I very rarely have noticeable blood when I go while flaring... however I must have been bleeding because I was very anemic during my last flare....
It also took a few infusions for me to finally feel normal again. Are you taking any probiotics? Probiotics also seem to have helped me....
I also get a really sore knee but I never thought it would br related to Remicade. I think mine is related to prolonged prednisone use or arthritis!?....
Wonderful news about the engagement...Congrats!...
Ok sending hugs to you.. sounds like how my last flare started...I had all the same symptoms....
Yes it runs in my family. Two of my cousins and an uncle have UC. Also a cousin has fibromyalgia and an aunt with chrons. I'm constantly worried my children may get it....
Glad to hear your feeling better!...
I too felt better for a bit when I had to take antbiotics when I had a respiratory infection from the swine flu. I wondered if it was the antibiotic or the fact that my immune system was going after...
Susie- STRESS is horrible for UC. I always flare when under stress. Hope you feel better soon!...
Canope- There is help if you cannot afford your infusions. There is a rebate program through remistart(accessone) and also copays.org can help you as well. Also you may not of built up antibodies as...
Glad that you are doing well...keep us informed as to how are doing in the future. Thanks for your story!...
As I read your post it brought tears to my eyes. I am so afraid of my little ones having the same issues as I have. I hope it is the h pylori and not chrons or uc. I feel for you ...please vent...
Great to hear your story Christine. Hope you continue to heal well and sending you hugs and prayers....
Christine, Glad to hear you are home...What complications did you have? How are you feeling today?...
Me...except I take vitamins and probiotics....
I too understand where you are coming from...it is frustrating. I gained 40lbs while on pred and I have only been able to lose ten so far. My doctor said it can take along time for the pred to...
Had had a persistent cough for about three weeks as well...it happened after I had a cold for a few days. I didn't call the doctor because I was not coughing anything up and I did not have a fever. I...
Thats good...I wish for you to go into a long happy remission!...
That happened to me when the Remicade started to work. It is such an uncomfortable feeling but it did go away after a while.I felt so bloated one day that I felt the need to pee all the time but I...
When I am flaring I can only tolerate cooked fruits and veggies. When I'm not flaring I can eat everything....
Have you had any bloodwork done lately? I know when my iron is extremely low I tend to bruise more....
I would stick with the enemas for a bit longer and see how things are going as you wean off the pred....
Great to hear that your well...Would an antihistimine help your itching?...
Glad to hear she came through ok...praying for her to have a speedy recovery....
Remicade has been a life saver for me. I noticed improvement after my first infusion but I would say I have been feeling 100% since my fourth infusion. Now I only have a BM once per day and hardly...
Good luck Christine...keep us posted on your progress....
Thank you for sharing your story. It is nice to hear you are doing well....
Welcome to the forum!...
Sorry to hear of your loss. Please don't blame yourself. These things just happen. I lost a baby at 13 weeks so I know exactly how you feel right now. It is hard but try and pick yourself up and work...
I noticed improvement when I switched to it from a cheaper one. I like it....
Susie, Are you still taking probiotics? Have you ever tried colazal? Maybe it was just your hemmies that were bleeding?? Get lots of rest and take care of yourself...feel better soon!...
Prednisone has also messed up my cycles in the past...I remember I was three weeks late last summer when I was on the highest dose....
I would probably consider the prednisone right now to help you temporarily while your under such considerable stress. Maybe also try a cheaper probiotic. The ultimate flora critical care is what I...
Sorry to hear of your loss...I lost my grandma 5 years ago and i still miss her dearly. Take care of yourself ...make sure you get lots of rest to help keep your UC at bay....
Christine. Sorry to hear you are not doing well..I hope you have better days ahead after surgery. I think maybe the pre surgery stress is not helping your flare. I know when I flare stress makes it...
Congrats on your new baby girl...please take care of yourself....
I got a bad headache after my first infusion so the doctor gives me arthritis strength tylenol before every infusion now and I don't get headaches....
YES...I can eat pretty much anything now. Iwas not able to eat fresh fruit or veggies when I was flaring but now I can eat them with no problem. /community/emoticons/yeah.gif ...
You should mention this to your Doctor ASAP...as there are Remi side effects that may cause extreme fatigue... Liver function??....Maybe have more bloodwork done. My doctor always says to me...
Welcome to the forum...that is great to hear....I too was very nervous about starting Remi but so far it has given me my life back with no side effects. Hope you continue to improve and go into a...
Good to hear Susie. Hope you continue to feel better everyday!!...
WOW!!!!I had the same exact pain in my knees...so excrutiating that I could not even walk...I feel it was when my flare was at it worst... my body was attacking itself. I was on 20mg of prednisone at...
Aww.. My hubby will get take out or even cook sometimes when I am not feeling well.... He also does the dishes!!! I am so blessed to have a great husband and two wonderful children....
Sounds like you made a good decision...if the Remi stops working for me then that will be my next step. Good luck to you and please keep us posted as to your progress!!...
Yes Remicade does supress your immune system but in a different way than what immuran does. There is good information about Remicade on the CCFA website....
Yes...I have joint issues and eye infections....the only thing I can say is when I am in remission everything else feels better. ...I am so sorry you are not doing well...I would say if the immuran...
I agree a counselor that advises you to see a psychic is wacky...however if I was desperate to find out what is going on with me and noone else could figure it out then I would consider seeing...
Good luck Christine...Let us know how it goes....
UC is soo sneaky...you would think after eight years you could consider yourself in remission forever...I was almost six years and I started to flare....and it was horrible..now I am on remicade and...
I wouldn't be surprised if it were related to the pred either. I had all kind of aches and pains when I came off of it....