Thanks for mentioning the rowasa enemas. I will remember those. I think I am going to go back to 4 a day b/c I am almost back to remission anyway. I go back to the doctor the first week of August and...
Compared to some people's stories I have read on here, I am WELL controlled overall. I have never used mesalamine enemas. I am usually in complete remission with no UC symptoms. There have been three...
My doctor wants to increase my Lialda dose to 5 a day for 6 weeks, but my insurance company rejected that dosage. Anyone take 5 a day or know any reason why this would not be safe? I have been great...
I'm on 6MP and it is CHEAP! It's a generic so with my insurance plan I pay $10 a month at Wal-Mart pharmacy. I don't know about Imuran but they are similar drugs....
My local GI that I see on a regular basis says UC. A specialist at a research hospital that I saw last summer looked over all my previous records and said he felt like it was more like Crohns. When I...
I do the steriod enemas laying on the bathroom floor and then move to the bed after a few minutes. I lay on my left side in bed and go to sleep. I usually do them about midnight long after our...
I have been doing online research into the breastfeeding thing. I am finding that there is a lot of research saying that the amount that passes through the breastmilk is VERY small. We are currently...
I get massive headaches no matter how slow I taper. I also have hair loss after steroid use (pred. or Entocort) for a few weeks. Now I know what to expect and always make my GI give me some Lortab to...
Great for me to hear. I am having my period now and not starting back on my birth control. I'm very excited and hopeful for a great second pregnancy soon. I love hearing from the healthy mommies and...
Making sure my slight flare symptoms from 2 weeks ago are well under control before I quit the birth control pills next month. Had a full remission pregnancy with #1 and hoping for the same with #2....
How's your daughter?...
I'm 5'4'' and about 135lbs. I take 75mg. I recently tried to drop to 50mg and at the same time dropped from 4 to 3 Lialda. Started having flare symptoms after a few weeks, so went back to regular...
LOVE that one "tooth fairy"!! When my daughter was younger and I was in a flare, I kept a basket of her favorite toys in the bathroom. I'd put her down with her toys and hit the toilet. Before she...
The steriod enemas (hydrocortisone) I just started have shown wonderful results! After doing them 2 days I have NO pain and NO blood. 6MP got me into remission after a long flare and kept me quiet...
I just started buying the "Simply Lemonaid" in the cold section at the grocery store. You can also get the lemonaid from concentrate in the freezer section that you mix with water. I don't like...
I had a 1cm kidney stone and never knew it or had pain. I went for my yearly OBGYN appt. and he said, "there's blood in your urine". I thought "ok so"? The x-ray showed the stone. After I had the...
I take Digestive Advantage Sustenex. I haven't noticed any difference. When I started taking it, I was in remission and am now having some "flare type" days every few days. Just thought I'd try...
Renee told me yesterday in a thread about using immodium that she is in a drug trial for a drug that would deliever the pred. directly to the colon so the rest of the body would not get the wonderful...
I think Canasa gives me the worst gas! Every time I pass gas, my little girl says, "say scoo me Mommy" and I laugh and say "excuse me". I guess she's picking up on the manners I try to teach her....
We are going to start trying for #2 as soon as this "mini flare" I'm currently having is over. I got steroid enemas yesterday that my GI said he thinks will knock this right out. He was very clear to...
Someone mentioned in an earlier thread that this message board can get a little depressing. I agree, some days we need something to laugh about . I thought we could share some funny stories about our...
Saw GI this afternoon. He said using immod. is fine but he has trouble with some patients taking too much of it and then getting constipated. I told him I was only taking 2 pills every few days and...
Renee, So glad to hear I am not alone. Even the immod. has failed me this morning for the first time. I was only better for a few hours after taking immod. I wrote down the medication you mentioned...
Thanks for the update!! I seem to be having some sort of "mini flare" or issues. Sure hope it's not the start of another long flare like last time. Will see my GI this afternoon and hopefully we can...
This is how I'm living right now. I take immod. about every four days and am GREAT and then on the 4th day here comes the D and lots of blood. I just called the GI and have an appointment for 2:45...
