I stopped Remicade for 6 months in the hope that I could maintain remission without it. I went into a bad flare in Oct. and had to start again. I did fine. No reaction, which is what can happen to...
Has anyone made the switch from Remicade to Humira? I have been on Remicade for about 3 years. In June of this year I had a scope which showed complete remission for the first time since 2002. I was...
I recently had the same problem. My insurance agent has been working on getting me a policy with less coverage for the same price as my husbands policy. It sucks, but I need something as my children...
I was on prednisone and Asacol during my 3rd pregnancy. I was like you and terrified of taking anything, but my doctors told me it was either take the meds or risk losing the pregnancy because of a...
I have had great success in healing my colon with Remicade. However, I have also had some side effects from the medication. I have extreme pain in my joints after infusion, low platelet counts, and...
I know how you feel. I felt that way too when I was first prescribed Rowasa. It really is not that bad, and it has saved me many times from going into an out of control flare. I always make myself a...
My GI has adjusted my Remicade schedule according to my symptoms as well. You should definately check into it....
Do any of you out there on Remicade have skin issues after being out in the sun? This is my third summer since I began getting Remicade infusions. This is also the third summer that I have...
You know you have UC.... when you have a travel size roll of Charmin stashed in your purse, briefcase, and in the glove box of every vehicle you frequent!...
You should check with your GI doc. Remicade can cause your platelets to drop, which in turn causes bruising. This has happened to me a couple of times during the course of my Remicade treatment, and...
Sorry to hear that you are not finding relief. I know how you feel...many of us do. I tried Remicade as a last resort about two years ago. I have had really good results. I felt better after my...
I have been on Remicade for about 2 years with good results, but it has always scared me. It is a realatively new drug, and I wonder about the long term effects. We just don't know what the...
I went to a new doc today because I would like to get off of Remicade. This doctor uses a combination of natural remedies and meds to try to get patients feeling well. He would like me to try a few...
I have the same issue. My doctor said that it has something to do with the body going from rest to activity. I just know that if I have something important that I need to get to in the AM I need to...
I am thinking it took a month or two to feel better. I still have pain at times, but nothing like it was during that time. murf...
I was on pred for about 2 1/2 years. When I came off of it I had terrible, horrible joint pain. My doctor said it was due to withdrawl of the steriods. It will get better, but I feel for you in the...
Just a word of caution. I had my first colonoscopy in 2001 because of cramping and some blood in stools. At that time I was found to have some mild inflammation in the rectum. IBD was not even...
I was very ill during my pregnancy with my third child. My GI would not start 6-MP until after I had delivered, and I was unable to nurse her. I don't think that it is recommended. murf...
I was diagnosed in April of 2002 and have had body pains ever since I got off of Pred in 2005. I was just telling my husband tonight that my toes hurt. I don't know if my pain is necessarily in my...
I also experience joint pain periodically, but it is usually after my infusion. My doctor has told me that he has found this to be quite common. It is bearable for me, but concerning. As I have...
Thanks for responding! I had discussed my concerns with my doc before we started this. We had to negotiate a little bit. I asked him to monitor my blood work in shorter intervals, and he had to...
I have been on Remicade for nearly two years with great results. However, my platelets have been falling over the past 6-8 months. My doctor was not concerned about it until now. They have fallen to...