mindstyle - to my knowledge the two forms still remain under the brand names azulfidine and azulfidine EN-tabs, but I'm not 100% positive. seconder - You're right, but for those of us sensitive to...
My previous post appears to have disappeared (Hmm..). In any event, I stated that when I first started using sulfasalazine some 20 years ago it made me quite nauseous. I then opted for the enteric...
I have seen mixed reports on FOS - some say it is helpful, others that it can be problematic. If you want strict control over your carbohydrate intake, then I would think finding a probiotic without...
I wouldn't worry about your consumption of flaxseed oil - it should be beneficial. Fish oil is generally considered to be superior because it is essentially a more concentrated form of omega-3's. I...
This is essentially correct but somewhat misleading. As indicated in the article the issue is obtaining the proper balance between omega-6 to omega-3 fatty acids. With respect to walnut oil, while...
Although I only take sulfasalazine on occasion now, for much of the past 20 years I took 2 grams/day. I originally started at 6 or 8 grams (don't recall exactly) and tapered down to a dose I could...
I think you may be confusing linoleic acid with alpha-lenolenic acid. The former is an omega-6 fatty acid while the latter is an omega-3 fatty acid. Flaxseed contains alpha-lenolenic acid. This...
There were a couple of responses that struck me as being unnecessarily surly to a question that seemed quite inoffensive. Given that it was the first post for the person starting this thread, I...
Gee, not a very welcoming response to a simple question. My answer: no, I never tried just vitamin D. But if it works for you then it works for you. I do take vitamin D supplements and get a good...
Good question. Helps to underscore the importance of having/maintaining a positive attitude in the face of uncertainty. I may be an exception to the rule, but I no longer worry about going into...
Based upon your history, I'm curious why you are taking oil of oregano if you suspect your condition is antibiotic related. I recognize that it has anti-inflammatory qualities, but unless you take it...
With respect to Jini Patel, she states that she has been med free for close to 20 years. My understanding of her approach is that the purpose of the various protocols and supplements is to (ideally)...
There is the story of Crohn's boy, which you can find here . I have tried it myself. I can't say how much it helped because I was well on my way to recovery by the time I tried it (primarily as...
I was a vegetarian for a good 15 -18 years or so while I had UC. This past year I have gradually moved away to a more omnivorous diet. This was driven in part by a serious flare I experienced last...
It may be caused by something as simple as being dehydrated - the case for me. I have avoided them by staying well hydrated, especially before/during/after exercise. So water has been my remedy of...
On the cooking front: it looks like you have been given some good suggestions for recipes. Since you want to avoid complex sugars and other undesirables, it would be a good idea to cook up your own...
I'm not that familiar with the SCD. What ingredients in sauces are to be avoided?...
Should you go the sulfasalazine route (which I have taken for 20+ years), I recommend the enteric formulation as it is more easily tolerated....
ElephantPipe's answer seems as good as any - although you may still have some residual inflammation even when things appear normal. On the fiber front, I don't think you necessarily want to avoid...
My hope is that future research will identify the underlying cause or causes and not just develop another nonspecific drug aimed at symptomatic relief. Perhaps the UC triggers that BabeintheWoods...
Probiotic enemas can be quite effective - but it may depend upon your current condition. If you are in a serious flare, then it may or may not be helpful. Otherwise, I think they can be quite useful...
I wouldn't consider using fish oil to be a waste of money. It's value goes beyond being an anti-inflammatory. As mentioned previously, it has other health benefits (e.g. cholesterol control), making...
As a follow up to killcolitis, the probiotic retention enema developed by Patel-Thompson can be found here . It is now a free resource and provides detailed information....
Never had a problem other than not liking the vanilla flavor. Out of curiosity, what is it about whey protein that causes a problem for folks? Also, to those that are fructose intolerant, do you...
Burts Bees Res-Q-Ointment works for me....
I would first say that I really like the idea of this kind of 'natural history experiment'. I'm sure there is a lot of good data to be mined from this group, although I don't know if the vein on...
I assume you have already contacted your GI for advice and are keeping him/her apprised of your situation. As far as strategies in the meantime, and having had a similar experience, I would be...
Fatigue is a fairly common response to either UC itself, your medications, or both. I have spent way too much time being tired through my my most productive years. Since my condition has improved and...
I should clarify my position by stating that we obviously tolerate foods differently when in a flare or in remission. When flaring, it may well become much more individualistic in determining what...
Rather than creating a list of foods, my preferred approach is to create a structured and balanced diet that is anti-inflammatory overall. For me, this involves a diet that has a reasonably high...
I don't understand the criticisms being leveled at this procedure. The link provided by Susiebuddy is to a news report on a gastroenterologist using this technique as an alternative to the laxative...
I know that it is one of the recommended supplements in Listen to Your Gut by Patel-Thompson. It is said to be good for wound healing (being a gut tissue nutrient) and alleviating diarrhea. I am...
From a personal perspective, I know I am in a flare when I see blood and/or mucous in my stool and am making frequent trips to the bathroom. This is usually accompanied by a dull pain in my gut (in...
Have you been tested for anemia? One indicator, in addition to being tired all the time, is difficulty catching your breath or having a noticeably increased heart rate after even moderate exertion....
I have had good success with Natren Healthy Trinity - which actually contains three species (isolated from each other), although Mercury28 is right to claim that they also offer separately the...
Severe anemia was the primary reason for me. I had lost so much blood I needed a transfusion. It was also an opportunity to get things under control via more potent steroids and the controlled...
Yes, I have been dealing with the same problem with my legs for almost a year now - although it is not as bad as it once was. Once I get moving it loosens up quite a bit. But getting out of the car...
I don't have the answer to the regional differences in IBD rates, although I'm sure there is data addressing that question. I should make clear that the kind of diet I was referring to is one that...
It made my condition worse - dropped it like a hot potato. Having said that, a number of people on this list have had good results with it. I wonder where they are?...
As killcolitis mentions, the issue boils down to getting the right balance of omega-6 to omega-3 fatty acids in our diet. The western diet tends to have a high omega-6 to omega-3 ratio which has been...
For what it is worth, I tend to agree with those advocating a diet that is elemental in nature. The chicken broth idea strikes me as a good immediate solution to get you through a few days. In...
D3 (cholecalciferol) is in the form our bodies produce when we make like plants out in the summer sun (the botanical reference is for your benefit fruitgirl) - so that's the form I ingest. Don't know...
I'm convinced that the flu shot I received last year (seasonal) sent me into an uncontrolled flare. Can't prove it, but I am disinclined to test my theory by getting another. A powerful form of...
I would encourage you to speak with your professors about this. Being a professor myself I can assure you that, by and large, we are a pretty understanding lot and want our students to succeed. I...
I personally think the dangers associated with comfrey are over-hyped, especially since it has been successfully used for the past 2000 years or so. Of course, if you were to give yourself an enema...
I can think of no reason why it would not be safe, but I don't know for sure. Another enema I have used while in a flare was a mixture of slippery elm, marshmallow root and comfrey root powders (1...
My GI urged me to take it - not something I wanted to do. She was quite adamant about it, so I decided to humor her for a while. In any event, it was not a good experience for me. I became very...
The best source I have found to date for purchasing slippery elm powder is Mountain Rose Herbs. The link is here ....
The following is one possible source of information http://www.edf.org/page.cfm?tagID=16536 . According to this site, most fish oils are molecularly distilled (although they suggest it is a good...
I'm not interested in arguing the matter. The only question of interest to me: Can aloe vera be useful in the treatment of ulcerative colitis? Based upon the limited clinical trials that have been...