Some studies have shown that it may well be the carbon monoxide present in the combustion of cigarettes that is therapeutic regarding inflammation. That's my belief. I Vape, which has nicotine and it...
I am currently tapering and at 25mg/day prednisone. I started at 40mg/day, and have been on high dose for about 4 years now. Asacol, imuran, entyvio, stelara, humira have all failed. I am currently...
I want to correct myself and avoid misinformation. Entyvio and Inflectra don't have any serious kidney risks. Sorry for saying that....
I am taking both. Prednisone for 4 years now (I know), and azathioprine for several months. I wish my hair would fall out, I grow hair like Teen Wolf. Deacon...
I get it. I can't hardly tolerate having pants on after I eat, and sometimes even when I haven't eaten. For me I think it is just sensitivity related to an irritated Gastro system. I enjoy getting my...
Today I start my dual therapy with Entyvio and tomorrow is Inflectra. I am admittedly nervous. I haven't been nervous about treatment of any sort until now. I am taking 40mg prednisone daily, and...
Thanks for all the replies! FTM is not an option, infectious disease department won't even consider it. I go to U of M Gastro in Ann Arbor, Mi. I am meeting with Surgical Team this Friday to see what...
UC for 22 years. Meds that have failed me are: asacol, Imuran, stelara, entyvio, humira and now inflixamab (remicade). I have been dependent upon high dose prednisone for 4 years now, most of that...
I had made a scan, mild osteopenia, and I forget where it was located. Not severe enough for supplementation even......
Yeah, I understand where you are coming from. I have wondered many times myself how long I can keep this up, but I don’t want to take time off work and have surgery and have a bag, it’s been a...
Well, as you can see from my post we are trying all optional meds first, but I fear the surgery isn’t far off. I can’t stand the thought of life with a bag, but I know it won’t be as bad as I am...
Haven’t posted in a long time. 20 years with UC Asacol, Imuran, humira, Entyvio, Stelara all failed Been on 40mg/day prednisone for most of the past 4 years, as I taper, the medication fails, then...
Update: C-Diff, finally treated with Dificid 9 days after stools sent, last dose 8/12. Called GI yesterday to report that all symptoms persist, submitted more stools this morning, and CBC,BMP. Gi Doc...
I logically can only reduce the Pred by 5mg/week, so there appears to be "no quick fix" to that situation. And as far as anxiety/depression meds, I am not interested in any controlled substances,...
I was put back on 40mg/day while we tested for Humira antibodies. I am guessing that my GI was preparing for bridging over to Entyvio. When I speak to my GI Doc soon, better be today, I will ask if...
FT is the next step, at Henry Ford Hospital, I am told... I don't know how I could logically get off the Prednisone at this time. Can't just stop taking it, and it is needed to control a flare...:-(...
Sorry for so many replies, I need to figure out how to quote and reply to more thanone person. Anyway, thanks everyone for the listening ear and inquiries. Here is what I found out today:POSITIVE for...
No, that Sig is an old one...hmmm....here is the current, not sure why it is showingthe old: Dx of UC in Dec 1999 Started Humira 11/19/2017 40mg every 2 weeks Pred 40mg for (flare that started...
I DO have to be on 40mg/daily. My first taper held well until I got to 15mg, so I went backup to 20mg/day and things got under control. Then I tapered and flared again. back up to 40 mg/day while we...
Started 40mg/day Pred in February, tapered, failed again and started back at 20mg/day because I was doing fine until I git to about 15mg/day. Stabalized, tapered, failed agian within a couple days....
UC since '99, currently on Humira, Methotrexate, 20mg prednisone daily. Humira for UC, MTX for severe arthritis pain in proximal thumb (CMC) joint, pred for flare that responded to 40mg/daily, then...
Ok, so there are many claims out there on what works to boost your immune system. I am truly looking into ways to do this, as Humira knocked me down really bad this last time! I had a slight cold,...
I scoured the forum for past threads on Methortrexate, and the ones I found were 2-3 years old . I started Metho last week, injections, once per week. My Rheum Doc put me on injections due to poor...
After 18 years with UC I have arrived at the point of Vitamin deficiencies, but I suspect they have been present for quite some time. It has been a thought of mine for years, but never asked about...
