Adam Chefietz BIDMC...
Daniel Present is perhaps the top IBD man in the states (well at least top 5). He is at Mount Sinai. Good luck!...
It couldn't hurt to try. It worked wonders for me in a very short time. Just make sure you start at a very low dose and work your way up weekly to give your body time to adapt....
I take it once a day after dinner. It is the vitaminshoppe brand. It says I can go up to 3 times a day but not sure If it is worth it for me since I feel so much better from 1 dose a day. It only...
Update: Fiber is fantastic. I'm taking 1 teaspoon of psyllium husk powder mixed with juice after dinner. I have to say, this addition has made the fastest, biggest difference (including perscription...
Thank you for the replies. So do people notice a difference between the powder and pills? I like the idea of just carrying the pills around if I'm out. Thanks...
I recently bought psyllium husk powder as I decided to give fiber a shot. In the mornings I usually have multiple urgent movements but then do not go throughout the day. I was hoping the fiber would...
Thank you for all the info. That helps a lot. Going to get scoped on Thursday so we'll see what the GI has to say. Enjoy Michigan Johnny! I miss it!...
Thanks again for the info. It sounds like many of you maintain a normal life. The idea of having control sounds like a dream come true. Just a few more questions if you don't mind: 1) After the...
Thank you. I guess regarding the pouch, do you still find the mornings difficult? How long does it take to have a movement? How often do you need to use the bathroom ASAP? I'm sure these things vary...
Thanks guys. You've given me a lot to think about. In some ways it does seem like a crap shoot. Maybe i'd be going 3x a day or maybe it would be 10. I may or may not still worry about bathrooms. I...
Can I ask if there is anything you don't like about it and in what ways you don't feel like a normal person? How long after surgery did it take to feel "normal" Thanks again...
Thanks Sue, you make it sound like a dream :)...
Thank you all for your wonderful replies. I will talk to my GI about surgery the next appt. I am particularly curious about the J-pouch. If it does fail it can always be converted to perm ileo right?...
Thanks guys. Of course I want to improve my quality of life and not have to worry. But with the J-pouch don't you go ~6X a day. That's more than I go now when I am flaring. Is there any urgency...
Wanted to get everyones opinion... I'm 33 and was diagnosed with UC in 1995. Since then I have had my ups and downs but I have always been fairly well controlled with meds. When I am not flaring I...
Just a plug to remind everyone to support the CCFA! www.ccfa.org...
Thanks for responding Julie. I wish both of your children health!...
Keylime I had a question for you. Do you have a family history of UC? I am also terrified my kids will eventually get sick. Hope all is well. Thank you...
Here's the abstract to the paper. Unfortunatley it seems for the effect to take place they needed to use a lot of the product (200ml/day). 1: Aliment Pharmacol Ther. 2004 Apr 1;19(7):739-47. Links...
Hi LookingFor, you are indeed correct. There is one paper showing its efficacy in pediatric patients. This is the first controlled study published in a peer-reviewed publication. I will attach the...
So far there have been no definitive clinical trials with UC and probiotics. There have however been positive studies for C. diff and pouchitis. The only 2 "alternative" treatments that have been...
Withdrawal of corticosteroids in inflammatory bowel disease patients after dependency periods ranging from 2 to 45 years: A proposed method. Murphy SJ, Wang L, Anderson LA, Steinlauf A, Present DH,...
There is some evidence that NSAID may actually enhance the inflammatory response in UC patients due to the blocking of prostaglandin synthesis. Many scientists actually use a NSAID (peroxicam) to...
Yes, it is much more potent than Prednisone. It is only for a very short course which stabilizes the patients before steroid withdrawal. So far it is the best protocol known for breaking long-term...
Have a look at Murphy's new paper (I think Dan Present was also an author). They came up with a new method for tapering off steroids using dexamethasone. The protocol was highly succesful working on...
How about becoming a scientist?...
How many people on here are using it as a long term drug for maintenance of remission? How many people did it not work for at all? How many people did it work for at the beginning and then stopped?...
I think the cramping is occuring right at the end of the colon and like I said it only happens during and after the morning BM. Does that sound like a spasm? I can certainly give an antispasmodic a...
So my newest (and only) symptom that started a few days ago is getting a cramp/soreness when having my morning BM and it seems to last most of the day. It generally goes away by about 4pmish and then...
How is life with a J-pouch? I was told that you still go about 6ish times a day? When I flare I go about 3-4 times a day? Is there still urgency? Is it really an improvement?...
Hi Fruitgirl, I don't think I flare because of stress. I just meant that I feel anxiety about urgency and finding restrooms. I do take culturelle but it doesn't seem to make too much of a difference...
Hi quincy, I'm embarassed to admit that since having kids ~3 yrs ago, I haven't had much time to do anything athletic. The most I really do is walk back and forth 2 miles to work (not the most fun to...
Thank you all for the fast replies. Fruitgirl: As of my last scope, the inflammation is left sided, with some focal inflammation in the transverse colon. I would prefer not to use prednisone, but...
Hello wise ones, I have browsed the boards for a while, but this is my first time writing. Just curious to get everyone's take on my story: I'm 31 yrs old and was diagnosed with mild UC in 1995. The...