Hi there everyone..... It has been super long since I have visited healing well. I have been still fighting the good fight with crohns disease. I finally decided to get a second opinion since I have...
Hi everyone... Its been a while...I was curious if anyone has had any issues with pleurisy since being diagnosed with UC. I have had several bouts lately, on and off for months. I thought the first...
Hi there...I was just browsing the site to see if there was anyone else having no luck with remicade! I have had 3 infusions so far and seem to be just as bad as before I started. Urgency and blood...
HI there everyone, I am back with yet another problem. I went to my family doc today because I have had some bad pain in my right armpit, breast area. He did an exam and found that my lymph nodes...
Thanks so much for the input about rectal meds. I have gone that route before about a year ago due to excessive bleeding. They seemed to work pretty good but only temporarily. I used canasa...
Carol.. Thanks for all the info...I will go to my local grocery store and see if they have the probiotic drink and capsules without the milk protien. I am also really interested in the Biotin...I...
Carol...thanks for your input. I see you have been having Remicade for a while now. I am going to be patient and see what happens but will continue to keep my doc informed too. I wanted to ask you...
Hi everyone I had my second remicade infusion last tuesday. I am feeling awful! I seem to have more gas than before I started this whole thing. I am so irritated..I noticed blood with bm today too! I...
UGH...today is another off day. I have been in the BR more than I normally am and just cant seem to eat anything without getting terrible gas pain. I swear this remicade is making me worse! I was so...
I am on the pill continuously for 4 cycles and then off for one week and back on for another 4 cycles. I find this works awesome! I had a long discussion with my OB/GYN and she has other patients...
Wow, thanks everyone for sharing your remicade stories. I can say today I actually feel better. I had really bad gas pain etc (you can figure the rest out) lol for the past few days too so I...
Nor_Tx.... Thanks for your input. I was on venofer for a while too, due to anemia. They had to stop due to my veins being to hard to get. Last time I had a hematocrit it was normal so I was happy. I...
Thank you everyone for your input. I just was nervous that I felt so off for so long afterwards. I go again net week, I will be sure to tell the nurse and see if the same thing happens again. I hope...
Hi everyone, I had my first Remicade infusion last tuesday the 28th of April. The infusion went ok, received benedryl and tylenol while getting infused. I went home that day and slept a lot, due to...
ooops....I just found another person posted a similar topic and I think I may have found my answers. Sorry...I forget to check sometimes! Take care Amy...
Hi everyone, I have been having problems with frequent urination mainly at night. I have had a urine test and it was negative and also had my sugar checked and it is normal. I am up about every 2...
I had the same problem. Even before I was diagnosed with UC I noticed the time around my period I suffered from diarrhea and more gas. I was told by my OB/GYN that this is a normal occurance for...
Wow thanks everyone for the quick responses.... It makes me feel so much more normal to chat with fellow sufferers. I should chat more often. I agree that the blood work is not the most reliable and...
mamas boys I will ask my GI when I go in a few weeks to clarify. THanks for the good news on the remicade. I have been doing good since on Prednisone but the side effects are not fun. Especially the...
Quincy thanks for your help. The bloodwork they did was an antibody test. It is used to show which disease I am more likely to have. THe results pointed more towards CD then UC. THe scope showed UC,...
Pb4 I read a post you had about you having crohns colitis. Is that the same as crohns colitis overlap? Do you know? I just posted a thread asking this to others. I read its rare to have both so now I...
Hi everyone It has been a long time since I have written or asked any advice. I have been doing ok finally due to prednisone and iron infusions. I seem to be in a remission for the first time ever!!...
Lori That would be a hoot! Although I dont drink I would still love that!!! LOL Take care Amy...
I just wanted to thank all of you wonderful people that replied to my post....you all have put a smile on my face!!! I mean I had some good belly laughs. You all made great points and I feel so much...
Lori.... That would be hysterical!! Oh my goodness, thank you so much, you made me laugh. I really needed it! /community/emoticons/smile.gif I guess sometimes you have to pick your stressors and...
