BTW ~ I have miniscule amounts of Alcohol while in remission ~ in general it's crazy to even think about it in flair-up mode. Guessing all will agree... best ~...
Frisco Girl ~ Hey! Was visiting your wonderful city with my wife in July ~ we love it there... fortunately I have been completly non-symptomatic for over 1 year so traveling from our home in FL was...
AT LAST!!! As a national award winning Bathroom remodeler I can contribute! Saw this at a National Kitchen and Bath show several years back, bought one and use it daily (on my second one) A travel...
Calm-on-the-outside- Great call sign! Haven't ALL of us had to act this way during flair ups! Calm on the outside, panic on the inside... I'm no Doctor, but the Immune Supressants do wonders. Immuron...
Yankeecat, I am in agreement with Dr.-A....you are talking days and weeks? (respectfully) You might want to get a bit more realistic and start charting a course for months. Like the stock market,...
I've experienced no adverse side effects from Immuron ~ it does generally take a couple months to kick-in. You're doc will monitor blood work, liver enzymes, etc....
The longest remission that I've had in 11 years of UC was on just Immuron and Asacol. At least 2 + years of complete normalacy. I'd try it first. The J-pouch option will always be there. kind...
Lord, Please watch over this sweet boy and his loving family in this desperate time...we have all been through various pains and are related thru this terrible disease..but your young ones suffer the...
Smitty ~ Also, pay attention to desdwel's post re: drastic diet changes. This is tough love. The cold hard facts are that your son's UC is not going away with a few months of Yogurt and slight diet...
Smitty, thought i'd thow my two pennies in... I was using a couple of real good but expensive Probiotics. I have severe UC for 10 years, but a pal with bad IBS sugested ALIGN, a decent and less...
Thougt I updated my drug changes but the changes didn't seem to register, van anyone help jump-start me, I'm a it rusty......
/community/emoticons/cool.gif Just back on the forum after being so darned depressed with a nearly year-long flair, that chatting about it wasn't helping. Now feeling well enought to 'share'. I was...
In the 90's - the article I mention from the WSJ touches on it - there was still the HIV scare - and much news questioning how safe the nations blood supplies was - especially in the early 90's. I'm...
Annelise, I see. It's just that one GI I had was eager to push TRANSFUSIONS, and with so many possible complications from some of the strong meds we are all on, the last thing I want is possible...
My Iron is way low - as a suggestion, my GI subscribed an outpatient INFUSION of Ferriecit ( brand name) it's liquid Iron. I completed one drip-bag Fri. have three more visits. I've been pretty weak,...
Andy - I'm twice your age ( and then some ) but I can totally relate. I live on the FL coast, where I've always boated and fished, kayaked and windsurfed - I'm very active - regular tennis group...
Sparkle - As you check with your GI doc on alternatives. A new drug for Chrons patients has been recently approved for U/C. Check on Cimzia. www.cimzia.com As this disease effects us all differently...
qsam6; As a regular member you've heard of -or have - Elaine Gottschall's book, Breaking the Vicious Cycle. Seems to me you are close to great health-but check her diet restrictions. As a suggestion,...
Shelliesv; I read your post and can relate. I've been in a moderate flair for about 8 weeks - and am very weak. My GI said my recent blood tests show a hemoglobin count of 9. I've been lower (7) , as...
Christine; I'm not qualified to answer exactly how it is similar or varies from Remicade, other than the obvious, that you inject it. I will say that my GI seems impressed with the results in MOST of...
Christine; You can research CIMZIA at www.cimzia.com. It's a relatively new med, 1st developed for Crohns. Recently approved for UC patients. It's injected subQ, once a month. I am still having UC...
Zippy123; I'm on my 3rd in 11 years and happy with this board certified GI surgeon I see now - he's great. The first GI doc I saw predicted from my 1st coloscopy, what he saw and biopsied, that...
DN66; I'll throw my hat in the ring with what seem to be many good suggestions from experienced and distinquished UC patients. I was diagnosed in '98 and like your diagnoses, my UC started with a...
Shellie - My stone didn't cause any problem until it started travelling from Kidney to bladder - that's when I knew I had a problem - I have no history of KS's - a good friend, had just had o bout...
Yes! I had a 6mm too ! My GI also said KSs are more common in UC patients. It had to be removed through my Ureatha - they put you OUT of course... It was terribly painful - Dilautin and Vicodin just...
Supersaw; I have had some serious flair-ups, not quite the joint pain that you describe. I'm on a monthly dose of a relatively new drug, CIMZIA. It's use was for Crohns patients, and has just...
I hope and pray we all receive remission soon!...
Remission is Heaven on earth... An occassional glass of wine or beer with friends and not having to dash to the closest bathroom... Remission is pushing the Depends way to the back of the bathroom...
I have heard the same from my GI as Christine mentions; When I asked him about the statistics on this disease, he mentioned research shows a (small ) percentage of UC patients go into remission -...
Gwen - As I pulled my truck over and slammed it in park to jump on the side of the road to squat...there were tears in my eyes, I was on my pitty-potty - wondering why a 49 year old, otherwise healty...
Schrek- I feel like I should refer to you as Mr. Schrek since you are a noted veteran and I'm new to the site. I appreciate your fine attitude. You obviouslly have quite a following. i appreciate...
Well - Dicouraged - I'd love to be EN-couraging, but I have to say - a bathroom-less Bus full of kids...with even a mild flair-up - is potential for disaster. After 11 years and several prolonged...
This is one insideous disease - symptoms and flair-ups vary from patient to patient. My symptoms started opposite of yours. They were so simple and sporatic - that I thought; no big deal. A little...
lol? That's a bummer about the sedative not working. I've heard it can vary - but in FL, the GI Doc puts us out! I wake up from my annual Coloscopy like I just had a good nap. It's much better...
JB - Took my 3rd injection of CIMZIA tonight. Quite a project, as it's a total of 400 ml. two 200mg shots that you have to mix a vial of the drug in powder form with a 1ml vial of fluid ( dist water...
Appreciate the feedback. My wife and I just returned from Wholefoods with Frozen Organic Spinach and Sunflowerseed butter...I'm on it. thanks!...
I'm new to this site. Was diagnosed in'98 with UC. Have been on series of Pred, & Rowassa, currently on 100ml Immuron daily, 6 Asacol and 2 months into Cimzia injections. Have stopped...
Will do. My GI doc says that his Crohns patients are doing really well on it. my 3rd injection takes place next week. I'll keep all interested posted on my results. cheers-...
SS1; As Keenca mentioned: "Prometheus lab has a blood test that helps differentiate Crohn's from UC." The test was not available when I was first suffering. Two docs misdiagnosed me with Crohns -...
SS1; It's the TOTO 'portable washlet' you want to check out. the seats are amazing but expensive for most. The portable washlet, about $100. or less. You will thank me - as I thank my wife for...
Respectfully, Supersaw, if you are a new comer to UC, you may not have seen the worst of flair-ups yet. Although I certainly hope you don't! But, most of us veteran UC patients ( me, since '98) will...
Hi; Any UC patients using the new drug CIMZIA? My GI has just started me on it - because of my severe lengthy UC flair-ups. I understand it was first approved for Crohns. Thanks for any feedback on...
Hi, I'm new on the forum. I am in total agreement with searching for a new GI Doc - if you've landed with one who seems to care little, or doesn't have any genuine objectives to helping you recover...