I wish I could help but I'm in the same boat! No meds work for me either...Doc has recommended surgery and I'm supossed to give him an answer on Monday as to what sugeon I want to be referred...
thanks for all the info! I am still researching my options... When I was in my last bad flare...just two months ago...I was ready to have surgery to feel better but now that it is my last option it's...
So, I started Remicade in September. I've completed my loading dose and am scheduled for my first 8wk treatment the end of December. I saw my GI today and told him that I have not seen much...
I'm Shannon and was dx'd with ulcerative proctitis in 2003, three years after I stopped smoking! It has now progressed to UC affecting my entire left side. I, ironicially, work for a Colorectal...
:crossing my fingers:: It's taken a lot for my GI to talk me into trying the Remi but with this flare I think I'm finally ready!...
Not to make light of your situation...but I would have a party if I had a formed stool! I feel the same way which is why I've decided to stop fighting my GI and go for the Remicade! I start on 9/22...
Today I made my appointment to start Remicade on 9/22 and miraculously I have not much cramping and not as many trips to the bathroom... /community/emoticons/confused.gif Could my UC be running...
Glad the Remi has helped you, Carol. I am really glad I found this board! I was walking around aimlessly with no idea of what I was going to do but I think I'm more prepared to make a decision now!...
Sue, that's what made me want the pouch over the Remicade...NORMALCY!!!! I dont know that one has that with having infusions every 8 weeks and having to schedule your life around your infusions but...
"take my laptop into the bathroom just to be able to complete a post without stopping to go." I do this all the time!!...
Judilyn You dont know how good that makes me feel! I heard horror stories about the side effects and getting lupus, lymphoma, never feeling quite right, the Remi not working after so many years....
Suebear, Sounds like we might have been separated at birth! I am down to Remicade or surgery. My boss, a colorectal surgeon, tells me I'm looking at things all wrong and that I should be looking at...
Christine, I've done 6MP as well. Dropped my WBC so low and suppressed my bone marrow that I couldnt take it. While on it I got shingles twice and what they told me could have been swine flu but I...
I've gotten a lot of reading done! I'm up to a novel a week! Plus the mag subscriptions that I get! I would rather read less though......
Hey everyone! Never been here before but dont know where else to turn. I am a medical assistant for a Colon & Rectal Surgeon (ironically) I was diagnosed with UC in 2003 and it has gotten...