Thanks for that link Steff The info is so clear and not in doctor speak. I still have not contacted my GI about this flare, as it started over the weekend. It is Monday lunchtime here and I'm feeling...
Thanks Stef. I like you have 3 kids, but was only diagnosed after the birth of my second child. In hindsight I think I had UC after my first child, but as I got pregnant within 5 months again, I went...
Hi, I been on the colitis form for a few years but have been advised to come over here to ask my questions. I have been off my Humira injections while pregnant and everything was fine. I now have a 6...
thanks i'll try there...
Hi all, Have not been on in a while, as I was really well during my pregnancy. I came off Humira during the pregnancy as my GI didn't think it was needed. My third little girl was born 6 weeks ago...
Boxermom, I am so sorry to hear this. Was just logging on to see how you where before I head to bed. My heart is breaking for you. Was telling my husband about you last night and he to was saying you...
Oh Boxermom, so sorry to hear this. I really hope it is nothing serious. My best friend bled for the first four months of her first pregnancy and she has a healthy 6 year old boy now, and my sister...
Hi ladies, How is everyone doing. Have had internet problems so haven't been on for a few weeks. Well all is well with me apart from a sore throat which I think may be turning into a infection, so...
Stef17, to be honest I think it was a bit of both. He was unsure as he had not had a patience using Humira while pregnant, but I wanted to come off it to. I know the research is good and says there...
Thanks girls for your answers, I know there is a lot of conflicting information out there on all these drugs, guess I will just have to have the docs look into it for me as some drugs here are...
Hi Laura, I think the reason my GI took me off the Humira is the lack of research during pregnancy, so when I was so well he thought it wasn't worth the risk. I may have to go back on it if I start...
Hi I know i've a long way to go, but I breast feed both my last babies and would really like to feed this babs too. But I would also like to prepare myself for the possibility that the drug I need to...
Glad to hear things are better for you boxermom. This is my third baby, but first since my UC was diagnosed, so feels like being pregnant for the first time in some ways. Things seem to be going well...
How are all the pregnant ladies doing on here. Only 8 Weeks, but things seem to be ok so far. Just wondering how the rest of you are getting on. Boxermom how are you, how you getting on with the pred...
Got this after my third infusion, and doc said it could be due to remi or possible Arthritis. I had to come off it and within a few weeks the pain stop. Thankfully the remi had calmed the colitis...
Hi Boxermom, Glad you are starting to feel better and you have held onto your pregnancy. I am off the Humira now and hoping things will be ok. I am on the loo a little more, so trying to cut back on...
Hi All. I'm in Wexford. Haven't been on for a while as have been in a drug induced remission for the last 6 months or so. It took me a while to get there, and went through hell in the process, but...
Well spoke to the doc yesterday and since I am in remission at moment, albeit with the use of Humria, he has said I should try to go without it for the moment and continue to take the asacol. He said...
Hi Boxermom, Guess our situations have been alike all the way along, if I remember correctly we were diagnosed around the same time, July 2009, and our treatment was the same up to the humira, which...
Hi, Haven't been on for a while as I've been doing really well on the Humria, Not very good of me I know but sure I suppose most of us a bit like that. Well as the title says, I am now pregnant, and...
Wexford Ireland See i am only the third Irish member, and they other two are about as far away from me as they can get. :rolleyes:...
I use the pen too and find it very easy. I have not used the syringe, but I would imagine it is more difficult. My nurse said you really only need to use the syringe if you are very thin. Christine,...
Hi All Just wanted to fill you all in on my progress with the humria. I had my second injection today, and I am doing really well BM have slowed down to 1 or 2 a day which is fabulous for me. Also...
I think they try to get it between 4 and 6. I think if it is any higher than 6 then your immune system is too strong and it won't help your UC. I would ask again for a higher does, as you really need...
Well boxermom I really hope it keeps up for you. I am not great yesterday and today. I think the humira is starting to wear off. I am due an other injection in 4 days time, so I really hope that will...
if you are feeling a sore throat coming on get to your GP as soon as possible and get an antibiotic. You are run down, you are taking an immune suppressant. I felt it on Sat and waited till Mon to go...
