Had same problem....super happy (in many ways) to no longer have them. Read an interesting article that says we did not evolve to bleed every month- women would be nursing longer or pregnant, but not...
OK, I need to rant here. I KNOW that many of you have experienced being told “it’s all in your head” “maybe if you changed your diet??” “it’s due to the stress you are under” or even the accusations...
So here's my thought: SOME people with UC have increased Proteobacteria (mine was at 15%) Are there others on this forum who did either uBiome or American Gut project who did NOT have a significant...
exactly...you can order a kit now to get ready! Or get a special two-for so you can do before/after any kind of treatment. I think it's one of the best tools for IBD/IBS peeps out there and cant wait...
were you ever a smoker or exposed to 2nd hand smoke?...
Did both. Even though no history of IBD in my family (that I know of) the genetics said I was more likely to have UC and when comparing my DNA with GWAS, I have like 30 genes (I forget the total but...
I forgot to mention that I have been on azathioprine the entire 19years so clearly, in my case, it did NOT prevent me from getting sick. No clue why I so suddenly got so sick after being not really...
One study showed former female smokers were 5x more likely to develop UC than never/non-smokers, and there are several posts here from former smokers who tried everything, and back to consuming...
HI there. Mine was also high (6x normal) when I was in a very, very bad flare. Went on nicotine patches, put me in remission in like 2 days, and after 6 months on patches this dropped to normal....
For what it's worth, and not knowing the exact spp. or strain, it's not worth much, but a guy in our CCFA support group got Salmonella from a restaurant (seafood from China), ended up in the...
•Free Mouth Kits for smokers, ex-smokers AND non-smokers. We just launched (today) a study to answer this question: how does smoking affect the oral microbiome? If you'd like to be part of the uBiome...
I would try nicotine in other forms. As I posted earlier, nicotine patches have helped my UC tremendously, though I was never a smoker. I feel nicotine is > pred, but cigarettes contain many other...
uBiome kits 50% off until midnight on July 4th. Use discount code CELEBRATEWITHUS74 at ubiome.com I don't work for them but have used their kits- 50% of would be ~$50/kit. You could even get 2 and do...
Yes..http://www.ncbi.nlm.nih.gov/pubmed/21691078 TNF-alpha. And there are more articles out there supporting this. This study: http://cvi.asm.org/content/11/3/563.full "Thus, in this animal model of...
Gary, do you think you will do a post-GSE American gut test again? Could be very intersesting to see what the changes are in your bacterial populations....
Well, SMOKING is different than using pure nicotine in a patch form, and vaping pure nicotine would also be different than using a patch. And that study was on healthy people. That is a great point...
Just got my results from uBiome. In September, right when I was starting to go on a big flare, I had my microbiome analyzed by uboime. Then, after one year on nicotine (patches-21mg), which has...
Yeah..I never see it as one-upping either. I see it as INSPIRING that others have it worse yet soldier on, with a sense of humor, even.....and I learn a lot in the process and am thankful others are...
I too have a rash from the 21 mg WalMart patch (which is same as Walgreens) I have been using this for a few months now and it is working great, I will gladly take the rash over symptoms from other...
My update on nicotine- it has been 3 months on 21 mg and I am still feeling great. No cough or other ill effects, except patch rash (using generic Mal-Wart brand which is identical to Walgreens...
It would be very interesting to see the microbial analysis of your gut and whether it is much different than "normal" gut flora or even different than "IBD" gut flora. A before/after comparison could...
Can't get around the genetics factor, which is involved in any disease. A meta-analysis of 15 genome-wide association studies of inflammatory bowel disease (IBD) has been carried out and analysed...
ok...thanks for link. I wouldn't smoke them, but would use in enemas at the dosage in the article....
Recent info on Nicotine enemas: http://www.examiner.com/article/nicotine-enemas-for-ulcerative-colitis-maybe-say-researchers I started on 14 and it was a miracle for about 5 weeks then got much...
Saw one of these and it made me LOL- we can all use some laughs, eh? http://www.biffybag.com/how-it-works.htm Sort of like a wag bag for you backpackers but has a....um....novel way of attaching and...
HI Daisylou...I am sorry to hear about your struggles. I will say that you DEFINITELY should consider calcium, in whatever form (food or supplements) as osteoporosis is indeed a risk on prednisone,...
