Once approved by insurance the specialty pharmacy will ship by UPS. I can usually get a delivery within 2 days, if needs....
Yeah I've been on Cimzia now for 5 years so perhaps it's worth another discussion. Remicade gave me rigors and a fever during my second infusion. I do remember something about the differences between...
Haven't tried humira. My GI said he didn't have good results with humira when remicade doesn't help so they went straight to Cimzia. I asked if I have to go off Cimzia what would be next and the...
So frustrated with these flares. Long story short I've been on: Asacol/Lialda/Rowasa only to realize I can't tolerate them Went through imuran which gave me pancreatitis Had a bad reaction to...
I got pancreatitis from Azathioprine. The pain would come in the middle of the night, really sharp and intense in the middle of your chest just around the sternum. It would radiate to my back I would...
I had a bad reaction to Remicade, so we went to MTX. And thank God, it has worked. Been on it since June, and it took a while to kick in, but I've been feeling great for the last 5 months!...
Rigors and a fever. Not fun....
It took me I believe closer to 12 weeks for the methotrexate to start working, so give it some time if you can. After about 5 months I cut down from 1ml to .6ml, whch I believe is 15mg. That worked...
Okay, I've been on mtx for about 13 or 14 weeks, and I haven't had any side effects....other than after I finished the prednisone, decreased appetite, which I'm quite alright with. It does bother me...
I'm getting to the end too. In one year I've tried Asacaol, Imuran, Remicade, Lialda, Rowasa, and Methotrexate. I'm currently on methotrexate which after 9 weeks has not put me in remission. I think...
The saddest thing, is that they are FULLY capable of blocking out some of the side effects, but doing so would cost more money and take more time to release the drug and get it FDA approved, so they...
I am on methotrexate, have been for about 6 weeks now. Doctor said they do not monitor your liver with biopsies. They still take blood once a month to look at my LFTs, but he specifically said they...
On Monday I will give myself my 4th shot of methotrexate. I started to notice an improvement after about 3 weeks. However, I am still on a little bit of prednisone, dropped it to 15 mg today, so I...
I did not go back on the 6MP. When I got the pancreatitis I happened to just be getting a flare at the same time, so I didn't even know I had pancreatitis, I just thought this flare was different. I...
I've always taken all the prednisone first thing in the morning with breakfast, whether the dose was 60mg or 5 mg. Part of the reason you take it first thing in the morning is because cortisol levels...
I go to the Chron's Colitis Center associated with MGH, I see Dr. Korzenik and he is absolutely excellent. He works closesly with Dr. Sands--the two of them are the Co-Directors of the Chron's...
humira is not FDA approved for UC, so often times insurance will fight not to cover. However, your doctor maybe able to get around it and as my doctor put it, "squint their eyes and call it Chron's"....
I've had two colonoscopies done, and both times I fell asleep right away, but ended up waking up crying in pain somewhere during it. The two times I've had colonoscopies, I've also been in the middle...
Just started mtx last monday, but I'm not on pills, I'm on weekly injections. I'l let you know how it goes. However DR says it will take 2-12 weeks for it to kick in....I love those types of time...
AM---I'll keep you upto date on if there is an improvement. I've been feeling ok (not great, but better) lately, which is definately due to the prednisone I'm on, but I'm already on a taper schedule...
That's no good! I wonder if there is a correlation between it and your flare. I mean some people do worse on certain medications. I have to be honest that I don't have much faith in it because its...
Anyone try methotrexate for UC? Just started weekly injections yesterday. ....I've run through the Asacol, Rowasa, Imuran, Remicade options and for various reasons (pancreatitis, enzyme activity,...
Well, I guess I'll be going in next week to see the doctor and see what suggestions he has. I trust him, he's a fairly well known, good doctor at MGH, so whatever he suggests, whether it is surgery...
Thanks for the prayers and advice. It's been a stresful chain of events, and I just want to find something that works for me. I was diagnoses only in August 08, so in less than a year I've gone...
Well, we're running out of options for me. I've got pancolitis, and Asacol/rowasa did nothing, Imuran gave me pancreatitis, and I just had an adverse reaction to my second Remicade infusion two days...
I had a heating pad when I was in the hospital, and I actually just went out and got one today. I've been having this lower back pain, that I can only assume is related to this fun disease. But it...
Asacal you're suppossed to take about 30 minutes prior to eating. Prednisone should DEFINATELY be taken with food. My brother and sister are both pharmacists and got very angry with me when I told...
Thank you everyone for your quick responses. I am going to be seeing the GI doc that treated me while in the hospital--no way would I leave this matter to a PCP. My next appointment is on 9/26. He...
Hey Everyone, So I'm new to UC and of course new to this forum. My story in a nutshell: After feeling horrible for about 4 weeks, not being able to eat, vomitting, using the bathroom 15+ times a day,...