Anymore updates? My son just started it this past week, but is slowly switching over by taking 3 Lialda & 1 generic for a week, then going to do 2 & 2 for a while, then 1 Lialda and 3 generic, etc....
I've been worried over the insurance company switching my son to Zydus' generic version of Lialda and in doing research came across this that say the Shire (the maker of Lialda) will release their...
I am very interested in hearing some good stories about it as well. My son just picked up his refill this week and was switched to the generic after 8 years on name brand Lialda. He's got quite a...
I was scared to death when the doctor suggested azathioprine for my then 16 year old son. He has now been on it for over 10 years and it has been amazing for him (along with Lialda). Since being on...
I just got home from the pharmacy picking up my son's Lialda and was told that my insurance prefers he switch to generic. That was a big surprise because I thought Lialda was good until 2020. I...
Yes! I'm in Oklahoma and there is a shortage of the name brand version, Azasan. My son's doc has always said name brand only for this drug, but we may have to take the generic until this shortage...
My son was in the recovering phase of a flare when he had his bottom 2 wisdom teeth out just before he turned 18. They were impacted. The things we did different for him based on UC, was upped his...
My daughter has been on 6MP for well over 5 years. She started taking it at the age of 8 ('07) when she was first dx. She is now 14. She has spent most of that time in remission. A flare in '09 and a...
My 20 year old (almost 21, yikes!) son with UC is battling horrible insomnia. When he came home from college in early May he was used to studying most of the night and napping around classes. Then...
My son is a college sophomore but he kind of stays away from forums. He lives in a Fraternity house with about 75 other guys and they have common bathrooms where there are not even stalls, just a row...
It will be 5 years this summer for my daughter and 10 for my son. Hard to believe on both counts. Thankfully at this time they are both doing well. Summer seems to be flare time for us, but I'm...
This summer will be 10 years for my son and 5 years for my daughter :(...
My son has been on azathioprine (Azasan) for almost 5 years (started it at age 15). My daughter has been on 6mp (very similar to aza) also for 4.5 years she was 8 at the time. Both kids are doing...
I am so happy to read that she doesn't have IBD!!! Sorry to hear that she does have IBS, though! Hopefully she can get it managed with diet!! Again, so happy to read the news!!!!...
I would say that, No stress is not the cause. My son first started showing IBD symptoms around the age of 6 or so and he had a pretty carefree life back then :) My daughter first passed blood in her...
Mono? It's been pretty rampant in my area since the spring. Surprisingly, my "healthy" child caught it, but neither of her IBD, immune suppressed siblings did. Her symptoms were similar to yours. A...
Prednisone can cause an increase in night time urination. My son was so annoyed by how many times he would have to get up to pee in the middle of the night while on the Pred. For some reason...
My son said the Ducolax Miralax/Gatorade prep was very tolerable, especially compared to the 1 gallon GoLytely prep he had done when he was 10. My then 8 year old did the 2 day clear liquids with a...
My son has had a colonoscopy and small bowel follow through at dx and again 6 years later. He had a CT Scan this pat spring. He will hit the 10 year mark in summer and then start every two years :(...
For my son, prednisone usually takes about 2 weeks or so to kick in. For my daughter literally only a few hours, but then she was on 40mg and only weighed about 60 pounds. My daughter's flares are...
Both my kiddos have pancolitis. My son started out with left sided (dx '02), but we discovered in '08 that it had progressed to pancolitis. My daughter was dx with moderate to severe pancolitis from...
So glad to hear all is going well. I will continue to pray her recovery is very smooth. Update us when you can! (((Hugs))) to you both!!...
VSL#3 Can be purchased with out a rx, but if your doctor will write one for VSL#3DS (double strength) your insurance might cover it. Sorry, I don't know anything about SCD....
I will be praying for you and your daughter. I hope it all goes well and that she feels better quickly!! (((Hugs)))...
Be sure and get the doctor to run some blood work, especially ESR, CRP and CBC. When I was at this stage with my daughter, those result gave us big clues that something was wrong without being as...