My daughter is trying to be helpful and has sent me a recommendation to take Manuka Honey.... Has anyone tried this stuff? Deacon...
Unscientific hogwash!...
Imuran also "gave me my life back," but has recently failed me. I am on Humira and recently started to flare, so now I'm back on prednisone to head this off. I started Humira 11/22 so I a am not sure...
Just got mine back- 594 calprotectin. I also have symptoms of watery diarrhea, gurgling, stools 12+ time per day, probably flaring, but waiting for my GI Doc to call with instructions....
NEGATIVE result for C-diff. Waiting for Calprotectin result to come back. Still continuing with diarrhea, sometimes very dark, sometimes light and c-diff appearance... Idk...maybe a stomach virus?...
Probiotics- Since my first bout with c-diff I have been taking oral probiotics and eating yogurt consistently....doesn't seem to be helping at all :-(... I am so exhausted. I typically ride my bike...
I am on Day 11 of diarrhea, foul smelling, appearance of c-diff many times, sometimes very dark. Took stool specimens in yesterday. I had the symptoms for 8 days before calling my GI Doc. Apparrenty...
Can I ask, is my signature, details at the bottom showing? I cannot see them... And thanks for those replies!!! Deacon...
Well, I will be the first to admit that, throughout my 18 years with UC I haven't been diligent in seeking proper diet. Like many of us, I just don't want to deal with all the "special"...
I've had UC since Dec '99, and believe it or not this is the first time I have had Vit D levels checked. Anyway, I am deficient at 11 ng/ml and the range is 25.0 ng/ml-80.0 ng/ml....... Thoughts? How...
I updated it just now, thanks There are no med changes associated with the onset of these myalgias. I am an RN and have been tracking this pretty well. I used to take Atorvastatin and when I seen my...
I have had UC since 1999, and in the past 6 months have developed excruciating inner thigh cramps. I am a cyclist and I ride 100-200 miles per week, and have been doing this for 1 &1/2 years now. I...
Well...still haven't started the Humira. I have a NASTY chest cold/cough, non productive, no fevers. I'm not sure how my body is going to handle another Immunosuppressant... I have been pretty...
Call your Doctor. But Pred does the same thing to me, slows my GI system way down, and I am considering a stool softener, which seems completely insane to me since i have had diarrhea more often than...
I LOVE that Pred works so well for me, but I feel it's making me somewhat crazy this time, night sweats, hunger... Deacon...
UC since 1999, posted here sporadically over the years, usually when things are bad...this board is a great source of comfort, and I am thankful for that. Concerning Humira: I find it interesting...
Sorry you are "going through it" again. This disease is horrible for sure. I have had UC since 1999, have been on Asacol?Lialda (mesalamine) since the beginning, and I'm convinced mesalamine has...
Well, my recent oscopy revealed mod-severe active disease, couple polyps removed, negative result, 7 biopsies which came back negative. I have been on Imuran since April 2015, and it worked wonders,...
So I was diagnosed with an anal fissure a few months ago. Did this happen due to narrowing of my anus? Perhaps I need to stretch my bung? Deacon...
Sounds like Tenesmus: Tenesmus refers to cramping rectal pain. Tenesmus gives you the feeling that you need to have a bowel movement, even if you already have had one. When you have tenesmus, you...
It appears I may have C-Diff for the third time in less than 2 years :-(. I took an extended oral Vancomycin regiment last time. I have been on Imuran for about 2 years or so, and it has been great!...
I am on my 2nd round of having C-diff. The first round I ended up in the hospital, with the most severe abdominal pain ever. That was over 1 year ago. I just posted regarding c-diff as well. I am...
First time having C-diff was March 2016. I am presently finishing my Vancomycin for my 2nd bout of c-diff. I am not certain the Vanco has kicked it just yet. I started a Probiotic today, and...
VSL #3. Where do I find this? And, I never got off the bike. I have had this disease long enough to know that, if I want to live while I am here, then I need to be able to function through pain and...
Looks like I will be forced into Probiotics. I did used to make my own yogurt back 14-15 years ago. Back then I tried SCD diet, yogurt, and so on, and zero worked for me. I lived with flares and...
I have not considered FMT, and I do not take probiotics regularly. Get this; I am a cyclist and I ride often, far, and am pretty darn healthy. When the D started a few weeks ago, then the...