Hey I had Proctitis for 3 years and was unable to get it under control and ended up being one of the few people to have surgery for it. Try not to stress too much (although I know that is easier said...
I had repeated UTI's after surgery, or maybe like you it was the same one that never went away. Thankfully its all cleared now 6 months on. Hope you get it sorted soon, its so frustrating to get...
I've had my temp ileostomy 6 months now and had constant mucous leakage from my back passage. I had a pouch dye x-ray 2 weeks ago which left me with alot of crampy pain in my lower abdomen for the...
Thank you blueglass. I have started counselling with a specialist IBD counsellor at the hospital and have had 2 sessions. My main feeling is anger. I have also been taking anti anxiety/depression...
There's no doubt I'm recovering slowly from my j-pouch/ileo surgery but since the weekend I have been getting horrible abdominal pains that are there pretty much all of the time - very similar to...
polishdan said... qwerty1 Those are real friends. Where in the UK are you? Dan Reading, Berkshire, not far from London....
Aaah how sweet :)...
Hi Golfnut, I have exactly the same experience, and I too have been told that it is bile and simply the digestive juices when there's no food for it to 'mix' with. Sounds like we have the same amount...
Eeek I had my first delightful experience of this today, except mine was down to the fact that I simply wasn't concentrating! I was on my lunch break at work, was sat on the loo about to empty the...
Thank you, I did mention to my stoma nurse at my routine appt and she said the same as you. It's always a little worrying when something happens for the first time after the op isn't it!?...
Just been to my stoma nurse appt and she said to use Freedom Insurance www.freedominsure.co.uk ...
I have a temp loop ileostomy and waiting for my second surgery to rid me of the bag. I've been told that I will experience the problems that your son is having, and that cream and wet wipes should be...
I posted the same thread a couple of days ago - someone commented saying to try Travel Guard which can be purchased through a travel agent. I've never heard of it before but am going to look into it....
I was worried when my stoma started getting considerably longer and wider about 2 months after surgery. It has stopped now and turned out to simply just be 'the norm' after surgery. I do think you...
I know it is normal to have some discharge into the bag from the closed end of the loop ileo but I've noticed this eve that there has been a fair amount of discharge but it definitely isn't the usual...
I'm from UK and planning on flying to Florida for 2 weeks at the end of September. Does anyone know of any travel insurance companies that will cover for any unexpected hospital visits as a result of...
80sChick said... I really only drink regular water and coconut water (love it!! but it's so expensive). Is like Powerade or Gatorade an isotonic drink? I thought they were bad for you because of all...
Because I'm prone to dehydration I need to keep an eye on how much fluid I'm losing. I fill a clean bag 1/3 full with water, then measure how much water that is. I - like a lot of you - empty my bag...
Do you drink isotonic drinks/drinks with a decent level of salt in it?! I too suffer with dehydration - not through weeing a lot like you but simply cos of the fluid going straight through to my bag....
Well if I forget to chew loads and accidently swallow a bit whole it just seems to come through exactly as it went in. And I don't eat carrot or things like that anymore unless it is mashed up...I'm...
Just out of interest...roughly how high is your usual ileo output each day?! Mine is about 1litre but the past month or so it is around 1.5l....
Golfnut50 said... Was kinda hopping for a little better news. My surgeon said 6 to 8 times I would have to empty. What do they know they only do the surgery, they don't have to live with it. My...
Yeh I'm amazed at how easy it is to subconsciously swallow something quite big and it just comes through whole...carrots are the bain of my life! I also had a big bit of chicken come through once and...
Aah all this makes a lot more sense...and yes I have in the past also put pressure on my stomach area when I can feel something is coming through and quite a bit has come out. One more question...
run4pancakes said... The items you mentioned don't digest/break down very well (or sometimes at all). The opening of your stoma is a lot smaller than the opening of the anus, so pieces of food can...