I like the idea but agree with Judy-- right now we are lumped together due to symptoms and most likely there are multiple diseases with differing etiologies...not just "Crohns" and "UC" Recently read...
personally, I would do that little pred over biologics as well....but definitely would try enemas or supps......
Just heard this on NPR http://krwg.org/post/nih-scientists-must-include-female-animals-testing the broader topic is that scientific testing should be done on both genders On the importance of...
Angela, I wasn't a smoker and started with 2 days at 5 mg (cutting up patches), 9 days at ~10 and then almost 2 months at 14 mg. I did notice feeling a little buzzed when going to 10. It worked great...
wow, buddy- every time I read your posts I just gotta say YES, YOU DO WIN SOMETHING FOR BEING SUCH A TROOPER. I mean, 40 years is a long time, and you still have a sense of humor. No exp with TNF,...
Coincidently just going to post on this. After 2.5 months on 14mg nicotine patch which worked GREAT, it stopped working. Tried Uceris for 1 week and no effect so now on the Evil Prednisone and doing...
StrongGuy, I was pretty much in the same boat- very bad flare, lots of blood loss and pain, complete loss of appetite. My GI wanted to put me on prednisone (been on it before, hate it!) After...
have not had this with 14 mg patch- have been on it for 4 weeks now. I started at 5 mg for 2 days, then did 10mg for about a week and then up to 14. BTW the CVS patches are crap and don't stick....
pages from a book ripped the pocket off my jeans sacrificed a sock....... OK time to get my own ER-TP thank you iPoop for your great idea I DO often have spare underwear with me.........
WEll I went here https://ndnr.com/gastrointestinal/helminthic-therapy/ and read this: Hymenolepis Diminuta (HD) is a rat tapeworm whose larvae (cysticercoids) have shown benefit for colitis in some...
other threads on this topic: http://www.healingwell.com/community/default.aspx?f=38&m=2814182 Not a former smoker, but like you it was to the point that I was housebound....it's day 32 for me and I...
ok- I posted earlier about osteoporosis and pred use. At 37 due to pred I had osteoporosis diagnosis but after 3 years was able to reverse taking 800mg calcium citrate and weight lifting. My doctor...
It will end soon...yes, I thought GoLytely was the most unapt name ever. Nothin' LYTE about it! Shoulda been called "GoExplosively" or something!...
I started on the patch at 5 mg for 2 days, slight improvement, went to 10 and big improvement, now on 14 and doing well at day 31. I was never a smoker...have been on prednisone before and am still...
IF you have insurance and they will cover your DXA (which prednisone use as a dx works) then DEFINITELY get it! I read that for women, by age 30 you should start thinking about calcium...
well.....I read where it was OK to do that and others said not to. I have been cutting mine...maybe if I get a script I will get the 14 mg ones and wont be cutting them anymore. I wanted to start at...
Great article awareness72- thanks for sharing. I also recommend (http://pharmrev.aspetjournals.org/content/57/1/79.full#title3) which has a lot of info on nicotine- here is an excerpt regarding...
This is day 28 for me, and I am still on 14 mg. Still working great! Still on Imuran, asacol Hd and enemas or suppository 5-6 days/week. Just switched from putting on patch at 2 pm to first thing in...
Great post! There are 2 aspects to nicotine which correlate to the 2 aspects of the disease (as I see it - and I'm no expert- based on what I have read). There is the immune component and the...
Just got my uBiome results in beta form. Interesting in that they are not as whacked out as I thought, however, the sample was done in Aug 2013 when I was only mildly flaring. I eat few animal...
"Ever-greening" !!! Great term there...I was in this same boat, switched to Delzicol, went into worst flare of my life in over 10 years. I do not believe a generic will come out in 2021, b/c then...
Wow....you really had a bad experience here and with a new baby and everything. Glad to see the nicotine is working for you...it's still working great for me as well at 14 mg patch. I really wish...
madabs, I am so sorry about this....good friend of mine (does not have UC) in her 50's and post menopause, has steroid shots for her hips and that ALONE makes her weepy, increases her hot flashes and...
holy freaking crap! I googled it and that is right. Your poor friend won't sleep until July...