Delta, He told me that if I weren't going on the cholesterol medicine, it would also be an option to discontinue the Imuran as I have been doing great for so long. Imuran is something you can start...
Sickly, I see a GI doc in a major medical center (the Cleveland Clinic) that is involved in many clinical trials of IBD patients. I was a Remicaide patient for about 9 months a few years ago and he...
Quincy, I am not having a flare right now. In the past I have used 5 ASA enemas and suppositories (not both @ the same time, thankfully!) :) I really have had no symptoms of my UC for 2 years. I was...
Dude... I don't think I said that he said I was "cured" of my UC. He just was implying that if I do have a flare, I am not out of options... Jen...
MyUC, Thanks for your reply. I am taking Apriso at the maximum dose, which is one of the delayed release 5 ASA drugs (like Asacol HD and Lialda). I am only on 100 mgs of Imuran / Azathioprine. I have...
Hi all! Haven't been on the forum in quite a while, but I thought you all would be able to answer a question for me. I have been in remission for about 2 years now. Doing wonderfully. My cholesterol...
I guess I am, too, one of the stupid ones as I have taken both Anti TNF medications (Remicade) and Imuran... I guess right now I would rather be taking these meds than being without my colon and...
OK, I am glad...Thanks for easing my mind a bit...I was thinking that this was even an INCREASED risk than what I had been told about before... Be well all! Jen O...
This is in specific reference to UC and CD Patients......
I don't know if links are allowed but here it is: http://www.fda.gov/Drugs/DrugSafety/ucm250913.htm [04-14-2011] The U.S. Food and Drug Administration (FDA) is informing the public that it continues...
Hi all, I haven't been on the board in a long time as I have been enjoying a wonderfully long remission. I received an e-mail on Friday from the FDA (how they knew to get in touch with me, I don't...
MDbuckeye, I was in a similar place as you when I was first diagnosed. I was in the hospital with unrelenting bloody D. The gastro kept coming by and introduced me to the surgeon each day. I didn't...
freckles, I am a physical therapist and I have quite an interest in osteoporosis / osteopenia. Most of my patient population has been diagnosed with bone health issues. Personally I have been...
MyUC, Thanks for the advice. I will for sure try it at night, if it is just that simple it would be wonderful! Stupid question, then...I already took my usual 6:30 am dose today. Do I wait all the...
MyUC, CMP is a "Complete Metabolic Panel." In it is the liver function tests. Everything there has been good. My Hemaglobin was 13.3 last time, which is in the middle range of normal. I just looked...
Hi all, I hope you are all well! I have a question for everyone on Imuran / Azathioprine. I have been on 100 mgs for about a year. I have been technically in remission since July 2009 when I last...
Fruitgirl, congrats on your remission! And congrats on your Forum Moderator status, too...I obviously haven't been on in ages... I, too, am amazed at my UC remission. I will say that mine started in...
Fruitgirl, I knew you would respond! Hope all is well with you. I was looking for a number to call Salix. I don't have my card with me right now, I'll have to look on the back of mine when I get...
Hi all! I have not been hanging around much lately as all has been well with me. I have a question, though, for those of you on Apriso and using the savings card. I am getting a 3 month supply now...
Hi all! I haven't been on in a long time. My UC is doing GREAT. My problem lately, though, has been hip pain. I had asked my PCP to take a look at it about 4 months ago, she said (of course) to see...
I've been taking Azathioprine / Imuran for like 4 months now. I had to have my blood drawn every 2 weeks until I visited with my GI last week. I had to do the CMP and CBC blood tests to make sure...
I haven't been on in a long time (I've been doing great), but I just had to get on and vent to you guys. At work today we had ice cream cake to celebrate a late "Boss's Day" One of the women said to...
Chrstne, I don't think it was the Apiso that got me out of my most recent flare (had to use the evil Pred) but id has been great. Fruitgirl and I always agree that the once daily dosing is the best...
Hey everyone! I have not been on the forum for the past couple of months as I have been feeling GREAT! My meds seem to be working wonderfully. Just a question: I have noticed these tiny little...
I've heard Dr. Roizen (Dr. Oz's partner is the YOU books and Realage.com) speak before. He really likes to talk about poop, too. He says "your poop should come out like Greg Louganis" (in case you...
Maybe try to get into a Physical Therapist. There's gotta be one closer to you than your GI. Most states you can "self refer" to a PT without a doctor's order. Check with your insurance first,...
