I stopped it because I wanted to eat carbs so badly....I thought with Remicade I could just eat what ever I wanted...wrong:( They taste so great, but even on Remicade they destroy my gut. Sounds like...
Please try SCD yogurt!:) You can make it cheaply and it's an amazing natural probiotic great for UC. If you Google SCD yogurt you can find recipes, as well as work-arounds if you don't have a yogurt...
Dear All, Would love to know if anyone has had any experience doing Remicade and the Specific Carbohydrate Diet together? I was hoping that Remicade was magic:) Five months in, it's helped a lot, but...
bbc, thank you so much, this info has been really helpful....
Please try homemade yoghurt if you're looking for a super-healthy probiotic to get you on track. It's wonderful. You can do a google search for "SCD yoghurt" to get the recipe. You can also order the...
I've had that, too...I've assumed it was my body trying to expel anything related to the ulcerated area--whether blood, tissue, pus, or mucous, and get it out of my system. I've never asked my MD...
If anyone knows how long it takes for a fissure to start to feel better, especially if you took nitroglycerine cream for it, I would so appreciate any knowledge you have to share. Thanks....
Yeah, he did...there was nothing external and the tear was inside. I'm not on any ASA meds at all now. All else failed for my UC so I just started Remi infusions. He gave me nitroglycerine cream for...
Hi bbc, it wasn't hemmies after all...it was a fissure:( Any idea how long this will take to heal?...
Just wanted to put this out there in the hopes that it will prevent anyone from making the same mistake that I just made. I've been in such intense pain for the past few weeks...sweating, nauseous,...
I've never had any side effects from asacol, and I often get the side effects listed on the RX packages, too...with asacol, nothing. Unfortunately it didn't work for me and my UC symptoms, so I no...
Has anyone else lived in such intense hemmie hell pain that they want to scream or punch a wall? Tylenol isn't helping....MD gave me some anesthetic cream for internal and external hemmies....and...
Hi All, I really need a huge goal to focus on...just started Remi and am praying for remission soon. I did a couple of 60-mile walks for cancer (before I got so horribly sick with this flare) and...
Yes, this can definitely happen. In my experience there can be periods of time when there's lots of blood/pus/mucuous loss, but no "movement." Another thing you may want to try is cabbage. I read in...
I just started Remi 2 days ago. So far, so good! Oddly, the past 2 nights, I've had the most vivid , scary nightmares ever. Maybe it's just coincidence, but I thought I'd put this out there to ask if...
What are these? So glad they worked for you...I would love to find a treatment for this terrible UC issue. The name made me laugh, but I don't recognize it!:)...
That is SO great...please know that best wishes are with you for continued good health!...
Omigosh that last post just made me laugh out loud. It is so true. Nacho, I hope you're feeling better soon....
Hi MoobyDoo, Maybe along with honey, you could try some organic vanilla in your daughter's yogurt? It's SCD safe and makes it taste more like frosting!...
Standard bacon and ramen are both so bad for all of us...even without UC to worry about:( I'd vote for those as the worst culprits. They are so full of chemicals including nitrites and MSG. I'd steer...
Interesting--thanks!...
I'm right there with you....I am dying from the hemmies on top of everything else right now. They hurt so badly and they wake me up through the night. Along with Prep H, I've been taking Tylenol for...
Songlady, this question is for you...in a recent post you mentioned bee propolis and slippery elm. I'm not familiar with either of these....could you explain what they do and if they've helped you?...
Hi BobbyC and all, thanks so much for your posts. This forum is a Godsend:)...
I'm a nature-loving person and I am trying so hard to stay positive on beautiful fall days like today. I just tried to take a real walk with my dog (ie, not just around the corner) and couldn't get...
Wow. I've had UC for 10 years, and since I got it I don't remember being able to sleep on my left side even once. It's way too uncomfortable. I never thought about why until I read your post...I...
I'm sorry to hear this is happening to you. Has your MD said that you can stop Remicade in the future? If so, has he/she indicated that it will grow back?...
I've been reading a lot about this lately, because I've recently switched from the Maker's Diet to the SCD. I was taking the Garden of Life probiotics and Udo's Choice probiotics, which are among the...
It is kind of funny, now that you mention it, when people talk about it like that, as we're all used to getting them so often!:) For my last one I didn't even have to do drink the prep stuff because...
I'm not sure about that particular supplement, but one thing I've found to be helpful to keep your strength up is anything made with liver. Chicken livers and onions, home-made pate, etc. are all...
Does anyone else have a really badly distended and tender abdomen? And have you found any good ways of making it go down? I've tried heating pad and hot showers...they make it hurt less, but it...
Could you please ask her for her thoughts about the Specific Carbohydrate Diet? Thanks!!...
Yes--they are much better than steroid pills because of fewer side effects. I'm so glad they're working for your symptoms. For some reason I'm not responding to them anymore:( I am really hoping for...
Thanks so much--I'll give both these ideas a try! I also just made a batch of homemade coconut milk...hopefully one of these will work....
Hi burnabygirl, So glad you are starting to feel better. I'm brand new to this forum and it's already a Godsend to know that I'm not alone. After 10 years with UC, I had my first "incident" recently...
Hi katiesmommy1, I'm sorry to say that I don't know much about this topic, but I did want to let you know that your post was being read and that you and your daughter are in my thoughts and prayers....
Has anyone out there found a good scd-legal substitute for milk? I thought some of the unsweetened "boxed milks" like Blue Diamond Almond milk might work, but they contain starches. Just looking for...
Hi b3th4nyy, I wonder if some Specific Carbohydrate Diet pizza recipes might work for you? Here is a site that has 5 different ones to try...hope it helps! http://www.scdrecipe.com/home...
Thank you for all this helpful information--I so appreciate it! Hopefully this will bring a steroid-free future:)...
If any Remicade veterans out there have any advice/info to share about what to expect, I would appreciate it. Am especially wondering why so many people talk about taking anti-allergy medication...