I went into some sort of stomach issue last year from shoveling snow. I think I got so stressed out with having to shovel and then doing it and then after, regretting it all and then the body...
I had to stop Remicade because it gave me a major reaction. I am like what CrohnsBones has and it's scary. It was for me. I continued to be on it for a few months after I began to have swelling in h...
I too was terrified of the side effects of this drug. They figure out your dose by your weight. What you read about the effects and it being an anti rejection med for transplants is related to...
I was on Remicade for almost two years. I began to get swelling in my joints and all around my body. I could barely walk or use my hands. Any movement/bump caused me bruising and muscle swelling. I...
Yes, just hold the needle end into your skin for ten seconds. One click of the push down button is all you need there. You can also double check in the window of the pen to see if the plunger is in...
Hmmm. Trying to figure out what happened here. When I use my pens, (well, husband injects me) you don't have to hold down the pen button. You press it and that starts the needle going in and it...
I've been on Sprintec and Previfem and have been ok....
I have a 30 min drive to work everyday. I wake up early to make sure I go enough before leaving but I almost daily have anxiety about the drive and the "what if". I've been trying my hardest to get...
I don't drink alcohol anymore. I did when I turned 21 but I can count the number of drinks I've had in the last 6 years on one hand....
I had a pancreatitis breakout from Lialda. The pain generally prevents you from eating. You get your food in your stomach and you either throw it back up or your eyes feel like they're going to pop...
My advice is to hang in there and work it out. Talk as much as you can and don't let things build up. Let him know that he is NOT a burden and never will be. You are in this together and you will...
Also, I had no arthritis or any type of symptoms like this until taking Remicade for as long as I did. I have had Crohn's since December 2006....
Avalove, you sound exactly like me. I was on Remicade from August 2011 to August 2013. I developed awful joint pain and random swelling as of April 2013. I continued on with the Remicade even though...
I always get worse around my period, and this is even with remission. Things just go haywire the week before but then return to normal the day after it stops. I just try to work through it the best I...
First of all, do not be scared. I agree with bringing a smart phone or tablet, and generally something to do. It can get boring otherwise. Prepare yourself for the IV part. I hate that part but I'm...
- What's the process? Do they give you a sedative etc before your first infusion? Before my infusions, I take 2 Tylenol (before I leave work) and then when I get in the infusion room, I am given one...
I went through a bit of pancreatitis a couple years ago. Absolute worst pain I ever had. It was due to the Lialda I was taking at the time, so my doctor instructed I reduce my dose. I did that, and...
I get tired that same day of the infusion and end up being a waste of space for the weekend (I get them on Fridays)...that's if I don't feel like getting motivated. I've found that after this most...
It was instant for me. I started taking Remicade the last week of July this year. I'm halfway through my first 8 week stretch of time...still feeling good. While it was instant for me (that day of...
Yes, I have a 40hr/week job. I've been at law firms since I graduated college in 2009/2010, so I've always been in the 'grown up' work force since getting Crohn's. My employers have always been...
Oh my. I'm not sure on it developing that fast.. I got pancreatitis from Lialda. After the initial attack, I was still taking the Lialda for at least another year. I was also taking Imuran for about...
Glad you made it!! For sure get a note next time. If that even happens....
I worked at a courthouse for a few months, IN the jury unit. I was also a clerk in court for certain sessions. Get a note next time...this is to anyone who is feeling bad with their disease. It's not...
I just started last month. I just get tired after the infusion. That's about it. It made me feel better the next day too....major awesomeness. I hope it works well for you....
Never checked for it, but I know that when I flare, I tend to go to the bathroom a lot, both. I drink a ton of water during the day, and then again when I get home. The nightly thing is most likely...
I've been on Imuran for a while now and it helped me through a lot. I got over a year of remission with it. Unfortunately, my diagnosis changed, some of my other meds changed, and I flared...so...
