Remicade/Humira never really concerned me much. Cancer risk still seems really low even when doubled, something like 1 in 10,000 if I remember right. I guess the more years I was on it, the more...
Remicade works well for a lot, maybe most people. Your goal is to get off of prednisone though, you've been on it for a long time (8 months it sounds like?). If you're unable to stay off of...
didnt seem like they contained enough. like 3-4 at a time would be nice. i with i had access to all the medications to attack it from multiple angles as i see fit, surely would have gotten great...
So far things are going pretty decently. I seem to be down about 20lbs since my surgery, if the gym scale is correct. This is probably mostly muscle loss and the missing colon. I have a good bit of...
I read there is about a 10% fail rate for the J-pouch, but that's a 90% success rate! I mentioned the 10% to my surgeon and she agreed that it sounded about right. If I remember correctly she...
I've been experiencing this since my 1st j pouch surgery, starting while I was in the hospital still. When I use the muscles down there to push out the remaining mucous build up, it burns and feels...
I would try Remicade and if you don't get solid relief from it for at least 6-8 months and if you still flair and it can't be quelled by prednisone in a month or less I'd probably go with surgery....
I started a liquid diet of pretty much just chicken broth, jello, low sugar juice maybe a couple days after the surgery. I moved up to a low residue diet somewhere around 4-5 days after the surgery,...
My surgeon told me the impotence rate is somewhere around 1-3%. Those are pretty low odds, probably even lower the younger and healthier you are. I'll say that probably within the first or second...
Yes the surgery was laparoscopic. I'm counting 6 incision areas total. There are really small ones that are already scabbed over and seem like they could just flake away and disappear already. There...
My entire colon was not affected. It was just the left side I'm pretty sure, and not a huge amount of centimeters were affected either, but what was infected was enough to be drug resistant and cause...
UC for 4 years, pretty resistant to medications. Prednisone was no longer acceptable to me. Weekly Humira made me feel like crap and didn't work long enough at all. I'm 24yrs. old Male at about...
I just had surgery 6 days ago. Today I've been unhooked from my IV so now I'm pretty mobile. All I have left is the removal of inflammation tube and pouch which is collected fluid, then I can go home...
I was told it's better to take the prednisone all at once, interesting....
3-4 years ago I had a pilonidal cyst removed surgically from the rear end region, near the end of the tail bone since this is where that form of cyst occurs. Do these medications (prednisone, humira,...
I had yellow tinged eyes in the recent past... This was back when I was on Imuran though, and probably Humira and/or Prednisone at the same time. I also binge drink quite a bit. Be careful with what...
Frankly I'd rather have surgery than eat raw foods my whole life....
You've had UC for 33 years, doesn't sound like cancer happened too fast to me. After 10 years the cancer odds are dramatically increased and you probably should of been getting colonoscopies every 6...
i don't know why you're subjecting yourself to such easily avoidable risks and complications. have you seen what older people look like after years of tanning? skin turns to cow hide leather....
Im having surgery within the next month. In fact maybe even next week if the doctor's office didn't misspeak when they left me a message... I've had UC for 4 years and probably about 2 years into it...
Mine wasn't bad, wasn't sedated either. Last maybe somewhere around 10 minutes....
After 8 months on pred my left knee hurts a bit on and off. Went away maybe a month after I stopped taking pred but came back almost right away when I started taking it again 4-5 days ago....
Was on them for about 8 months last time. My knee has some pains in it now which started to go away after a couple of months, then I started taking pred again 4-5 days ago and the pain came back...
I think I'm going to call and setup surgery tomorrow. I started taking prednisone again for the last 4-5 days. There's a lot of liquod and mucous coming out and what seems like compacted chunks...
Fatigue Anxiety Bloated Moon Face Personality change brittle joints Acne greasy face/hair monstrous appetite short temper/snappy bone loss muscle weakness that's from personal experience, I'm sure...
I can always just switch back to the bag right? I assume the chances of something going very wrong with having a bag are pretty low? I need some piece of mind knowing I can revert back to something...
I've heard you could have troubles getting what you want with HMOs, especially if you have health problems. I chose a PPO because I have freedom to chose whatever doctor is in the network. Kaiser is...
Remicade/Humira both seem pretty benign to me as far as side effects, at least short term. Unfortunately they're not working so I think I'm going into surgery, tired of feeling like crap, shrinking...
I was on it for about 8 months and able to maintain a 5mg dose for the last ~2 months. I was then put on weekly doses of humira but the frequency of movements increased and everyone keeps mentioning...
I think it increases chances of lymphoma cancer but at least lymphoma has one of the highest cure rates if I remember right. I'm taking Humira and would be worried about taking it any more than a...
The Humira directions say to leave it out 15-20 minutes before injecting....
Yes wait 20-30 minutes so the liquid is room temp and will hurt less. I find the thigh to be less painful than the stomach. The actual insertion of the needle doesn't hurt but it's the injection of...
I saw prices on them and it's so expensive :(...
24yrs. old and I've had about 4 doctors mention surgery :(...
I told myself after this dose of Humira wears off I would have surgery. My symptoms seem to be getting worse rather fast. Now that reality of surgery is upon me I don't know if I can go through with...
Where on that jpouch website are surgeon ratings?...
My heart felt stressed while on pred. I remember even flying on a plane I felt a bit winded and hard for air, but maybe that's from getting fat on it....
Seems like an interesting concept. The worms are thought to somehow numb the bodie's immune response so they're able to reside in the intestines, but this could also help UC/Crohns. If there aren't...
Driving in the car and holding it can be a challenge. In the past I've been able to clench my cheeks and sort of recline my chair so I could. So far I've always been in a place where I could stop for...
I was on it about 8 months last flair, longer because I started a new job/etc and couldn't get immediate access to humira. Ive been off prednisone for about 3 months but the other day I took 10mg and...
What type of drugs are they and are the side effects bad? I'm taking weekly Humira injections and the grumbling/associated symptoms seem to be increasing after only being off prednisone a couple...
Your adrenal glands are weakened and trying to recover. The caffeine will actually beat them up more and make the recovery take longer, so use caffeine sparingly as you can and avoid it on weekends...
You were healed by a pepper capsule? You sure you don't sell capsicum pills?...
Not sure but when I developed it I was drinking massive amounts of black coffee, taking tons of caffeine, fitness supplements like ephedrine, and high stress from a new job. Sometimes I have to...
Just consult with a surgeon and then when it does go bad setup the surgery. Years of these medications are going to tear me apart, not to mention they don't work anyways. Plus I think colitis tends...
At least he's young and should recover from the surgery very well and have better results than an older person. The younger a person the better the body heals....
If I remember right it kicked less than a week after getting the injection, or even right away. I find Humira seems to work the same and it's more convenient since it can be injected on your own with...
Who have had the ileoanal reservior operation, the j pouch to restore the natural way of using the restroom. Did you have yours done all in one operation? My surgeon said it can be done for some...
Everyone around you is against surgery? They clearly must not fully comprehend the severity of the problem or how brutal all the drugs and side effects are. It's weird my mom has been the opposite,...