I have been diagnosed for a little over a year and find myself on a emotional roller coaster a lot. I agree with others, some days you when you think you have a grip on it, you get another down...
hey Lori Thanks for input...you know I probably wouldnt have brought it up but he saw me take my darn asacol and wanted to know what it was for...oh well....I am sure someday I will meet the right...
Hi there everyone..... I just received an email that really hit home to me. Since I have been diagnosed with UC I have not been in a relationship. I am a single woman and would like someday to meet...
Hi there... I am doing a little better. The past 2 days I have been able to get a pretty solid nights sleep. WHat a difference that makes. I am glad you mentioned the asacol can cause diarhea to...
Hi Quincy... I had a really bad night. Didnt get much sleep, I had so much gas and with it came the urge to go to the BR. Super watery diarrhea too. Ugh! I called my GI again today and waiting for...
I dont think I have ever tried the rawasa enemas. I had pancreatitis about 6 years ago and may have used them then. They do sound familiar but again not positive. Its funny now that I think back...
Hi Quincy.... Thanks for the info on the Bentyl. Yes they are scored and it was ok'd for me to cut in half. I think this med might help my anxiety as well so I will refrain from the Ativan until I...
Hi quincy, The Bentyl was just prescribed today and its 20mg and to take 4xs a day. I am worried about the interaction with the ativan but I do only take .50mg of that as needed. Since I am so...
Hi there everyone.... I have just been prescribed Bentyl for my ongoing gas problem. I was wondering if anyone has tried this and if it works for them. I trust my GI but I am always afraid to try new...
Hi Sindi I hear ya when you talk about the stress factors and how they dont help you UC. I would suggest you talk to your GI or PCP about how you are feeling. I did and they both suggested I take...
Butterfly1..... Wow I feel your pain! I have been diagnosed for just over a year and have yet to have a true remission. Some days are better than others. I am currently jobless!! I resigned from a...
Hi there, I have been very agitated lately and wondered if anybody else has noticed this as part of having UC. I feel edgy and almost shaky at times. I have night sweats too! I do think I am in a...
princesa.... Thanks for all of your info, I will look into getting those books. They might have them at the library or maybe I should just buy them. I have read so many different stories on diets...
HI expecting226 wow you are not far at all from Erie. My aunt lives in Parma not far from cleveland. Its awesome to hear you are pregnant. I hope everything goes well for you. If you would like to...
wow thanks for all of the input! Unfortunately I cannot file for FMLA b/c my company is so small. I do have short term disability benefits but my boss is such a jerk he talked me out of it when I was...
Hi oldhat Yes Meadville is only about 1/2 hr away. I live in Erie. I know the burgh real well too! My best friends moved there once they got married. I actually have been on asacol for a year now but...
Hi there everyone I must start by saying I love this site. It has helped me so much and given me hope. I am not interested in finding fellow sufferers that live near me so maybe we could form a...
hi Emtk2 Greetings from another sleepless night, yet another all nighter in the bathroom. I am just pooped!! No pun intended! LOL I do yoga only when I can. Yes there are days when I am too...
thanks for your responses.....it seems all of you understand exactly what I am going through! Sara14 I have the same trouble getting to work on time. I have to wake up an extra hour early just to...
Hi and welcome I was surprised when I joined that there were so many sufferers as well. It sounds like you have been having a rough time, I can relate. I know what you mean when you are frustrated...
I have been a diagnosed UC sufferer for about a year now. I have missed too much work due to the flare ups, urgency and exhaustion. My boss has warned me many times but there is not much I can do....
HI there I have experienced lower back pain. It lasted for about a week or so. I did some physical therapy thinking it was my back acting up due to the way I was sleeping but no relief. I can only...
Hi there, Its almost too good to be true!!! I happen to be off work today due to the very same annoying problems you are having. I am a 31 yr old female who has been diagnosed for about a year now. I...