I find broccoli, onions, brussel sprouts, tomatoes, corn, dairy products and anything that is rich does not always agree....
Call and/or visit your GI. That's why you have them....
So sorry about the pain and emergency surgery. But no more IBD!!!...
Don't settle for not being in remission. I have had ulcerative proctitis since 1983 (26 years) and have been in a bad flare since end of Jan, 2009. Had been using the same GI since the beginning. He...
Matt. so sorry you're not doing well. Have you thought about asking your doctor about IV's for nutrition? It might give your gut a break and help cut down on the inflammation. Maybe try rice,...
Dear Calm on the Outside, I'm so glad you are proactive and seeking information and help. I have had UC for almost 26 years and was diagnosed right after my first child was born. Most of the time I...
After speaking with people and comparing notes I think sometimes the degree and extent of IBD may not mean that it's worse than a milder form. I have ulcerative proctitis that has moved a bit into...
Holding Hope, I do feel for you. I am 56 years old and have had IBD for 25 years. Have been in and out of remission with the most recent long remission lasting 5 years. Have been in a flare-up for...
Mornings are horrible. After 11AM my problems are nothing like how they are from the time I wake up through late morning. If I don't sleep through the night I may have problems during the night but...
Am on colazol, Rowasa enemas and 6MP (just started that 10 days ago). Nothing is working so I put myself on a diet of my own; no dairy, no gluten no fruit or vegetables except for bananas and steamed...
Rio in Maryland, thanks. Did taking the med at night help w/ side effects?...
Have been on 6MP for 9 days and am really tired. I take it in the morning and think I may start taking it at night. Should I take a dose at night on the same day I took a morning dose or wait until...
I have had ulcerative proctitis for 25 years and was in remission for 5 years during one of the most stressful times in my life. Go figure. Just started 6MP (along w/ other meds) and am placing...
Look at www.rxpersonaluse.com Text of FDA Import Bulletin...
I think you should first find out whether Canadian pharmacies will accept a prescript ion from a dr in the US. If they will, get the prescript ion and do what needs to be done. Are you sure it's not...
atj31, no problem. I also can't figure out why this flare has been so long. Nothing seems to be helping and it's especially perplexing because I only(!) have ulcerative proctitis....
Prednisone worked for me before but I've been in a flare for 6 mos and went on it 2X w/o much help. If it helped I wouldn't think twice about taking it. This is not the way to live. Just started 6MP....
Hank, sorry about what you're going through. I have had ulcerative proctitis for 25 years and when it's flaring it's awful. Have been in a flare for 6 months (came on after I had a bad stomach flu)...
Thanks. I'm going to a nutritionist to see what she says. Have you tried that route?...
What were your side effects?...
Thanks UCdad. I'm going to a nutritionist next week to see if that will help. It's expensive but I am feeling awful and can't leave the house to go to work until 10AM every morning. Have you ever...
For anyone who has been on 6MP, how long does it take to start working? I know that the doctors say 3-6 months but would like to hear from any of you. Started about a week ago and am already...
In a flare-up and now have to wear a "diaper" in the morning. Hate how it makes me feel but at least it catches everything. I can't get to work in the morning until things calm down. But, the diaper...
Never heard of spinach and sunflower seeds . I have ulcerative proctitis and have been in a flare-up for 6 months. Have been on so many meds and just started 6MP. Tell me about this diet. Thanks....
If your GI doctor made you feel bad for seeing him switch. It's your body - take care of it....
The first 2 times I was on prednisone it knocked out the flare up. Side effects the first time were insomnia, craziness, hair loss... but the next 2 times the side effects were minimal. Unfortunately...
Get in to see a doctor to make sure nothing else is going on....
I don't get achey but I have attributed the fatigue to the loss of so much fluids, nutrients and blood. Also, the havoc the body goes through....
Will look at the book. Surprised you eat yogurt. Dairy products rip me up. I too am a foodie and love to cook and bake....
Thanks so much. I wish you all had some magic advice! Has anyone tried a restricted diet as prevention of bouts?...
This is my first chat and hope I'm doing it correctly. I am 56 years old and was diagnosed w/ ulcerative proctitis when I was 31. Have been on asacol, cortenemas, rowasa, mesalamine, prednisone......