Thanks Sherry, I definitley want to try something OTC, I've heard horror stories about prescribed treatments. Do you know of any good and effective OTC for the body,not the face. Thanks!...
Hello Everyone! I havent been on here in quite sometime. I started Remicade back in December and have been feeling really good! I just weened off of Pred about 2+ weeks ago (on it for a 2+ months),...
Hello All, I haven't posted in some time now (since starting Remi). I had my 3rd infusion of Remicade last Friday but am still on 20mgs of Pred and weening. I feel absolutely great but I dont know if...
Hey Christine, I hope your feeling better. I just had my second infusion and feel great but I'm still on 30mgs of pred and tapering. I really hope that its not just the pred that is making me feel...
haha...I know Judy...I defintiley was NOT prepared! I atleast know what to expect the next time go so hopefully things will be a little smoother. Whats the avg time that infusions take for everyone?...
So I just got back from my first Remicade infusion and boy oh boy was it boring!! I was the only patient there. I got to the hospital a little after 10 and the treatment didnt really start until...
Welp, I'm sitting in the infusion center waiting for the Remicade to come out...I'm nervous as all hell but excited at the same time! I hope this works so I can get my life back!...
I to have PSC. I was diagnosed in March when my GI discovered that my liver enzymes were high. He did both a liver biopsy and an ERCP. It seems like it's a horrible disease with not much information...
I'm nervous!...
Thanks for the positive thoughts guys... SBwith UC, are you the one that takes Propecia for the hair loss? Does it help?...
I was in the same boat as Chirstine while on 6mp, I was so nervous about losing my hair that I started taking Biotin...It seems like it's helped some but I'm about to start Remicade and have heard...
So, I've been feeling extremely depressed over the past month...my UC is definitley not under control (starting Remi on Monday), my girlfriend and I broke up which totally demoralized my spirits and...
I did some research on propecia which is the generic form of what sbwithuc was talking about . IT seems like it's a pretty decent...I'll ask my Doc about it. Does anyone know the cost of the med and...
Im starting remicade on Monday and this is one of my fears about taking the med. I was on 6mp for about 6 months and was told that I might lose my hair as well so I started taking a Biotin...
I hope it works Christine!...
I set my 1st Remicade Infusion date for 11/30 and I'm pretty excited yet nervous at the same time. I spoke to the financial specialist and she said that I wont have to pay anything out of pocket for...
Christine, Reading this makes me sooooo happy for you! I pray that it works as good as it has for everyone else. Good luck and keep us posted!...
I've had this same question. I was just put on an anti depreseent but I feel I might need an anti anxiety med as well, my heart is always beating and anticipation if something which leads to unwanted...
Thanks guys, I hope you both continue to feel good!...
Christine, I cant help but read your posts and not comment on them. It seems you are going through and extremely difficult time with your UC right now and for that Im very sorry! I understand that...
I totally feel your son's pain. I was diagnosed a year ago when I was 25. I was in the prime of my life. I had an AWESOME job (still have it), a beutiful and amazing girlfriend, a ton of friends, a...
So I had my colonoscopy today to determine how bad my UC is and to see if Remi is really the route I should go down. Let's just say that after tomorrow I'll probably be getting my 1st Remicade...
I had the same issue when I was on Asacol, my new GI switched me to Lialda which has been pretty good, not to mention you only need to take 1 dose a day....
This post made me giggle a little by what happened to me this morning...but first, when I was diagnosed I weighed around 210 lbs (I'm 6'3). To date, I now weigh just over 175 lbs, I'll do the math...
Nice! I have my colonoscopy tomorrow and will then hopefully be starting remi soon after......
So I met with my GI on Friday to discuss Remicade and other options as nothing has really worked yet. He's definitley open to going down the Remi route but he wants to do a colonoscopy on Tuesday...
Congrats...hope it stays that way. I'm going down the remicade path as well....
Hey Christine, I have an appt tomorrow with my GI and am going to ask about the Remicade rout as well. I absolutley PRAY that it works. Good luck to you!...
Awesome news!! I got the chills just reading about this!! I have an appointment with my GI this Friday to start my Remi infusions. I live in Florida and have soooo many different things that I want...
Thanks everyone! I have an appt with my GI this Friday in which I'll ask him if I can jump on it. I need something to work for me at this point. My GF told me over the weekend that she wants to take...
How long did it take for everyone's insurance company to approve the use of Remicade and then how long did it take for everyone to actually have their first infusion?...
Thanks Judy, Do you know how long patients can be on Remi before they become immune (or develop antibodies)?...
I'm at the point after a year of having UC that I just can't take this disease anymore. I'm losing sooo many good things in my life (girlfriend, friends, hobbies, etc...) due to not being able to be...
My relationship is currently on the way down due in large part to my UC. My GF and I used to be very active in going out to places seeing that we live in FL. Lately I feel as if she isn't happy with...
I think I spoke too soon! Last night I woke up with a terrible itching sensation that continued throughout today. I just got off the phone with my GI and he is calling me in an Rx for an anti...
Hey Becoming undone, I'm in the unlucky boat as you and quincy in that I have PSC as well. I was diagnosed about 8 months ago and honestly dont know much about it, nor do many people (including...
I've been on Liald for a little over 2 months as well and I have to say it has been pretty good. I was on Asacol before Lialda for about a year and Asacol didnt do anything for me. I still have some...
Thanks for the responses everyone, you're all encouraging. I was a little set back last night knowing what happened but you guys are right, it happens, I just have to accept that it's part of having...
"It" happened to me today!!! Aggrrrrr!! I dont want to get in to specifics because its kind of embarrasing but this disease is the worst, I hate it sooooo much!!!...
I started taking the husk powder about 5 days ago. Thus far it's been pretty helpful. The only issue I've been having is as soon as I drank my glass (with 1/2 tea spoon) is I would imediatley have to...
Asacol was the first drug I took for my UC, I was on it for a year and was then switched to Lialda because the Asacol didnt do anything for me....
Hey Mags! Just wanted to say hi and welcome to the forum...good luck getting the information you need here. This place is very informative and helpful!...
Hey 3time champ...it usually takes a little more then 3 months for the medicine to kick in, if it even doess. I've been on 6mp since May (going on 6 months) on a variety of doses (see signature) and...
Thanks for your replies everyone. I just went and drank my first cup of coffee (from starbucks)in over a year!! It tasted like heaven and everything seems to be ok, for now. I think I'll try and have...
How many of you drink coffee? If you do can you help me in asnwering some of the below questions: * Do you only drink de-caf? * How many cups do you have a day? * Do you drink flavored? * Do you put...
I dont really understand the chemical lingo but it all sounds pretty encouraging! I agree with songlady that I'm very grateful that there are people out there who are smart enough and care enough to...
Highly suggest you ask to be put totally under for your next one. That's completely unfair and mean....
I usually take one in the morning when I know I have important meetings or if I'm gonna be away from the bathroom for an extended period of time. Sometimes it gives me stomach discomfort though......
This might be a dumb question but what is usually used to treat IBS? The only reason I ask is because I feel I might have IBS in addition to IBD; I havent felt remission in over a year since being...
Thanks for everyones reply...I'll try some cereal this weekend and let everyone know it things turn out. Thanks!...