Remicade/humira should really be one of the last things you try. If you have any liver issues or gall bladder issues though that might be why they havn't tried you in Imuran as it can affect those....
I started dating my boyfriend at the same I was finding out how much UC sucks and what it was and all that and now it's 3 years later and we're still together. He is a really understanding guy and...
I am a gothy looking kitty because I couldn't get my act together this year and we're just going to wander around the city and hit a few pubs and look at other peoples costumes...
My first colonoscopy is going to be in Nov. I've never done anything other than flexiscopes before so I'm rather...well....crazy nervous about it. You are just plain old knocked out right, you don't...
I live in North Burnaby...I'm not going to Coquitlam, thanks though....
Eggs, or toast with just butter......
I use marvalon. I was on Seasonale for awhile but it wasn't working right, I was getting periods after two months not three so I went back to my normal one. Marvalon is a higher dose one cause I'm...
hmm...the nutrition house in my mall closed down *sigh*...
Where in the hell do you buy cheap probiotics!?!?!?!?!?! I just did a search for the Primaodphilus Reuteri probiotic and on the US websites it's like $21 and on the Canadian sites it's $50 and up!...
Alcohol bothers my colon as does the -cheese- on a pizza. Pepperoni doesn't so as long as I leave off the -cheese- and do no drinking I can eat it fine....
My colours used to work and now they don't and i didn't do anything different....
Yeah..ice cream....such a big no no for me...*cries and eats her stupid fruit popsicle*...
I know we've got a recent topic on here about yogurt but I was wondering if anyone has had any luck with lactose free milk or even taking lactaid pills so that they can handle milk? My dietitian is...
It has you taking it with mesalamine...is that a 5ASA? I can't take those...wonder how it works with Imuran...
Well I don't suppose the plant is anymore hazardous than what we have in pharmaceutical form really...It's natural poison over manufactored....
BioBest is the one that is supposed to be the 'commercial' yogurt for lactose intolerant people. I myself buy the all natural Astro yogurt where they sweeten with honey and natural flavours. It's...
I don't know that one. My iron supp. is Palifer. I used to be on this great metagenics one but it was too expensive for me to buy by myself. Clams are really high in iron (higher than the liver...
Well I guess that answers the question of whether or not I should call my doc and ask to be put on the list for a H1N1 shot....
It could be gas? I find gas makes me cramp hardcore when I eat something I shouldn't. I'm now basically lactose intolerant due to the colitus....
I would suggest getting a referral to see a dietitian. I went to one and she told me what it is I could be missing with the meds I'm on and if you have taken prednisone ever to definatly make sure...
That stuff I don't know. Guess I shall need to find out....
So...I have been on Imuran for a good while now and I have flared twice while on it. One was dealt with via antibiotics and for this most recent flare my GI upped my Imuran from 150 to 200 but it...
So long as there is no cheese on it, I can do pizza just fine even in an evil flare like I'm in right now....
My current GI has mentioned the study to me and says she could make me a part of it if I need it....
My GI is Dr. Telford who has her own office with a group of other GI's on Davie and Burrard and they work out of St. Pauls. I've only had one meeting with her but my next one is in October. I really...
Anything like that for Canadians?...
Yeah. My tats all (will) have meaning for me. It isn't just a stupid risk. So long as it looks like I will have no serious problems I can handle it. I've been on Imuran for almost a year now with no...
Well that's good. I was just worried I might risk a blood infection or something. But if a mild skin reaction is all I need to worry about then that's just awesome. Now I just need to save up my...
I am 22, I have one tattoo but I want to get more. I don't know if it's a good idea at the moment though as this disease and the meds we take can lower our immune systems. I wanted to know if anyone...
My original flare made me 134lbs but now I'm back up to 193 *sigh* friggen yo-yo is what I am. Need to lose weight, my dietitian has some ideas to help me...
The reason some of you would be getting breakthrough bleeding on Yaz is because it is an extremely low dose hormonal pill. I love my bcp will never give it up and I'm on a higher dose one so I don't...
I've been having lung issues...I don't feel like I can catch my breath properly and even just a little thing like walking up the 3 flights of stairs in my apartment leaves me gasping, I thought it...
yuckygut, you might want to try something called Bio Oil....
Did anyone find that they got really dry skin as well as the acne? Behind my ears and my armpits started itching like mad just after I stopped and now I've got annoying acne and it's like...
I've had two sigmoidoscopies and both were without anesthesia. I didn't know they could knock you out for those. It was painful and uncomfortable but I guess bearable....
I like this one lol A Little Poem Regarding Computer Spell Checkers... Eye halve a spelling chequer It came with my pea sea It plainly marques four my revue Miss steaks eye kin knot sea. Eye strike a...
Tylenol is the only one for me. Advil is bad because it's a blood thinner, and for those actively bleeding I would think that it be avoided....
I've been on Imuran about 5 months and am now pred free ^_^ Blood work has all been fine and I havn't noticed any major side effect, just a headache every once in awhile and some mild nausea once or...
I'm on Imuran, and today I took my last 5mgs of pred ^_^. I did go a little up and down with more frequent bowel movements but not enough for me to think I had to stop. So just wait till you feel...
well I'm down to 5 mg and no problems so far ^_^...
I got told by my pharmacist (his sister also has UC) that after Imuran I was supposed to wait 5 years if I chose to get pregnant (which I never will ever)...*shrugs*...
I can't eat white bread...it doesn't do anything bad to me, I just don't like it after eating the healthier breads....
I saw a naturopath. It was expensive but my dad was paying for it. The supplements were also really expensive and I didn't really like her...but I got put on the anti-fungal diet and I did pretty...
I'm down to 7.5mg and will be going down to 5 mg tomorrow ^_^ SO far so good. I am also on Imuran....
If the doc you are seeing is refusing to be of help, change docs....
I can't drink it. Instant horribleness...So I drink tea and Caflib instead....
My doc has me taper down in blocks of 7 days. So I did 10 mg for 7 days, then 7.5 for seven days then 5 for 7 days and then freedom! Start my last week of this hell drug on tuesday *does dance*...
I get a third cup of the quick oats, 2/3 cups yogurt, sunflower seeds, and blueberries put it all together the night before and let it soak in the fridge then eat it in the morning. Or eggs and bacon...
it is kind of embarassing to talk about to people so in the end i'm not really surprised at the lack of public knowledge despite how many people have it......
It may have been mentioned here before but I just found this. It's a movie about having UC/Crohns Disease. Kinda interesting just to see what other people did/deal with it all....