Prior to Simponi, I had only used mesalamines as well as a short very uncomfortable stint on 6mp....
I have been on Simponi since 2017. I started it after a hospitalization for a fairly bad flare. It had a big role in pulling me out of that flare as well as keeping me from having another for the...
Hi there. I had my gallbladder out and I am glad I did. Prior to the surgery I couldn't get through a meal without feeling nausea. It completely disappeared after I had my gallbladder out. I don't...
Hi Just wanted share that my son had his first scope (upper and lower) when he was in first grade. It was nerve wracking for us, but it honestly didn't seem to faze him at all. Partly because he knew...
Hi. I don't post much either, but I have been using Simponi 100mg once a month for about a year and half with no problems except a few short lived mini flares which disappeared as quickly as they...
I had a quite large abscess as well. It made me quite sick and I spent several days in the hospital having IV antibiotics in addition to the draining surgery. I am quite concerned that you were not...
"The only time I feel good is when I'm hungry" This statement caught my eye. It could be your gallbladder. When my gallbladder was bad, I had lots and lots of nausea and since food often made me feel...
Hi, I had a fistulotomy 10 years ago. It has not affected my bowel control in that I am easily able to hold in a bm in time to make it to the toilet. There have been no urgency issues except the...
I also tested negative for celiac disease variants and positive one for macular degeneration variant....
Thank you LadyEllJay! Good to know you were able to use the Simponi copay program! I hope my insurance company can be compelled to do the right thing. Sorry you are starting a new flare. Have you...
Thank you Keith. That really eases my mind. It is totally backwards and probably wrong headed, but I think I resent the financial cost of this disease more than I resent the physical toil on my body!...
Thank you ipoop! I hope it works like the Remistart program. I do have FSA but I think my hospital bill will use it all up before the simponi comes into the picture. I'm going to give it a try and...
Hi, I had my loading dose of Simponi last week at GI's office. I'm pretty sure they gave me samples they had on hand. I am due for my second does next week and would like to sign up for the $5 per...
Thank you DB!! I'm glad I asked especially since I was wrong! I guess I will have to be patient because there is no telling if a bathroom trip will actually produce enough stool or not....
Hi everyone I need to collect a stool sample for c diff test . How important is it that my sample have actual stool in them? I've been ill and vomiting for days and do not pass much more than blood...
Hi there, If by fistular surgery you are referring to a fistulotomy, then from my experience, I did not leak any pus after the procedure. The wound healed very quickly. However because the...
Hi Sorry you are having to deal with this. It is horrible and so painful! In the short term, try Sitz baths with the water as hot as you can stand it. It should help some with the pain and for some...
Hi. Sorry you are having such a hard getting your colitis under control. I hope you and your GI find another line of treatment very soon The re-starting of your periods may be unrelated to you...
Sick guts produce sick smells! I just got over a flare and everyday I'm surprised with how relatively little offensive odor comes from a healthy colon. When I start getting bad smelling gas I know it...
We were told the same thing about the dangers of flushing medicine here in south Florida. To give him the benefit of the doubt maybe he was not speaking literally?? On a slightly related note, in my...
Thanks Pb4! You are always so willing to be helpful! Thank you Old Mike. I appreciate your advice, I am so lucky that I am only having low levels of pain and nausea. I can't believe what surgeons can...
Hi. My mouth sores are usually affected by my most womanly hormone fluctuations. With your description of having eruptions every three weeks do you think they could be connected to your cycles at...
I was recently very surprised to learn that the pain I thought was from chronic indigestion and various muscle pains was instead related to gallstones. (This is just another in series of old lady...
I'm a scorpio. Zodiac stuff was very popular when I was a teenager in the '70s and I had zodiac posters, a plaque and cups in my room. I think I fit the the scorpio description a bit, but I lack a...
I"ve never been on Simponi, but I did have similar vomiting while taking Aza after I had been on it for awhile. It started as kind of slow burn nausea which grew over time until just rolling over in...