Hi boxermom Sorry to hear you have seen little improvement yet. i have been doing good and started the same day as you. I have less b/m down to between 2 and 6 depending what i eat. also pain and...
Hi all Well things are going well. I am down to 1 - 3 bm per day. Still a lot of cramping, pain, urgency and gas. I have also caught a cold and throat infection which I am now on antibiotics for, but...
I got mine in my stomach too, so I guess it could be from the injection rather than the bug. Think I feel a little better today, which is 48 hours plus, but afraid to say it out loud and tempt faith,...
I am 5' and weight about 155 at the moment. I was 112 lbs when I got married 5 years ago, but I have had two kids since then and have long since given up any dreams about being anywhere near that...
Pam I am so sorry to read this. I really hope you can hold out long enough for the next surgery. It is good to hear it from both sides, and good to be aware of the down falls of surgery. I guess we...
Not sure why I only got two shots to begin with, but that is what the GI prescribed. Not noticing any affect yet, but I think I have a touch of a tummy bug that the kids had, so have not been eating...
Hi Boxermum Started today too. Hope all goes well for you. GI told me it could take affect with in days, or it might take a few more injections. I only had two today, 80 mg, and I will take one 40mg...
Try taking some omega 3 supplements, I take at least 2 a day and feel like much better now. I am still not back to full energy levels, but I am hoping once I start humira next week i will find my...
Don't know about the mouse urine, but it does contain mouse protein. it is the mouse protein that your body can create antibodies against it you come off it, so that is why some people can't come off...
Thanks for the replies. KrissyUC, I hope it works for me on it's own as prednisone dose nothing for me but make me eat more. I was on it for months last year and I gained about 30 pounds in a matter...
Hi all I am starting Humria next week and I am just looking for some who has been on this and had success or no on it. I have been on remicade, which they thought was giving me joint pains so they...
This happen to me and when i told my GI he took me off the remicade to see if the pain was from that or from the UC. The only difference was I was only on my third infusion when the pains started....
Hi sonotgood, I was diagnosed about 11 months after my second baby, but had been in a bad way since the birth of my first 13 months before her. By the time I eventually went to my doc, I was so low...
I found the Pred withdrawals bad to, to the point that my GI thought I had RA too. I was getting my Omega 3 in the Health food shop one day and I got talking to the assistant. She suggested taking...
Oh i feel your pain. I am the same at the minute and feel so down too. I get no improvement with Ascol or pred. I was put on remicade and was on my way to recovery, but I told the doc about the aches...
Hi all I am just starting a flare and I am hoping not to go back on the pred to get through this. what advice can you give me to help me avoid the pred, or am I just fooling myself that it is...
I would have to agreed with support system. It is the only way you will manage if you are in a really bad flare. I am just starting one now, and I am trying to get through it without going back on...
I had the joint pain before I was diagnosed, but it was only during a remi infusion I mentioned to the nurse that i was getting it and asked if it could be a withdrawal symptom of coming off the...
don't know about the RA yet, will have to go for test for it now I would say. God I feel like I am falling apart her. First the UC, which comes with so many problems, now possible RA. FFS I will only...
Thanks Burli, feel a little better for knowing someone has done it. Will just have to wait till next week and see what GI says ig...
Hi all, Have not been on here for a while. I was getting remi infusions, and they were working really well, but I was getting a lot of pain, so my GI decided to stop it to see if it was the remi, or...
It is also symptom of Rheumatoid Arthristis which goes hand in hand for a lot of people with UC. They are both Immune system disorders. Speak to your speciallist and tell them about your pains. you...
Hi all. I was diagnosed with UC in July this year. tried all drugs available and eventually Remicade worked. still waiting for full remission, but can feel I am getting better. I have been getting...
I have just finished a course of Pred, and I am finally getting back to a normal eating routine. I could eat all around me when on the Pred. I went from being 10 stone, lost 2 stone due to a really...