First infusion yesterday. It might as well have been water for the lack of immediate effects, in contrast to Remicade which wiped me out. Entyvio takes 30 mins to mix, so my nurse lets me text her 30...
I've had good experience with it. I have stage 4 colitis and the doctor said that if the Remicade didn't work then it would probably be surgery so needless to say I was extremely pleased that it...
A few months after I started Remicade infusions, I noticed that my hair was changing. At first I was alarmed since it seems like it was thinning out due to hair loss. The next time I went to my...
Just a quick update on this thread to say that I've been in remission now for several months thanks to Remecaid. For me, it looks like Remecaid is the wonder drug that a lot of people have been...
I thought I'd provide another update on my condition, which can be summarized as "The Curse of C-Diff". This horrible infection almost put me in hospital for a third time in two months. Probably two...
I've had two Remecaid infusions, but a major setback with a C Diff infection shortly after the first one made it impossible to determine whether there was an immediate positive effect. I'm trying to...
I had several very bad night sweats when I was at the worst of my first flare, and this was before I was on Pred. The first time it was so bad that I actually thought I had urinated in my sleep....
I really appreciate the words of sympathy, it sounds like you've had a much tougher time than me and I have much respect for your endurance and state of mind going into surgery. I wish you all the...
Mona, I've been on Pred or IV steroids now for maybe 6 weeks, so I'm hoping that side-effects are some way off yet. Of course if I can't taper off properly then I'll start getting worried about...
Hello everyone, I thought I'd provide an update on my situation - bad news but ultimately good news! Once I got out of hospital for my initial flare, I seemed to be recovering, but then started a...
I think you're right on the MSG, I've suspected that I'm sensitive to this before. I'll definitely be avoiding those seasoning packets. On fiber, I know that soluble fiber is important, I just don't...
I'm slowly recovering from a very bad pan-colitis flare, and since it was my first I'm still discovering which foods cause me problems. Things had been going pretty well, my wife is a talented cook...
Rdm - To be fair to my doctor (who is a colon & rectal surgeon) he did do flexible sigmoid scopes right at the start, and a couple more times over the years, which as far as they can showed that the...
I've been reading this forum for a few days, and it is certainly the most active and supportive community that I've found so far. After reading a lot of good material, I felt that I could now create...