I have been taking the meds listed below since I went into remission some 4 years ago. Everyday, like clockwork, at breakfast. My GI wanted to lower my dosage, but I told him no way. I'm like the...
It really depends on the individual. But, I would eat soft foods that are easily digested to ease the stress on your digestive tract. Good luck......
I have traveled to Italy twice and both times I took Pred with me as a back up. The key for me is to get enough sleep and eating small portions. Although when I was coming down off a flare I just...
Got one last year, no problems at all. Good luck......
I began to notice that the cramping was starting to become less frequent. Then the bloating went away and I could start to button my pants and tighten my belt back up. My appetite began to increase....
I would like to add another male point of view as well. Personally, it doesn't bother me if people have certain afflictions or not. Male or female. As far as the self esteem issue goes, I grew up...
I tried the food diary in the past. What I noticed is that one week certain foods would not bother me, but the next week they would. For me, a lot of it had to do with the amount of food I ate rather...
Hello, I have been on imuran for close to 6 years now (or somewhere around that time). I haven't noticed any side effects in that time and I get my blood and liver panel checked every 3 months. It...
I have been on Imuran for around 6 years or so and have not seen any adverse affects. I get my blood checked every three months and have not seen any changes in my liver panel. My current dosage is...
Monkey, I have been on Lialda for almost 4 years now and have been in remission the whole time. It did take about 3 months for it to really start working but when it did it works like a champ. As far...
Hello, I have been on Imuran for about 6 years now ( I think, maybe longer). I have seen no unwanted side effects since starting its use. I visit my GI every 3 months and have bloodwork done at the...
I am also a member of the SYP club (I'm not spelling it out for you! :-) ). I had it happen at work a few times, but I work in a factory so the smell wasn't very noticeable. I still carry toilet...
I was unable to gain any weight back until my flares had subsided for almost a year. I think when you are flaring it affects all the systems in your body making you unable to utilize any food...
Yes I did. Most of it was on my back and shoulders. It went away eventually. You really find out how much your significant other loves you when you ask : " Honey, can you come pop this for me?" Good...
Cast another vote for not guilty. BUT.......... I do know this, judging from what I've read from other folks on here I have had it pretty easy in my opinion. I have gone through 90 - 95 % of the same...
I, along with many others, was in the same situation as you for about 10 years before I got the correct medication to put me into remission. I may be repeating what others have already said as I...
Biscuits and gravy from Bob Evans....
I had tendonitis in both my wrists at different times while on pred. It felt like someone put a torch on my arm just behind my thumbs. It went away and hasn't come back since I stopped using pred a...
My biggest problem I had from Pred was acne on my back. It probably took 6 months before it went away. As far as the joint pain goes, it is the nature of the beast with UC. Mine got better or worse...
For me, I stopped feeling the little tingles I used to get in my abdomen prior to having to rush to the bathroom. I didn't feel bloated or distended. My appetite came back as well as my energy level....
Cut the cord off the radio....wait.... that got me fired. I guess be polite the first time, then if that doesn't work move up the chain of command until you get the answer you want. Later......
I had to go the Depends route for a while. Just be sure to use a good talcum powder as the boys will get a little warm. Good luck. Later......
If its the one's I think you are talking about (red, oval caplets) I had the same thing happen when I took them. I asked my GI about it and he told me that it was the shell of the tablet and that the...
Ok, first of all, telling someone you have UC is not the same as telling them you just got paroled from jail on sex offender charges. I was just dx'd one month prior to meeting my girlfriend and told...
Personally I would not use Ensure due to the content of corn syrup. Try switching to soy milk instead. I did and had much better luck. I am 6' 2" and weigh 200 lbs, but that is neither here nor...
I read most of the posts and skimmed a few, so here is my take on this. Don't live your life around UC, make UC live around your life. In the beginning of this for me I had to stop and get a feel for...
My next question would be, what do your toenails look like? If they are thick, yellow and basicaly gross looking like mine were you may have a systemic fungal infection. I finished up on Lamisil...
I did. I think it was due to the immune system being depressed from UC making your body more likely to contract a fungal infection. Best I could do was shower daily and use a cortisone cream. Are you...
No. Living in Ohio is just a pain in the ...............
In my non-medical opinion it seems counterintuitive to give a UC patient antibiotics. Depending on your dose of Pred it may take a while (4-5 days?) to get to work. I have been EXACTLY where you are...
I think by nature tea helps with your immune system anyhow. The immunity boosting effect is just the latest marketing catchphrase used to boost sales. Lots of foods and beverages have antioxidant...
I think in this case cheese my be your friend. It has worked for me in the past. Antibiotics have really worked me over at times as well. For us it seems to be a double edged sword in regards to...
For a while I was on my jailhouse diet of bread and water just to get some energy and stay hydrated. I kept a food journal but one week everything would affect me and the next week nothing would. The...
Having been through several rounds with Pred myself I'd have to say the joint pain is normal. The same thing happened to me when I began tapering off. I think the Pred interferes with the bodies...
My GI told me to take Tylenol in the past. But that stuff will wreck your liver as bad if not worse than some of the medication we take. For me Ibuprofen works great. Funny thing about UC and its...
Had that happen to me as well. I started flushing after the BM was done then after the first round of wiping and every so often to prevent an overload of paper in the toilet. Hope this helps. Later......
Having travelled to Italy on 2 separate occasions I would say GO!! Enjoy yourself. I always keep extra prednisone on hand to travel with just in case. Be very careful of what you eat though. Try to...
Mickey, I have read some more of your posts. This my opinion only!!! I would start pressing your doctor for some better treatment or find a new one. I was fortunate enough to be referred to a...
It could just be a stres reaction alone. I have had that happen to me as well when placed in intense situations. Once removed from the situation, I was back to normal. At least normal for one with...
I had them in my mouth along both my cheeks. It seems to be a precursor to a flare up. They eventually go away, but sometimes they hurt like crazy....
I had the same issues with the Canasa supos as well. My thought was that the runniness was caused by the inert ingredients in the supo not absorbed by the body. It had an oily look to it in the water....
Thank you for the warm welcome! I know all too well the feelings one has after being told that you have an incurable disease. It just flat out sucks! I know there are others that have been afflicted...
Hello all, just found this forum and thought I would share my trials and tribulations. I'll make short and sweet as I don't think what has happened to me is any different from any of you. I was...
Hello from Dayton, Ohio! I have been on Lialda for a little over 3 years now and far and away it is the best thing that has happened to me. I went into remission about 2 months after I started taking...