Peter. I think your being unfair to InSoFla. I thought a forum was a place where people could share different experiences and help each other. InSoFla isn't saying that her advice is the only advice!...
Yes, I know the feeling, it's hard! I take both those vitamins...and cod liver oil, but I now eat a lot of oily fish, Mackerel and Sardines... It's difficult...hard not to start feeling sorry for...
Hi conquer. To be honest I felt a pain down there the day I got discharged from hospital last time, but presumed (hoped) it was just a hemmroid. They can go away on their own, but this was large and...
Enemas*...
Hi everyone. Not been on for a while. Unfortunately I've just come out of hospital...again. I developed a perianal hematoma and had to have surgery to remove it. I was just starting to feel better as...
Thanks InSoFla! I'm really gonna give this diet change a go, still going to take pred because I know I need it, going to have a serious chat with my Dictor when I next see him! Thanks everyone!...
Sorry, im on 8 tablets a day not 80 mg, so 40 mg taper. lol...
Hi Pirramimma Shocking to read how quickly it went from diagnosis to almost surgery. I came extremely close to surgery a few years ago. Surgery was also NOT an option for me, but everything was...
This message is to everyone. Can i just reiterate how much i appreciate you all taking time to offer your thoughts/help. I think forums like this and the people on them deserve a medal. I'm a bit...
Guategirl I can see your point of view. My problem is as i just mentioned, my Doctor gives me what he thinks and a care plan, and if i'm not happy with it then i'd have to request another Doctor...
InSoFla, Thanks for the advice. Your programme is interesteing. The difficult thing i'm finding with regrads to diet change is everybody seems different, which i can understand, but i mean some of...
Thanks Q. When I first found out, my girlfriend was pregnant with my first little boy! Because I still didn't realise what responsibility was in store for me, I adopted the head in the sand method!...
Thanks Ucfighter. Your right, I know she would understand, but I'm just scared of breaking down in front of her, stupid male pride I suppose!...
I will Q, I promise! I have to go and see him in the next 10 days and have a sigmoidoscopy, I will ask then! Thanks everyone, I mean it!...
Thanks Sheila lol Quincy, you may have done, again, I was probably too busy burying my head in the sand at the first sight of remission! It's so good to have people to speak to, I can't tell you all...
Yes Quincy I will try anything! I've never been prescribed any enemas or anything rectal off my consultant though?...
My thoughts exactly Sheila...thanks again, I'll let you know how I get on, much appreciated!...
Hi Quincy! I did take Pentasa but it didn't help, I just came to the conclusion, with trial and error, that I was relapsing when on meds as much as without! Aza gave me awful side effects, I'm really...
Sheila, I've just been contemplating trying a diet change, came across a book called "breaking the vicious cycle"...worth a try hey! Thanks...
Thanks, both of you, means a lot!...
Sorry, I know I'm feeling sorry for myself, it's just that I am really finding this relapse hard to deal with. Your right, I wasn't on any medication at all leading up to this relapse, because I had...
Hi Everyone. I've not been on for a while, and if I'm being honest I only come on when I'm not well, which I accept is selfish. I may have what's known has "bury your head in the sand syndrome". I...
Sorry Rio, i meant the fecal transplant bit?...
Thanks everyone! I know what u mean clicky!...
Hi Rio, hope u dont mind me asking, but what is that surgery, ive never heard of that? Stephen...
lmao, true!...
Hi Christine. I couldnt tell you if its the same, but i just googled 6mp, and it to is an immunosupressive drug, so it must be,lol! Ive been taking it 2 mths, and have been fine, but I dont know if...
Hi Qwerty. Sorry to hear that your going through such an awful time. It sounds very similar to myself. I was diagnosed with originally proctitis in 2004, and a quick course of pentas cleared it up....
Hi everyone. Was wondering if anyone has suffered side effects , or knows of anyone that has suffered side effects from Azathioprine. I'm not complaining, as I've been symptom free for a few months...
Good idea,lol, thanks Sue....
Hi everyone, not been on for a while. Was wondering if anyone has suffered side effects , or knows of anyone that has suffered side effects from Azathioprine. I'm not complaining, as I've been...
ruissarr, congratulations to you aswell, and good luck on both fronts. I know what you mean about worrying, its hard not to! Qwerty, i am also from the uk (Manchester?. Have you researched about the...
Thanks for both your replies, I'm glad the surgery seems to have gone well for u, maybe I will end up down that path, who knows. Haven't been feeling great recently, but nowhere near as bad as Iv'e...
Hi Anna, thanks for replying, strange as it sounds, hearing from someone who has/is going through the same as me, gives me some comfort. I know what you mean about plans and dreams etc. I feel...
summerstorm, thanks for your reply and your advice, it's much appreciated....
I'm new to this forum so any help/advice would be appreciated. I am 33 and was diagnosed with proctitis in 2004. After a relativley short course of Pentasa I was fine, and was fine until May 2009,...