Thank you all for the Remicade stories. It makes me feel a lot better about it. I go in for another loading dose next Friday. I too feel like it's a bit of a waste of time, however, I am getting...
No infections for me, but I have to go ALL THE TIME. Mostly at night though. =/ I haven't figured that one out. It beats getting up at night to go #2 though. I noticed this a while ago, before I...
I'm surprised I'm not tired. I was yesterday. I feel good though, because I wasn't up going to the bathroom all night like I have been all month. I feel like I can finally eat something. YAY!...
I figure it's time I introduce myself here. I've been lurking on the Crohn's board since May, after I ended up in the ER with a badly inflamed part of my intestine. (I was stubborn, and waited...
I'm starting Remicade on Friday and I've been on Imuran for a while, and my doc intends to keep me on it for about a year into the infusions. I'm still torn on doing Remicade. I just don't know....
I've been in Imuran for a couple years now. I've had a rash on each of my wrists more than a few times but I never stopped taking it. It has been working for me.....each time, the rash went away...
I've been taking it for a couple years. The only things I've experienced in the last 10 months is a rash on my wrists...literally wraps around like an ugly red bracelet. Those are signs of an...
Constipation? Apple juice! A banana and apple juice after your last meal of the day...works like a charm. (I've never been constipated, but, apple juice really gets things moving!) :smile:...
I'm not sure if I'd want an antispasmatic. I've had this gastritis and/or ulcer brewing in my stomach right now too, and theres soooo much going on in that area. I go to the doc next Wednesday....
I also want to add that sometimes the 'pulling' is so bad that I can't bend my body back or stand up straight comfortably....
YES. I'm having that right now. My period is supposed to start this week. I've had the worst time this past couple weeks in the time leading up until now. I also have this pulling, urge to pee, and...
I've been on Imuran for almost 2 years. When I started, it was because I couldn't stop a flare (tiny one) and the Lialda wasn't calming it down. I began Imuran and felt better after a month. That was...
If you have good insurance and she needs to go on a steroid, ask for Entocort. It still has scary side effects, but it's taken in the body differently than Prednisone and doesn't cause the scary on...
I usually take Excedrin, but only if I can catch it in time. If not, then I'm screwed. My boyfriend takes Imitrex (no gut problems at all) and he says it makes him dizzy, but it mostly works....
Don't stop until you get a response from the doctors. As others have said, he might need surgery if the meds aren't working. :-( If there's no improvement...something needs to be done SOON. Good luck....
This seems weird to me that your doc wants to put you on Imuran when nothing seems to really be 'wrong.' When I went on Imuran, it was because the Lialda (higher dose Asacol) wasn't working, and I...
Get your pancreatic enzymes and pancreas checked out...just to make sure. I got medication induced pancreatitis (from Lialda, which I still take...) last August and I couldn't eat anything without...
I drink the juice when I have severe stomach pain from gastritis or something like that. It doesn't really help all the way down the line of my colon though......
Congratulations! That's awesome. It IS possible. My cousin is a surgeon now, and all through her schooling and residency she was battling UC. She recently found out she has CD instead, but she's...
Oh man. MOA! I live close to there, sort of. I'm a couple hours north. I've never understood the fascination of going to the bathroom in packs...even when I was 'healthy' I never did it in high...
Could be allergies...try buying a new hypoallergenic pillow. That worked for me. I had pink eye FOUR TIMES in April, and when I bought a new pillow, it was done... I'm crossing my fingers that this...
I've been on Imuran (azathioprine) for almost 1 1/2 years now. I still have mild flares (it's impossible to get rid of the ones that go with my menstrual cycle =/ ). I wouldn't take all your pills at...
If you find relief in things other than Imuran I would go for it, obviously. I've been taking Imuran (azathioprine) for nearly a year now and it's been my absolute life saver. I feel 'normal' again...
All I can comment on is that my symptoms get pretty bad around my period. I thought it would stop when I started Imuran and when that started working....not quite. I'm not as sick as I have gotten...