I use aloe vera as a concentrate, diluted by a fruit tea. I do not know if it works, but it is a recommended healing and anti inflammatory agent. My main medication is LDN 4.5mg. I put my total...
UPDATE: Update. Apart from a minor blip over Christmas 2009 I have remained symptom-free. I had two weeks of windiness and bloating with a trace of blood. The blip was, I feel, caused by a response...
I'm not sure how long you have had since DX. I'm guessing January. This is not long, although it may feel like an eternity. You have not finished with the drug route yet. Going by what you are saying...
Good luck with your drug supply. Most of these drugs are designed to work at their best after quite a period of ingestion. Lialda is one of those, giving good results after 8 weeks of ingesting 4 a...
I agree with Fruitgirl. Also, once in remission you might consider LDN. This is a symptom-free low-cost application that could be particularly good for maintaining remission....
I would agree with SongLady. Hang on for a few days. Not many common bugs will go beyond that. After that see your doctor anyway, if you still have symptoms. Could be a flare or could be a tenacious...
Remission is hard to pin down because it is hard to define what is normal for you. For me, to have 1 BM every 2 days is normal. My stools are normally similar in shape to deer droppings, (I KID thee...
I have been on LDN 4.5mg for 3 months now. Apart from a little joint ache in a big toe and an occasional stiff back, I have had no UC symptoms. Indeed my joint stiffness has subsided. I have kept up...
I guess this just goes to show how different we all are. Sometimes LDN can make symptoms worse briefly. It boosts the helper T-cells, the ones that are attacking you, and the suppressor T-cells, the...
I'm feeling pretty chipper at the moment. It is over a month since I came off Azathioprine and started taking LDN. (4.5mg nightly). I have no UC symptoms apart from some residual joint ache. This is...
Yup, I get joint ache, in my toes and particularly in my back. However this eases after I have been up and about for an hour. This is currently my only UC symptom. I am hoping, now that I have...
Yes, I use Aloe Vera daily in gel form. This I use sparingly, diluted in a cup of herbal tea . I get no adverse effects / sensations from it. However I don't just depend on this particular...
On Saturday I began my LDN treatment for Ulcerative Colitis. At this point I am full of hope that I will keep my UC under control with LDN, a variety of complementary supplements, a good diet,...
I am just about to try LDN. I live in Coventry, UK. I will be guided through by Dr. Bob Lawrence of South Wales. Just like you I am concerned by the dangerous nature of Azathioprine even though my...
I am just about to embark on LDN, under the guidance of Bob Lawrence, here in the UK. I have been on Azathioprine 150 mg. The results are outstanding with joint ache being the only remaining sign of...
I am very interested in LDN as my medications, so far, have only worked just about well enough to help me continue with work. Surgery looms!! Does anyone know what the status is with LDN in the UK? I...
Thanks Princesa I will look up those probiotics over here. Gargamel, Until a few days ago my symptoms included about 10 visits to the loo a day with increasing blood, mucus, gripes, wind and general...
Rasaskank, Yes it seems that UK surgeons are trigger happy. We can cut, so we will. For the last few days I have been feeling great. I have started taking TNT, Total Nutrition Today, a high fibre...
Miss3, Thanks for the LDN link. That looks quite exciting. I assume it has been approved here in the UK because there is a pharmisist producing it in Glasgow, Scotland. I will ask my consultant to...
Princesa, you asked me what pro biotic I was on. I have only ever used off the shelf supermarket pro biotics and live plain yogurt, such as Danone. My GP, (General Practitioner) , said that the NHS...
Thank you all for your input. I was shaken by the suggestion of surgery at such an early stage. Sue, I know it is different for everybody, but I have read that a J or W Pouch can still leave you...
Yes I am of Indian descent . I was born in the Punjab but moved to the UK when I was only 3. My diet, recently has been rather English, with just the occasional Punjabi dish. My husband is English. I...
Thanks Princessa. I should put these points in my profile. I have been using probiotics, Aloe Vera, peppermint oil, a low GI diet, high roughage and a protein supplement since DX. I have no idea how...
I spoke to my consultant today. She told me that I should be prepared for surgery! I have been on 100 mg Azathioprine since my bad reaction to Asachol. Also my prednisone has been tapered off. My...
Crikey! Did I read this right? Some rural communities in East Asia have very little ulcerative colitis because of the prevalence of parasites such as whip worm. The parasite modifies the local immune...
Quincy, Thanks for your reply. My doc did track my liver enzymes after I came off asacol. The levels reduced to near normal, but increased on the last test. I was told not to have alcohol so as as...
I was diagnosed with severe UC after a colonoscopy in September. I was prescribed Prednisolone and Asacol. The prednisolone was to be reduced over a period of time. The improvement was pretty quick...