Isn't it nice to see a change. I had my first infusion on Oct 1st and will have my 2nd on the 15th. I too noticed a difference, not 100% but better and happy for it. After so many drug/diet failures...
Greetings and welcome to HealingWell! Getting the dx is hard, I was just turning 30 and tired of feeling bad and having no explanations for losing weight, having severe diaherra. After I found a...
I have been on 6mp for nearly 9 months and have seen some improvements, but my dose had to be moved up to 150mg before I noticed any benefit. At 150 mg/day I had to break up my dose and take it 50mg...
I am sorry to hear about the bad news and what seems like limited options. I feel your pain as you deal with this. I have been placed on 6mp for now 6 months with little response & the need to...
I cant remember the last time I ever had a cold, and now that I have been on immunosuppressants (6mp) my WBC is still well above normal ~14.5-16.0. Everyones system reacts differently. If you were...
For me it would seem that 6mp is not working. It has been nearly 6 months and I have only done well while on 30-40mg of Pred. I am still waiting on my second Prometheous test to see how well I was...
I wish my first flare was only 2-4 BMs a day times, it was more like 15-30 bms a day. Hopefully the meds will continue to help you and keep your inflammation under control. Education is the best...
I too had nausea while starting 6mp, but that subsided after a couple of weeks. My GI did offer a pill for nausea, but I refused due to not wanting to add yet another pill that I may not be able to...
I agree with quincys suggestion that your areas of inflammation sound more like CD rather than UC since you have areas of no inflammation then another spot at the begining of the colon (cecum)....
My prescript ion was filled in Dec'08 and they have an expiration/use by date of 5/31/2010....
I too am on 100mg of 6mp and have been for about 4 1/2 months. I concur with all on the board so far about the dull headaches and tiredness, but those side effects I can function with rather than the...
Hey UP, Mis Dx'ing is common as others have said, especially when symptoms are mild. As "Learningtoadapt" name implies you will get better and coping and dealing with UP over time. I am a little...
I second Peety. I would wait it out a little bit to avoid using Pred. I too only use it when I am flaring and even then am always relunctant to use it do the length of use due to the tapering that is...
I have never started on Pred any lower than 40mg. I usually stay on that dose until my symptoms disappear for about a week then taper by 5mg a week. Side affects are not great, weight gain and...
Nice link, as glamourgirl said it is a little sad, but comforting to hear other stories and their progress and how they coped and are dealing with the issue. It does show how little the general...
I count them all, then if you have the food diary as well you may be lucky enough to link up foods that aggrevate or cause a bathroom pattern. Unfortunately for me I have found no pattern yet, but I...
1. I first started having what I know now to be symptoms at around age 25. The syptoms were few and far between so I never really thought much of the random D and stomach pains. 2. I went to my GP...
Congrats, getting results like that is truely awesome....
I was leary of going onto 6mp in the beginning as well, but after being on pred for so long I had to try something new since diets were not helping me control my UC. I have been on 100mg of 6-mp for...
My normal varies, but seems to be 4-6 times with majority in the morning. Asking you to use immodium for only 2 times seems a little wierd...
Congrats Ryan, kids are most likely the greatest gifts you will get in life. My third was born back in October and it has been a blessing watching her grow so fast. Get the rest you need now so you...
I to am on 6mp and it has been about 10 weeks. I agree with Scarelet about the headaches in the beginning, they were there for me, but bearable and yes keep getting your blood work on schedule. My...
I know the feeling of being confined in a space at work when the urgency hits. I work in hi-tech in a cleanroom suit, that is almost impossible to get out of if you are in a hurry so it feels like I...
I am sorry to hear that your doctor only wants to have a "long appt" with you and next week, they seem to not have the same urgency that we have since we are dealing with these issues day and night....
Shadam, I too am very new to this all as I was diagnosed in June/08, however I had symptoms long before just my PCP could never pin it down. I also started out on Pred and Asacol, and everytime I...
Dr-A, You were not kidding when you said a quick taper.. lol. I had a hard time when I dropped 10mg and 5mg at a time so unfortunately I dropped 2.5mg at a time. Such time pills those were if they...
I too seem to be sore most of the time from all my joints, shoulders, knees, elbows and hips. My lower to middle back has no strength. I to have been wondering if its from my meds as many warnings...
Unfortunately I never found anything that worked well to rid me of the pred headaches, so I kept up my water intake and tried to flush the pred out of my system as fast as I could....
I was on Asacol for 4 months 9 pills a day and what seemed like a constant dose of prednisone to try and control a flare. Eventually it seemed that even steriods were not working so I was put on 6mp...
There is a new blood test that came out from Prometheus labs that can be used for an IBS diagnostic. I took it a week and half ago. Check out the link below. http://www.prometheuslabs.com/ ...
Memphismarine, I was recently dx'd in June with UC and have been on a coarse of Asacol 400mg 3 pills 3 times a day and 3 rounds of predinsone for flares. I agree with the others that a quality bowel...