I just saw you posted that she had scopes done two years ago. I would wait until you get the results from this colonoscopy and then compare the two and then make a decision on which way to go from...
First let me say that I am so sorry that you and your family are going through this. I too was in the situation that you are in with your child. My daughter was diagnosed with UC at 18months old....
When you say: The gastro doctor refuses to talk with the immunologist about the immune deficiency. I completely understand this. I dealt with gastro doctors that would also refuse to talk with the...
Your welcome! Good luck to you and your family. I understand , My daughter does not respond to the pneumonia vaccine also. She is doing well though. I am a firm believer if faced with UC, it is a...
Fatherof3boys, My daughter's name is Hailey. You can read about our journey with Ulcerative colitis and selective IgM deficiency and IVIG use under Haileysletter. I found an Immunologist for her; he...
DBwithUC, I respect your opinion. And that is why I start my post with. " I know everyone gets colitis for different reasons." I would never want to harm anyone that is dealing with UC. I understand...
Please take the time to read the story about my daughters journey with this awful disease Ulcerative colitis. There is hope. Hailey is a healthy, happy, thriving 14year old girl. She hasn't missed a...
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I am so sorry you are going through this, I understand , because my daughter was diagnosed at 15months old. The doctors wanted to do surgery to remove her colon also, and told me that she would be...
Ten (10) patients with uncontrolled persistent moderate to severe Crohn's Disease were treated with QBECO SSI treatment through the compassionate use program. Patients may have continued to receive...
http://www.qubiologics.com/ [color="#0066cc">http://www.youtube.com/watch?v=KPoIg9bR9PA http://www.qucrohnstrial.com/ssi-int....XzelULDh.dpuf The total number to be enrolled in this trial is 60...
http://finance.yahoo.com/news/qu-biologics-enrolls-first-patient-202241433.html found this after googling cure for crohn's disease....
http://finance.yahoo.com/news/qu-biologics-enrolls-first-patient-202241433.html found this when I googled cure for crohn's disease...
I literally got tears in my eyes watching this. I pray it is an answer! [color="#0000ff">http://www.youtube.com/watch?v=EjvDkduWZxE ] http://www.youtube.com/watch?v=KPoIg9bR9PA [/u]...
I literally got tears in my eyes hearing how this vaccine helped this girl I pray it is an answer! [color="#0066cc">http://www.youtube.com/watch?v=EjvDkduWZxE ]...
I would definetely try IVIG. My daughter's immunoligist treats his patients that have Uc with IVIG. He also has had alot of success with it....
I am so sorry to hear you are going through this. I know how you feel my daughter was diagnosed at 15months she was having 15 to 20 bloody bowel movements a day. She had numerous stool samples done...
Her pediatric doctor decided on the Rochepin . At the time she was also going to a natural path doctor to see if he could help her, but she was not getting better. So, we took her to her pediatic...
Hi Steve, I would not rely on hospital stool testing alone. We had many stool tests done through the six years our daughter was ill. Nothing ever showed up, BUT she recieved an antibiotic and within...
I would guess , but I wish it would of been that simple from all the doctors and testing that she had done. That is my main point. She suffered for years. The only thing that was simple about...
Linda, I hope you are feeling better. You should go to the ER if you are not. Keep us posted. Sorry the imuran didn't work :(...
Can you tell me how old you are now? How often do you get colonoscopies and I am so glad they caught it in time. Here's to new beginnings....
I know everyone gets colitis for different reasons. I know some doctors won't try antibiotic therapy and others will. If you have tried numerous treatments and your body is not responding you should...
http://seattletimes.nwsource.com/html/businesstechnology/2013671440_apusmedhealthbeatstooltransplants.html I did some research and found this gastro that has performed Fecal transplant in Seattle "...
My daughter was 15months when she was diagnosed . Her whole colon was inflamed and she too was in the hospital facing colon surgery from a major flare. She is now 12 and her stools are normal. It has...
The past six months I have been having neurological symptoms, after much testing. Vitamin d levels low and b12 levels are low. I am now taking b complex and 6000 units of vitamin d suggested by the...
We had an appointment with the immunoligist to discuss Low Dose Naltrexone with him. Hailey has no symptoms of colitis. She goes the restroom once a day with a perfectly normal stool, her blood is...
Thanks for the good thoughts Things are getting better than last week in the hospital. The neurologist told my husband and I that we all could have Multiple Sceloris in us. It depends on how we...
Thank you everyone. I appreciate the good thoughts. Just a quick update since I am very tired. I have been in the hospital the last day and a half. My husband ended up taken me to the emergency room...
Just to add I was tested for Lyme disease through blood work with my family physician. It came back negative. I went to the eye doctor to get the strange vision looked at in my left eye. The nurse...
I am worried about my health. I know something is differrent. Back in July I had a reaction to a bite on my leg and soon after that I had some strange things happen to me. I had two different...
I have a question. I went to the eye doctor to get the strange vision looked at in my left eye. The nurse first shined a light into my eyes on the eye that has been bothering me I saw blackness where...
Thank you both for answering me. I appreciate it. I am going to read more about Lyme disease. I am going to post over on the lyme board and see what others say about the lyme blood test I had. Thank...
Just to add that I did have a blood test done to check for Lyme disease, it came back negative. Thanks...
Thank you for responding. Did you do the antibiotic treatment before the FT ? My daughter goes to the bathroom once a day formed and s shaped and has no blood no urgency and blood work was good, but...
I was told that that test is not accurate and my daughters GI does not use it because of that. My daughter is 10. The one thing that is accurate in a diagnose of Crohn's is whether or not when the...
I have been doing research on fecal transplant. I have a daughter with UC. She has NO outward symptoms of UC and blood work is normal. A healthy S shaped stool once a day. She had a colonoscopy and...
I have been wondering about Low dose Naltrexone in the cream form. My daughter is 10 and she has No outward symptoms ( She just had a colonoscopy and her doctor said she has lymphocyte colitis) I...
Can I ask you how she does on the Low Dose Naltrexone? thanks...
That is great Linda! I hope you continue to feel better. Keep me posted I have you in my thoughts! :)...
Thank you to everyone. Hailey saw Vera Hubertz in Cleveland. Now she sees Dr. Robert W Hostoffer ( he has been the best for her so far, he is an immunoligist and like I said before 70% of our immune...
Malkavian, I know Toll-like receptors have been around for almost two decades. They have only discovered 11 of them. He has broken it down into 9 more....
If they know that you have H.pylori , then yes you should take the antibiotic. I would definetely get the probiotic S. boulardii to take with the antibiotic. I agree with BabeintheWoods add some...
http://www.vitaminshoppe.com/store/en/browse/sku_detail.jsp?id=JF-7266 I get Haileys at the vitaminshoppe. If you print out the on line price they will give you that price in the store....
I am sorry that he is going through this. I want to tell you to keep reading everything you can on this forum. There are many people that are here to help. My 15month old little girl was diagnosed...
It is a hard decision , I personally think this disease is all about the balance of the bacteria of the colon. My daughter suffered for six years on many medications that ONLY treated the symptoms of...