I've been told over and over since my ileostomy not to eat nuts/seeds or potato skins/fruit skins because they may cause blockages. My question is how? If the small intestine hasn't changed during...
Like stripey if I wasn't on extra meds to slow the output down I would be emptying my bag way too many times a day. I struggle with dehydration and as a result have had 2 hospital admissions because...
I tend to empty mine when it gets to about 1/3 full as like many others on here it tends to show under my clothes at that point. Being someone with a constantly high output it doesn't take long to...
Ok thank you!...
I am struggling emotionally as a result of my surgery and I know that this may sound strange but I want to know exactly what went on during the surgery (Proctocolectomy and J pouch with temp loop...
Hi, I was diagnosed with UP 3 and 1/2 years ago and bled for the majority of the time. The problem with UP is that it can be very difficult to treat and sometimes needs a combination of drugs....
It was easy to make and just took a few minutes. I bought some t-shirt material that stretches and sewed to shape. You could use a woman's tube top also which is where I got the idea. I'm impressed,...
I know what you mean, I've only had mine since April and still having got to grips with hiding the bag confidently with alot of things I wear. I hate it when the top of the bag flops forward without...
2b ColonFree said... yes, it's free like all the ostomy equipment. at least for us, in israel it is. it helps to keep things more together. w/o the belt, the bag pulls down on the stoma and the stoma...
80'sChick that is so lovely...I'm so pleased you have come to terms with your personal complications and can see a future in being able to help someone else by adopting :)...
Thanks for your reply, my surgery was not done laparascopically, it was the opposite (can't think what the word is!). I have a 7inch scar running down my abdomen. If you don't mind me asking - when...
My main issue upsetting me at the moment is the whole issue with the ability to get pregnant. I am 25 and not at the stage of thinking of children imminently but I would absolutely love to have them...
Just curious as only had my ileostomy in April and never been recommended a belt. What does it actually do? and if in UK can you get it free same as with the bags etc?!...
My stoma output has always been pretty high and I had 2 consecutive hospital visits weeks after my surgery as a result of this and dehydration etc. I have been managing it ok since but since last...
babygirl10150 said... I have a colostomy but these types of threads always have me curious. Normally it takes the stomach 4-6 hours to digest food so I've always wondered how certain foods can come...
Thats crazy that her stoma is so predictable! Mine is spouting stuff out aaalll the time, when it does have a quick 'rest' it'll only last a couple of mins if that! I am struggling to put weight...
I have an ileostomy...just wondered what other peoples experiences are of the time it takes the food to get from mouth to stoma. When I eat something that either doesn't digest well or that my body...
September but thats only if I put on more weight, and I don't seem to have put on any weight in the past 6 weeks so its unlikely it will be that soon! But we shall see, thank you for your concerns...
I got an emergency appointment...turns out I have yet another complication from the surgery. My GP said its where my small intestine has got itself stuck to the internal scar tissue during the...
2b ColonFree said... i just thought of something. it could be an inflamation of the muscles. that can be easily solved with antibiotics. when do you see your surgeon? Oh I didn't know you could get...
stripey said... I don't have to do anything after I eat, I have high output stoma and short bowel syndrome so spend my time taking codeine and immodium to slow the darn thing down! Snap! I have a...
Perhaps you ate food over the weekend that wasn't a good enough consistency and so it causes the stool so be more liquidy?! I'm only 9 weeks post surgery so I'm by no means an expert but I'm...
The area is right to the left of the top of my incision. Its so painful, I feel I have been set back a bit as I have been relatively pain free up until this happened. Only thing that makes me doubt...
Ok so I've heard after surgery hernias are more likely to happen. I'm 9 weeks post surgery, having quite a slow recovery...I overdid it a little at the weekend and thought I'd maybe pulled a muscle...
Perhaps you knocked it or something which made it more sensitive when you wiped it the next time you cleaned your bag out?! Mine bleeds on and off, sometimes more blood than other times. I put it...