Subdued - I haven't been here in a while...but I recall seeing some of your posts from years back.... your UC was pretty harsh if I can remember correctly... I am happy you have found FT to work for...
Saw my gastro yesterday....told him I am interested in some alternative approaches, specifically Fecal Transplant. He completely discredited it, said it was only effective for C-diff colitis, and...
I somewhat purposely let me Imuran and asacol script run out....within 2 months I had a flare. This time, I am trying to knock it out using a different approach. A friend-of-a-friend works with...
I read in an earlier post that a child donor may not be ideal - any particular reason for this? Reason I ask is that I have a 2 year old daughter and I would feel comfortable using her as a donor for...
Thanks I will give those a shot as well....
Great post. I am currently looking info Fecal Transplant myself... I can use my daughter as a donor...she is 2 and healthy... I would feel more comfortable using her poop than someone elses...lol......
Wow glad I found this post. I stopped taking Imuran (Azathioprine) about 2 months ago. I decided to take myself off Asacol and Imuran...maybe a bad decision but I wanted to try something else. I was...
Not necessarily....it depends on where they focused. I had an MRI a few years before due to an injury....never saw the pituitary tumor, which I had been told afterward that I must have had for "quite...
About 3 years ago I had the same issues - fatigue, loss of sexual desire, panic attacks, etc... I had bloodwork done that showed very low testosterone, and very high prolactin levels... I had an MRI...
I used to be on it regularly....it can become quite addictive....was on up to 1mg per day... I still have some left - occasionally I will hit 2mg (4x .5mg) at a time for a totally relaxing...
Got the H1N1 shot this year - no problems... HOWEVER - if you are taking Immuran or the generic form, don't get the nasal H1N1...get the shot......
I remember when I first started taking it about 14 years ago - I had just gotten home w/ a pizza hut pizza...my girlfriend at the time started arguing with me about something...cant remember...
It's been a while, and not to jinx myself, but I think I am out of my flare... I am taking asacol and Imuran still... I am on day 60 of the 90 day P90x workout - the diet and workouts seem to be...
Do you get to keep a copy of the video? That would be cool....
Has he tried any antidepressants or anti anxiety drugs? They have helped me... I haven't tried remicade yet...am currently on immuran w/ some success.... I am about 2 months into the 3 month P90x...
I am not a body builder...have had UC for 14 years now...have battled prednisone effects for many years... Last year I started racing ATV's competitively... I was pretty out of shape and not eating...
I am a chronic stoner....have been told UC symptoms, dehydration etc can cause them. They come and go. Most have passed w/o litho... If UC wasnt enough... If you have stones, keep hydrated. Find out...
I had to hit the dating scene with UC at age 31...I exited a long relationship at 29 and took some time off to recover and just relax...I was petrified of dating with UC....the first few dates didnt...
Almost 15 yrs here... Feeling pretty good recently...Never been back to the way I used to be...during "remission" I still have soft poop and occasional urgency depending on what I ate... Little to no...
Its been my biggest fear....I am on year 14 right now.... I go every 1 to 2 years for the buttscope....so far biopsies have been negative for dysplacia.... So far......
I've had my bouts w/ kidney stones....I have had to have 1 of them blasted w/ lithotripsy which was painless until they removed the catheter - honestly I would rather pass a barbed softball than get...
Anyone doing P90x workout with UC? I am starting this week and am curious if anyone has tried... My B12 shots have given me some energy, and I would like to get in better shape for next season of ATV...
Got my H1N1 shot yesterday....no problems yet...no sore arm....no flare......
Been on it 6 months or so.... Took about a month to kick in. Side effects were not too bad, but noticable - some nausea, tiredness... I was in a pretty nasty flare, and roids were not doing the...
When we do salmon we always use some garlic salt, olive oil (browns it in the broiler), and some lemon juice... Love it....
I am on Immuran (generic form) and was wondering about the H1N1 flu shot....has anyone had this shot while on Immuran? Does anyone know if there are any increased risks with H1N1 and...
Not sure there is anything specifically you can do to keep it from spreading....too unpredictable....take your meds and try to keep the inflammation down... things that I did not do...which resulted...
i have gone from left sided to pancolitis and back to left only.....seems it can spread and retract.......
http://www.healingdaily.com/oral-chelation/N-acetyl-cysteine%20%28NAC%29-for-detoxification-what-it-is.htm read the part about kidney stone risk...boost your vitamin c up to 3x normal dose it says......
been taking it for a while....helps me sleep...no bowel differences that i know of......
been on it for about 3mo.....so far so good... off pred, over the fatigue... have to have blood work weekly for a bit, but for me it was worth a shot before remicade.......
My GI for 12 years finally sent me to a specialist at UPMC in Pittsburgh...he is great!! I am now taking Imuran which is helping immensely...I was pred dependent. I would look into a specialist for...
I like the time frame....finally something under 2 years....many new treatments and drugs are 10+ years away....if this happens in 18 months it would be huge. Sign me up for trials!!...
I havent posted here for a bit....I wanted to give an update on the Imuran I am taking (actually the generic form)... It seems to be kicking in well now. My UC symptoms have cleared for the most...
Wow thanks for posting that. Congrats on the smooth surgery! Good to read a positive story about the surgery actually. Right now its my biggest fear along w/ cancer - having my colon out....so its...
15 years here....started left sided...then pancolitis....now back to left sided again.... it will have its up and downs... immunosuppressants have started working for me - got me off pred.... i dont...
I will avoid surgery until I am told my life is in danger. I have dealt with the symptoms of UC for over 15 years now. I have sacrificed my quality of life over the past 15 years. If I were to have...
I tried this...no luck... I bet some people with UC truly have had great results with chiropractors...I am glad it worked out for you...just shows how impossible this disease is...it works for some,...
My levels were in the low 300's....even after a month of loading, so I am on month 2. Bookworm - I am taking B12 for the low levels in my blood tests, but it sure does help my fatigue as well.... My...
Ive been on it for about a month and a half...starting to feel a bit better....over the side effects, and I feel my flare is getting weaker....still have mucous and a trace of blood, but definitely...
I have been on asacol for many years and have found it to be pretty ineffective - actually I think it makes urgency worse at times... I may ask about colazal.....
My new GI put me on Imuran first. I have had UC 15 years and he told me he didnt want to try biologics yet.... I would ask your doc to try some other things such as Immuno suppressants first.......
I had bad knee pain while tapering pred more than once - it was excruciating to walk at times....but it didnt hurt while not walking....only while walking... I had other joint pain as well when...
Try an anti-anxiety....and keep a bag handy in the car....I resorted to an old towel the other day....primitive, yes, but beats soiling your pants and could help avoid having to wear depends.......
Yea that was me talking to you on youtube.... I am on another loading dose of B12 injections starting today taking weekly.... Hopefully it makes a difference....at least with the fatigue......
I just tapered off Pred totally....below 25mg my UC symptoms came back, and I experienced bouts of joint pain especially in my knees... I have been off completely for about a week....my Imuran is...
I am currently on paxil...I have had UC for 15 years....Paxil has really taken the anxiety edge off.... I also had a tumor in my brain region... I had a non-cancerous pituitary tumor removed through...
I talked to my GI about it today...he didnt seem concerned i.e. I don't have to stop racing... I can live with the bruising - gotta keep active and racing makes me forget that I have UC......
I am on 100mg / day of Imuran. Last weekend I raced my 4 wheeler and on the 1st lap I hit something that caused the handlebars to hit my right arm....at the time I didnt even really feel it. Since...
corn on the cob is rough....gives you the "machine gun" effect....