Katmom thanks so much for your kind words,I do find a lot of comfort in them, I think for me it just good to know your not alone and others have been through the same and worse and got through it....
Thank you so much I will...
Hi again comrades! I don't think anyone hear will remember me my name is Anna I'm. 48 years old I've had UC for 9 years and the last two years I've had a good solid remission,unfortunately a nasty...
Hi everyone, This flare I just could'nt get on top of so I've had to go in,to hospital my consultant says merrily I've already had my colon seven years on extra time so I've had good run,I'm hoping...
This is very interesting for me I have severe left- sided colitis and when it in I'm in a bad flare I get completely back up on the left side of the colon which causes me the most intolerable pain...
Can you tell me how many times a day you had to use the e-cig to achieve results and do you carry on using it when in remission...
Thanks to you too DM everyone gets downers we would'nt be human if we did'nt and I don't think we should try and measure suffering,but however bad it gets I can look at my kids and think well at...
Oh God yes I definitely agree with you there I definitely not as good partner mother daughter or friend as I used to be before UC I infact having UC has damn near ended the relationship with my...
Please keep us up to date with how it's going treating this flare with supplements and there are plenty more things you can try I'm sure you know this already but I'm just going to list what has been...
Yes this does sound really amazing,please will you post again and let us now if you manage to get one and do the test I can see how usefull it would to know what going on in there at different sites...
Whenever I feel doomed I only have to read one of these stories on here of someone who is suffering way more than me or someone who has had to have surgery and come through it with great spirit and I...
Thanks Jess, My consultant has certainly never offered them as an option,but then he would'nt prescribe VSL 3 for me either because he says he dos'ent believe they make any difference so I had to...
I think you might be right I am probably under medicating at the moment,but I suppose it is partly my fault as I am reluctant to see the consultant again I want to try and sort it out myself this...
Hi Quincy thanks for your advice on the r meds I am really hoping to be successful with them this time,I did have mesamline foam enemas before and I thought at the time they agree attend things and...
Hi thanks! I'm in the UK and this time I got them from my Doc which is like your primary physician I believe,I not see my GI so I did not get any instructions on long to use them,and I have not been...
I'm 2 +weeks into a horrible flare up I've been doing pred rentention enemas for one week,the first 2 days It was so inflamed I could'nt hold hardly any in.Last night I got all but the last cm in and...
I was just reading an article in the newspaper in the Uk about some scientists that have developed a fecal transplant in pill form for people suffering from c-difficle it has been very successfully...
I get like that when I'm having a severe flare up,with milder flares, I may have an hour or so in the morning of cramps pain and then again a bit in the evening and sometimes I get a kind of low...
Hi I just wanted to say your not alone I'm just starting in a flare after a good remission for over a year,and trying to work out how to play it this time I feel it's a bit like Russian roulette and...
Goodluck over the weekend with the Zantac I hope it will make you feel more comfortable. Anna...
Yer your probably right, I only use the slippery elm normally when I see blood because my reckoning is it help decrease the blood but after when the bleeding stops it makes you produce way to much...
I'm inclined to think the person who suggested you may have gastritis may be right from the symptoms you described,as I had gastritis and also worried it might have been pancreatis my GI said I than...
I credit getting good again last time with pyslium seed/husk,and slippery elm both of which I can't stand and have to force myself to gulag them down so I don't take them if I'm doing Ok. In the past...
Hi everyone back again after nearly a year of good solid remission Almost forgot I had UC yes really!! Best wishes to all still battling on ! Hope I can cope with this flare and its not severe!...
Sorry I thought Azathioprine was a maintainance med you only stop taking it if its not working for you or you can't metabolise it. If you do stop you don't have to taper,theraputic dosage is worked...
Hi I'm very interested in your post as I have struggled with the same dilemmas and I will briefly try and tell you the decisions I have made. I was first diagnosed with severe UC 6 years ago....
Hi Eva, I've had cyclosporine at first IV for five days then oral for a few months to give the Imuran time to kick in.I think in the UK it is only used a s a last resort and in emergency situation I...
Hi there I fancy trying slippery elm,I in a fairly good place at the momment UC wise but I have read slippery elm can kind of coat and protect your bowel linning this sounds good to me! Anyway I'd...
Congrats so glad everything went well,its so nice to read all the positive sucessful outcomes as people it really inspires me to think that I will be able to get through it all if I ever have to go...
Do you feel really still feel tired because your iron stores are so low Obviously you have very poor absorbtion of Iron and I have really struggled with this too I've never had any real answer as to...
Yes I have had serious Iron issues in the past too,and far too many blood transfusions!!! I also have a very bad reaction to oral iron supplements just sends me into a major flare everytime with lots...
Hi again, Back to the orignal Question,I found this page on SCD Vegetarian diet plans I thought its worth a look http://www.scdrecipe.com/blog/archive/2003/08/11/vegetarian-scd/ Anna...
Hi Andrina, Yes I suppose the reason I'm not doing the diet is that I;m actually fine at the momment. My story with SCD is briefly,I was diagonosed 5years ago ( severe hosiptal 2 weeks IV Steriods )...
Elaine writes: In the book, I say to vegetarians: do not go on the diet unless you will eat one egg per day or more and some cheese. You can get enough complete protein if you eat these foods. But if...
Personally I,d give yourself a bit of time and get off the Pred before you start the Detox diet Firstly because you might find it tough, the pred ussually increases appetite,and secondly as you say...
I also notice sulphurous problems with all the brassicas cabbages etc I think everyone must notice the dreaded Christmas Brussel sprouts! I also think eggs are quite possible although I'm not sure as...
Also I came of azathioprine about six months ago because I want to have a live vaccine My GI were at variance as to how long the wash out period would be My G I wanted to leave at least six months...
Hi with my son baby I flared severely throughout the pregnancy,IVsteriods/cyclosporin 3weeks after he was born the doctor wanted to start Azathioprine so I was advised to stop breast-feeding, Three...
Hi again I have been following the posts on the other thread with interest I just thought I'd start a new thread to ask you a few more questions if you d'ont mind, I had been on azathioprine for...
Ok! I really feel for you so much believe me I have been where you are now hang in there and try to keep your spirits up If you still want to continue trying with the SCD diet I would suggest you go...
Chrissy, I think most of the symptoms you are experiencing are due to the fact the diet restricts carbs I happen to really love bread potatoes and rice so it was really hard for me I came to the the...
Yer this is a good theory,I think that in some ways is the premise of the SCD diet,(breaking the cycle) that is the the food we are eating when the intestinal balance is up the creek,is starving the...
Yer I'm also a bit scared to try the herbal cleanses where I have'nt heard of all the stuff in it in case it sets anything off,I think the organic apple juice sounds good and is also big in the intro...
I was just doing a bit of browsing on parasites ( I'm Cured really got me thinking about it !) I a found a number of good natural cleanses one is raw garlic,and another one is papaya and papaya seeds...
I'd try not to worry too much I was on 150mg Imuran which seems to be the most common dosage I seem to remember my GI telling that it was not worth taking under 100mg for an adult dose as it would'nt...
I have also thought in the past that pentasa was upsetting my system stomach more gas D. etc but I was taking it when I was in a really bad flare and nothing seemed to be helping. Anyway I'm about to...
Again really interesting,Thanks....
Hi Old Mike,thanks for all the interesting info you've been posting one thing that suprised me with the sri-lanka clincal study was that only 2% of the study were suffering from parasitic infection I...
There was someone just posting on here called weirdal1968 that was taking it for pain releif after shingles and they thought it may have really helped calm a flare down check it out...