My son gets all those side effects from prednisone, too. Even the times he hasn't gained weight. His stretch marks were so bad, it looked like someone took a Weed Eater from his ankles to this waist,...
My son splits them to 2 am & 2 pm and that seems to work pretty well for him. It seemed like taking all 4 at once caused more cramps and gas....
Thanks for the adivce both of you. I may drop him down to 3 pills for a couple weeks and see how that goes and then if all is well, drop him down to the 2 pills per day like he normally takes as...
My son had a kind of big flare this spring/summer. It took two rounds of Prednisone to get remission (first taper was too quick). I believe he is doing well now (he's living on campus for college, so...
I don't get to this board very often - have to stay away for my own sanity when my kids are doing well, but come here for help when they are not. I logged on today because I wanted to check on you...
Is Lialda based on weight at all? My son has been on it for 2 years now. He had almost 2 years of remission on it (with Azasan). His remission dosage is 2 pills per day and his flare dosage is 4 per...
I have to agree with getting quality protein from a healthy diet, but being that he is almost 20, I don't have as much say in what he does/eats. Also, he'll be heading back to college in August and...
My 19 year old son started taking a Whey Protein powder. While he was flaring the doctor asked about things that he might be doing that could be preventing him from getting better and excessive...
MomofTeen, I am so HAPPY to read that your son is much improved!! I tend to be the same way about being afraid to say things are going well. I hope the other child is doing well, too! I usually try...
Oh, Pam! I was so hopeful that the next time we heard from you it would be that your son was continuing to improve! I am so sorry he is having symptoms come back!! I wish I had words of wisdom or...
Well the doctors office just called with taper instructions and they want him to drop to 30 for 5 days then 20 for 5 days and then 10 for five day. I think that is WAY TOO QUICK!!! They seem to use...
Thanks Songlady! Can you give me specifics on how much to take? He may not be willing to try it - he gets annoyed with my suggesting things like fish oil, probiotics and stuff like that. I sometimes...
Today is 3 weeks on 40 mg. Son said he is still going 2-3 times per day semi-formed/kind of loose. I had hoped he would have made more progress than this. Especially having more formed stool. He is...
Diet doesn't seem to play any part with either of my kids, although I do discourage them from eating popcorn as one time my daughter had a bit of bleeding after eating it. My colon is healthy and I...
My son and daughter see different doctors. I was never real impressed with his Pediatric GI so when my daughter was dx I took her to someone else. Shortly after that I switched my son to an adult GI....
Thanks! He is taking Azasan (azathioprine/Imuran by a different compay - similar to 6mp) and had his dose raised to 175 from 100 when this flare began a little over 2 months ago. He had grown/gained...
When is it considered time to begin tapering prednisone - symptoms wise? My son is now at the 3 week mark of 40mg prednisone. He is down to 2-3 semi formed bms per day (from around 6-7), cramping...
Just logging on to check on your son... My 12 year old has been on Colazal for 4 years now. When my son was flaring really badly it took 2 weeks at 40mg of prednisone to see any improvement at all....
As a mom with two kids with UC, I just wanted to send you a big ((((Hug))))!!! My 19 year old is flaring right now, too. He had to go back up on his prednisone and after almost 2 weeks on it is just...
Peppermint sounds good. I'll look for some. Can I get it at a pharmacy or does it need to come from a health food store? Thanks for the feedback everyone. He said he felt a little bit better today....
Answers pertaining to my daughter Here are some new questions: 1. Did you already post your answers in the previous post? NO 2. What is your sex? Female 3. What is your ethnicity? Caucasian 4. What...
I will answer the questions about my son Here are some new questions: 1. Did you already post your answers in the previous post? NO 2. What is your sex? Male 3. What is your ethnicity? Caucasian 4....
I've put a call in to the doctor and hopefully he will call back with something to help. My little one loves the heating pad, but she has pain all the time when flaring, my son's is mainly when going...
My son has been in a flare for 2 months now. A quick burst of Pred. helped, but then things quickly worsened on the quick taper. Monday doctor started him back on 40mg so it has only been 3 days at...
North Central Oklahoma (I grew up in Wisconsin)...