in the garden. It was quickly diagnosed and cured, still on Remicade...
Remicade has turned it around for me. No cramps or anything now. Side-effects cold sores, watery eyes, sinus problems, tiredness, all of which are preferable to the pain I used to endure....
Yes I think it is a side effect of Remicade, I find I get a wind-burn type of skin. My eyes are constantly running and the skin very dry and flakey. I have started to use vaseline which has helped....
Remicade works reasonably well before you become immune to it. The side effects I have suffered are wind-burn face (very sore and dry), itchy eyes which always seen to be watering and cold sores. But...
Kent (UK) - it's a great forum, but I only tend to visit when unwell. Remicade 10ml every 6 weeks which was great but body now showing signs of resistance and I have to use Prednisolone to control...
This week I have stopped taking everything except Asacol x 4 x 2. I have been taking Pred then Imuran. Have tapered off Imuran from 150mg to 50 mg, UC was fine and under control but.... My joints...
Some say Prednisolone causes aching but I have really noticed it since I tapered off Pred and moved on to Imuran (125mg). All my joints ache and it feels really bad when I wake up. Many others...
Hi Nikki, Imuran has worked for me, insofar as my UC appears to be in remission. I tapered off prednisolone whilst increasing Imuran dosage to now 125m per day. To have stopped the bad stomach...
just like to say that after extensive trials I can now drink what I like. I have come off the Predniolone and now on Imuran. The usual effects of UC no longer appear thank goodness. 10's of pints of...
Been away from thread for a while as UC has not been an issue. Imuran eventually did the trick after weaning myself off prednisolone. But now all my joints ache, and my head feels like it's been in a...
Just to keep you all posted I spent most of yesterday evening drinking cider, had a curry later on (lamb saag as spinach seems to be the buzzword on the board). Can't remember getting home and have a...
Fruitgirl, got diagnosed with severe pancolitis last friday, started on 40mg Prednisalone same day have gone from 6 BM Sat to 4 BM Sunday 2 BM Monday and only 1 for both Tuesday and so far today....
Betagirl Have completed survey - hope you post your findings here. Best regards...
Thanks Jratt - I suppose with it being St Paddy's Day it would be a good time to see how Guinness reacts - lol - that's lunch sorted... I suppose I would be tagged as a bit of a binge drinker, my...
Have to say I do enjoy a pint. I regularly drink beer (the UK type - real ale). I am wondering if beer and lager (which do have yeasts) are not the way forward and perhaps I should switch my drink of...
Sounds like the projects and the thought of the job interview might not be helping the flare-up, it is all stress in some shape or form. Depending on how important the job interview is to you, I...
Yes, I have recently been put back on 40mg pred and this morning I could hardly get out of bed. The gout that appeared after I originally came off Pred has not disappeared and all my muscles ache....
Quincy, I am lucky my wife is still with me, no-one would care for me as much as she does. She didn't mention it to the Doc. she hasn't mentioned it to anyone. So the Doctors comment stunned me as is...
Fremen "Afflaire" sounds good - lol. Of course when you do have a major flare - you don't really want to be in anyone's company, just the loo with a plentiful supply of bog-rolls. I have gone back...
thanks for the replies, apologies if the "affair" part offended anyone, just mentioned it as she was dead right as far as I was concerned. A silly mistake, my wife found out and the guilt and stress...
Have to say whenever I have a heavy night out on the beer I always suffer for the next few days. I got away with it for the first year or so but not now. But another quite interesting piece of...