Yes. I get a lot of dull, but deep left sided discomfort. It is fairly constant when I am flaring. My doc refers to it by its medical name: "sore colon". ;) Recently, I tried Bentyl (3 times a day)...
As an older motherly type who who worries for the girls who think that sex appeal is found in a thigh gap and visible breast bones, I support the spirit of what France is trying to doing though I...
I would definetely call the doctor because it does sound like it could be infected. In the meantime, maybe you could try some sitz baths to relieve the pain. I know that when I had fistula it would...
Did you switch meds because you weren't doing well on Delzicol? I always consider blood and urgency to sure signs of flaring, but recognizing which direction the flare is heading -toward remission or...
I get quite alot of pelvic pain when I flare. The rectum is smooshed in there in the same general area as all our reproductive organs and when it is inflamed, it is likely to felt in that region. I...
I have IBS for over 30 years (when they used call it spastic colon). I definitely get the gas, bloating , D, and pain when I am in remission. Many times it doesn't feel any different than when I am...
I had a really good experience with Uceris the first two times I took it. It made a big difference within a week and no side effects. As for the enemas, if your schedule is a problem you could...
I also often administer it on the toilet. I used to do it in bed without any problems. I used keep a supply of bottles in the bedside table and pop one in while laying on my side, put the cap back on...
Andrina said: Knowing that the cracking could be something else scares me even more. What is a good doctor to go to with this problem? In all honesty, I really think that creaks and cracks mean very...
Are you able to exercise? After I was told I had osteoporosis, nearly all the advice I received at the doctors and online were to perform weight bearing exercises using the most weight I could bear....
Don't forget about the silent majority. Lurkers! For example there are 20 comments on this thread, but nearly 400 views. I know each view is not a unique visitor but still that is a big difference....
I think it is really hard to lose such a small amount as 10 pounds with diet. I totally agree with the advice about adding weight/resistance training. It makes a huge difference. After your walk,...
Hi. I have experience with doctors in two of the large gastro-doc with practices throughout South Florida, Digestive Care and Gastro Health. I've had good experience with both. My doctor is in Boca...
Won't they cover Colazal? I switched to Apriso a little more than a year ago and it has been pretty good for me. Not as good as Asacol HD, but I'm Blue Cross too and as you said they no longer cover...
So cool. I could totally see my GI doing this though. He probably would be jealous if he saw this guy. Now... the long and winding road he travels and that groovy white sports car are totally...
quincy: I must admit, I don't know much about eosinophilic colitis since my son's disease, so far, is confined to his entire esophagus. You are right it is awesome he was diagnosed as it is...
For what its worth, there is a form of colitis that is caused by allergies. It is called eosinophilic colitis. Cells called eosinophils attack when food/substance one is allergic to gets into the...
The only family member I am sure suffers from IBD is my nephew (brother's son) who was diagnosed with Crohns at 15. I have loads of first cousins on my fathers side and would not be surprised if one...
It may be a long shot scenario but after my endometrial ablation I had significant and thick scarring of the cervix so much so that when my cycles came back 3-4 years later all the fluid was trapped...
Thanks Fruitgirl! I could have googled it myself so I really appreciate you taking the time! Not thrilled with the results of the fistulotomy. I think mine was fairly high too, but I'm not sure. I...
I had an abscess too. They are definitely not fun! I became quite sick with mine and had to spend three days in the hospital. Despite that and being a flare, mine got better really quickly. Just keep...
Oh, I think Tylenol would be good to try. Have you tried holding a heating pad on it? Maybe a little gentle stretching and/ or light self massage. Is there a tender area that might give you a clue as...
I think the advice on the suppositories to empty bowels before use is there only to remind people that actually have to go to the bathroom. For the mouth sores. I really like salt water rinses. Add a...
When my gastritis is bad doc recommends I take 40mg of omeprazole for awhile. Also, I think you should call doctor and tell her/him that you don't think its a muscle strain and see if you can an rx...
I wasn't going to comment, but I thought I would just throw a little anecdotal tale into the mix. My husband and I were in our late thirties when our youngest was born. Our advanced age was due to...