I drink both red and white wine regularly, and vodka tonics on special occasions. No problem with it at all. If I could find what causes, exacerbates ,or "cures" this UC, Id do it! After almost 20...
I had taken prednisone many times over the years (diagnosed 1991), and it has saved me many times. However, after so many times on 40- 60 mgs (once even 80 for a few weeks, yikes!), I had sworn off...
What timing! I had my scope today... last time I went overboard and had eggs, pancakes, and the works at a diner. Wound up with such bad heartburn that I had to call my doctor cuz' i was sure it was...
I had a pretty severe flare come on in late august, and started on 40 mgs of pred. Well, I immediately felt awful side effects and did not have the patience to wait for results (I have a long history...
Hi, I was hit with a terrible flare in August, after a long remission. I went on 40 mg of pred., and also increased my 6MP and azulfidine dosage. That didn't help and I felt just awful. My doc then...
Yup, that always happens to me as I start to heal and have more normal BM's. Because of the UC, I have developed an incredibly high tolerance for pain, but I have also vomited from straining as I...
I was diagnosed in 1991. I ALWAYS get the flu shot, and have had no problems with it and never get the flu. That is super since I work in a large high school and am always around sniffling students!...
Nope, never had any side effects at all steroid enema's. I only wished that i could always use them instead of the oral prodnisone! I have, by the way, been doing pretty well on rowasa enema's this...
who likes turtles?...
Hi KAT, I just got home from my Dr, and he is proposing Humira (instead of Remicaide) if my current flare doesn't turn around. I was diagnosed 18 years ago, and have been on a roller coaster of meds...
Hi all, My name is teresa (treej), and I live in northern NJ. I have been on and off the forum for years, I was diagnosed in early 90's with UC. I just turned 50, HOW DID THAT HAPPEN?! I am happily...
My heart is breaking for you all, it is unthinkable that your little girl has to deal with this! I want to share that I have a nephew who too suffered with UC as a boy. I recall visiting him in NYC...
I am almost afraid to respond to this, but.... I had tried the nocotine patch a few years ago,and got short term improvement. After reviewing my meds with DRS at Mt Sainai In NYC, they "quietly"...
Simply put.... I HATE prednisone...agggh! I feel your pain....
My doc has me drop by 5 every ten days til I get to 20, then even slower. I don't always follow it to the day, but you must be careful... You can relapse, and also I have found that if ya rush off...
SO sorry for your relapse! I too, had been on maintenance dose of 50 of 6MP(dr wanted 75, but i was SO healthy I dropped last year). I had ejoyed a perfect remission for over two and 1/2 years. Then,...
Christine, Thanks for the reminder about checking my white count. I had become so confident and had being doing do well on th 6MP for maintenance, that I slacked off on the lab work. I cannot wait to...
Yes, I too am on 40 mgs/Pred. with no positive results after two weeks... Also, I am having a terrible time with he steroid this time- I HATE the way I feel on it. After so many years of problems...
Hi there potoato, you are singin' my sad song! I am back on pred. (40 mgs) and so far still in a pretty severe flare up. I am functioning, but that's about it! I feel that in just two weeks time my...
Hi all, I too, am a long time sufferer... diagnosed way back in 1991. I had a terrible time over the years; and was close to surgery at several points.. I never did try remicaide; that was my next...
UC has taught me to embrace the good days, and to never take our health for granted. My licence plate is CCC2DAY, I relish every day of good health. When in a flare up , I take the challenge head on,...
I have unfortunately found that when I didn't get the side effects from pred., well, those were the times that it wasn't working on me! I am on 40 now, ans feeling pretty wired. I have no visible...
Hi again, GEEEZE, I am so sorry to have opened up that last controversy... I had no idea! I will not mention the " S " word again, I was just reaching out for answers (aren't we all). Anyway... we...
I've been posting re: my recent flare up after almost three years of perfect HEALTH. I am back on 40 pred. and 100 6MP to try to get under control. During a particularly bad period in 2003 I had used...
Thanks, I will hang in there. I feel somewhast better after 9 days on 40mgs. ..bleeding a lot still in the AM but quieter in the afternoons and evenings. I've been taking 20 in the morning and the...
I do drink... and had been in remission for a good run! I am flaring rather badly right now... on pred. and 6MP. Today my husband and I took a drive to a winery in NY for lunch. Well, after being...
Hi again, Well, I've been back on Pred. 40 mgs for a week now. I had started with an awful flare after almost three years of complete remission (big bummer!). Anyway, I am not responding yet, and am...
Hi there, I am back on oral pred. after a wonderful 2 1/2 year complete remission. This current flare up seemingly came from nowhere! I began bleeding heavily last week and began 40 mgs. of...
Thank you for the kind and empathetic comments...I am hanging in there! Just made appt with Dr for tomorrow; in the meantime I am keepin' positive. We all have our ups and downs, and this kind of...
Yes, I had been on 6MP, only because my doctors warned me not to be too cavalier. I had been gently warned that this could come back, despite how terrific I felt. I was directed to take no less than...
Well, I had been symptom free since spring 2007, and recently have feeling healthier than ever ("cured!?"). I turned 50 (yikes) this summer, and had been diagnosed with UC way back in 1993. I have...