I was on Remi for about 6 months. I went into an awful flare a couple of days after an infusion. Bloody D 20+ times per day. Abdominal Pain, etc. My doc drew blood and sent it for "Prometheus"...
My 5 year old daughter tested positive for the Swine Flu in August. I was worried as heck that I would get it. I never got one sniffle or body ache. Her pediatrician said that even though her and I...
I love my job! I'm a physical therapist. He could go into that and still be in the medical field. Not paid as much as a doctor, of course! Almost as much education, though, now-a-days. You need to be...
Disney, You didn't waste the $50.00. Here is how I get my money: 1. Photocopy the front of your card (it has your "group number" on it) 2. Photocopy the "tax receipt" from the pharmacy (save the copy...
Multivitamin / Mineral Supplement one per day- Kirkland brand from Costco (I've always taken a multivitamin) 1000 mgs Flaxseed Oil 3 times per day - NatureMade from Costco (my high cholesterol,...
Risan, A low residue diet is essentially a low fiber diet. I (and a lot of people on this forum) find it helpful when in a flare and coming out of one. You can GRADUALLY re-introduce the fiber back...
Subrew, I am in Cleveland and see a doctor at the Cleveland Clinic's "IBD Center" his name is Dr. Brett Lashner. He is the Director is the IBD Center. As he specializes in people with inflammatory...
I hope it keeps working for you. I wish it had for me. Jen O...
I use the Nuvaring for birth control. I had my annual exam a few months ago and told my OB / GYN that I had more UC symptoms when the ring was "out". She told me that I could leave it in for 4 weeks...
Pam, It sounds really like you are recently diagnosed. I was VERY sick one year ago when I was diagnosed with UC and skipped straight to Remi. I never tried Imuran or 6MP, etc. When the remi stopped...
Hey all, I am on 100 mgs of Azathioprine (a "cousin" of 6MP). A couple of weeks back, my daughter (5 years old) was sick with D, then a high fever and body aches. I posted on here that I was worried...
I saw one of those commercials on TV yesterday where the loud lawyers are saying "have you ever been on the drug accutane and then developed Ulcerative Colitis? Then call 1-800-LAW-FIRM" or whatever...
Wow, I'll have to look online. I have been using what I thought was cheap Rite Aid brand (seems to be helping). It is $14 for 8 days. $17 for 200 sounds much better! Is that one pill per day?...
I second fruitgirl's post. I have also been on it about 2 months, the transition from Asacol to Apriso was seamless. It is about twice as expensive, but fruitgirl told me about the "apriso savings...
I, too, heard the stats that Probiotic quoted on the news this morning. Last flu season I was on Remi and I was afraid of the flu shot. As a healthcare worker, I am exposed to all sorts of stuff....
You guys will NEVER guess what the final decision on this one was: So yesterday she woke up with a sore throat and an awful cough. She was achy and only wanted to be held. I took her into the doctor...
Thanks guys for all of your advice. Adam, you are always making things better with your funny comments! :) The car trip test would be much cheaper than a colonoscopy! :) Her history: she was born...
I lost 3/4 of my hair! GI, PCP, Endocrinologist did all kinds of tests. They blamed it on the "stress from UC" and Pred. I was on Remi and Asacol at the same time, too. Was probably a combination of...
I have been on azathioprine / Imuran for about 2 months now. My big complaint is fatigue. Before I was on Pred and I was lucky if I slept 3 hours a day. Now I could sleep 12 and want to sleep more....
I do have to chime in, too. I am one of the other few on Apriso here. I will second Fruitgirl's opinion. The once-daily dosing is wonderful. And I agree with her, too, in that it has allowed me to be...
I don't really know what to do. The poor kid has been uncomfortable for a week, saying her belly hurts. She has had soft stools / D for 3 or 4 times a day for that time, too. No blood that I can see....
I told my OBGYN that my period made my UC worse. I use the Nuvaring. She told me that I could leave it in for 4 weeks instead of the usual 3 weeks and then take it out and put a new one right back...
I had been beginning to some symptoms of a flare, so my doc moved my infusion up. Then I went into an awful flare literally days after that infusion. I was on the 5 mgs per kg dose. My doctor did a...
Oh, I LOVE Mexican food, too. I eat it and the only way I pay for it is on the scale...luckily it does NOTHING to my UC. My fun 5 year old (and her softball, ballet lessons, girl scout meetings, etc)...