I've never noticed any problems after taking antibiotics. I have taken Z-pack, macrobid, and levaquin over the past few years....
Found this older thread, and have been reading all the threads about 6MP and pregnancy that I can find. We think we may be ready to entertain the idea of baby #2 now that our first child is 2 and a...
I choose the orange flavor and it was so nasty that now I can't stand anything orange flavored or even orange scented cleaners. Good Luck. I couldn't hold it down and my husband had to call my GI the...
I've had 2 CTs for kidney stones and one MRI of my head for migraines. All were within a 3 month time period....
I have been on 6MP about a year and Lialda 8 months. Been in remission 8 months. Hard to tell if it was the 6MP or Lialda b/c remission started at the 3 month mark of 6MP and as I started Lialda. May...
My GI has changed my meds. from time to time and that leaves me with perfectly good medicine that I no longer take. I hate it when I see people on here desperate for these exact same medications I...
4 a day got me into remission. I noticed a big improvement after taking Lialda about 3-4 days. In March, GI wanted me to drop to 3 Lialda (matience dose) a day after being in remission 8 months. I...
This is so me right now! I was so confused because always before I am either in remission and feeling great or total full flare. For the last three weeks I have had days at a time where I feel great...
I get them at 4:00pm on ABC. Dr. Phil and his son, Jay had a huge hand in getting this show started and Dr. Phil's son is the producer. I never miss it if I am home. I'd love to see them discuss it...
Both times I've tapered off of steriods my hair has fallen out. I always thought it was like when you're pregnant and don't lose the daily hairs you need to, and then after the baby comes, it falls...
Call his office and let the nurse know so he can let you know if there may be a problem. If he's like my GI, he'll just "watch" things and proceed anyway....
I was under the impression that if you come off 6MP it would not work for you again. Interesting. I want my doctor to let me come off of it next year to have another baby but he talked like if it has...
We were newlyweds when I had to go on pred the first time. I looked so bad by November that I sent a picture from our honeymoon in June on our Christmas cards. You have to find a way to laugh about...
When going from one group plan to another, as long as you were never "not covered" in between, they cannot deny you coverage. Your rates and deductibles will be different, most likely higher, as...
Advil used to always do the trick for my cramps before UC. Then after UC I tried, "Tylenol Women's". It was ok, but I started not being able to find it in the stores. Not sure if they still make it...
My husband and I always joke that my doctor appoinrments are our only dates. By the time I ask my parents to babysit for all of my appointments, I can't ask them to babysit over the weekend too. We...
The stmptoms I'm having that led my urologist to run the porphyria level urine test are: dark (coke like) urine, weakness, fatigue, anxiety, mood swings/depression, times where I get very shaky,...
Elaine, huge hug for sending me that link. I had not found that web site in all of my research. It seems the people on there are equally confused as me about porphyria and having a hrard time finding...
I take my 4 Lialda in the morning at breakfast when I take everything else I'm on. I've never had an upset stomach from it. I don't know anything about the other med. you mentioned....
I'll answer you on here since the other thread is mostly about Pred. I don't seem to have flares as bad as some people. The most trips to the bathroom I've ever had in a day was 10. My flares start...
It took my 6MP 3 months but it can also cause other problems. Liver damage, pancreatitis, kidney problems, and other issues. I am worried that my 6MP is responsible for a condition called porphyria...
I'm not sure if 6MP or switching to Lialda ended my flare but yes, I have been in full remission since the 6MP kicked in which took 3 months. However, I am now in the process of getting an...
I told my GI if he was going up, I was going out. He laughed but totally understood. I am sedated for flex sigs and colonoscopies. My husband always goes with me anyway, so the driving thing isn't an...
Life does change paths as time goes on. Never in my life did I want to have an "only" child. However, with my health, our financial situation, and the stress of raising a child, it looks like life...
Advil does work way better than Tylenol but I haven't touched it since UC came along. I take Tylenol or Excedrin Tension Headache (asprin free) and there's an Excedrin nightime that is asprin free....