I haven't used BC pills for more than 10 years but I find it ironic that I was dx'd with UC right about the time I started having night sweats and hot flashes ... some things about being female truly...
Do other women notice a connection between their hormonal fluctuations and UC symptoms? I'm 48 and pre-menopausal. /community/emoticons/devil.gif I've been in really good shape with my UC but last...
Hi Emma Ann, I'm also on the SCD and one site you might find very helpful is Pecanbread. Note that it's really targeted at parents whose kids have autism, but the instructions and guidelines for the...
ep49 - thanks for the info; unfortunately I make too much to qualify for the subsidized meds. Songlady - I just looked up the prices through my insurance website online; haven't talked to a...
Just checked and the sulfasalazine powder is $400 for 30 days supply ... It just blows me away the price differences. The mesalamine (anti-inflammatory) drugs are all so expensive, but I can get...
With my insurance Rx prices, generic Rowasa is $320 for 30 doses. Canasa is something like $800 for 30, so I buy them from Canada (which is still $100 for 30). I'll check my insurance to see if the...
I have mild UC and follow the SCD diet. In general, I don't have any digestive issues - one nicely formed BM per day - no gas, no D, no cramping, no urgency. Last spring after getting IV antibiotics,...
Update: I had a flex sig done on Friday (with no anesthesia, and it was not a walk in the park but not as bad as I feared). The doctor said all my colon tissue looked great with no signs of...
I'm not inflamed except for this one small area of inflammation. I'm supposed to do the Fleet enema - which I'm guessing is the saline one. Can't be as bad as the full laxative c-scope prep!?!...
Luckily for this one, they just told me to use an enema a couple hours before the procedure - no laxatives. Yay! I would like to be aware. I can barely remember talking to the doctor after my...
I just saw a new GI who I like alot. I've been having ongoing rectal irritation that doesn't seem to resolve with Canasa and Cortifoam, so she wants to have a look-see. I'm scheduled for a flex sig...
Where are you in SoCal?...
I have been on the Specific Carbohydrate Diet (SCD) for almost 3 years and I feel like it has made a big difference. Even before I was dx with UC, I had horrible gas, bloating, cramps, and...
I tried those back in November-December and it actually stopped the bleeding I was having then. I had to stop them to do the Genova stool test, though, and I haven't resumed them. I read somewhere...
quincy - I'm taking sulfasalazine, SCD yogurt & acidophilus. No fish oil supps. No fiber supps because most of them are SCD-illegal - and I get plenty of fiber with all the veggies and fruit I eat. I...
It's not a hemmie or fissure. I had a doctor do an anuscope in December (I was bleeding at the time) and he said, "no hemmie, just an area of inflammation right above the anus". It's actually fine...
I have a case of rectal irritation that doesn't want to go away. :sad: I'm on sulfasalazine, plus: Back in January, I started using Canasa supps 2x/daily to get rid of bleeding. The bleeding stopped...
I suspect it's like everything else related to UC: everbody's different. For me, I've continued to drink both wine and hard liquor the whole time I've had UC. I follow the SCD diet so that means no...
I was dx'd in 2006 with mild UC and when sulfasalazine stopped working about a year later, I started researching diet because I wanted to avoid steroids and what seemed like the inevitable path to...
Krissy - you should get a copy of your colonoscopy report from your doctor. Then you can see exactly what they saw and do your own research with regard to what it means. My doctor told me hardly...
I just have one or two very normal BMs daily - actually I've had better form and regularity than I've ever had since getting UC - but I think that's due to being on the SCD diet ... which gives me...
I'm on sulfasalazine - 2 500 mg tabs twice a day (doing the "attack from both ends" theory). Sometimes I take 3 at a time, but it doesn't seem to make much difference one way or the other. I've only...
I've been struggling with mild to moderate bleeding on and off for almost a year after receiving IV antibiotics last year (and trying various different things including fecal transplant as many of...
WWife - can he tolerate cheese? I'm on SCD and lost quite a bit of weight at first, too. I had to really force myself to eat stuff with more fat (butter on veggies, cheese on everything ... brie is...
I think the study would be useful. This is the one Internet site that I found the most people who had actually tried FT. One question I'd like to see is whether you tried FT while flaring (and what...
I hear ya! I'm self-employed and my insurance company just keeps jacking up the rates every single year, but I can't leave them because no one else will insure me. They won't even let me switch plans...
In my case, I had mucus and blood before I was diagnosed, but once my GI put me on sulfasalazine, it went away. I struggled with painful gas, bloating, and constipation but never had D. After a year...
Well, a lot of worry about nothing. My Canasa Rx from Canada arrived today - one of the fastest transit times I've had yet! Thanks for the advice in any event. This forum is great!...
Thanks quincy and songlady. I'm going to start the Cortifoam tonight and see how it does until my next Canasa shipment arrives. Yes, I am on sulfasalazine now - not that I think it's helping at all...
I'm just coming out of a flare with stubborn bleeding and irritation in the rectum. about 10 days ago, I started using Canasa suppositories twice a day and the bleeding is almost 100% gone (I've had...
Thanks for the feedback. Finding another donor could be pretty tough! I don't have any other family close by and can't really see asking a friend or neighbor to donate ("I'd be happy to buy a couple...
Just a quick update - it's been 2 days since my last FT and, if anything, my condition seems to be slightly worse. I'm still bleeding and today my stools were much less formed and softer. I'm kind of...
Well, SCD has a ton of fat and cheese, so since my eating that way doesn't cause the gas, bloating, cramping, etc., makes me think that's not to blame. It could have been corn tortillas. It could...
Hi Kaldea, There is an HPI page someone created in Google groups that's not really active, but someone did post a list of files that include the Borody study as well as the instructions for the home...
Burli - SCD has worked for me regardless of whether the science is true or "junk." After the baseline meds stopped working, I tried SCD and within a week could see a huge difference in my digestive...
Hi amygrace - The stool-water ratio is probably 60% water and 40% stool. I'm just using plain distilled water because I don't see the value of adding salt even though that's how the Borody team does...
I actually have the home infusion instructions from Dr. Borody and it says to mix the stool with 100-400 ml of saline - and 100 ml is just over 3 oz. Given the gazillions of bacteria, you may be...
Hi Burli - SCD worked great until I got some IV antibiotics for an outpatient surgery (unrelated to my UC) in March 2009. Since then, I've had this small amount of bleeding that won't go away. It...
Fecal transplant update: I have been having consistent, moderate bleeding for several months, but very regular, formed stools. I'm on the SCD but no dietary adjustments seem to affect (help or hurt)...
Thanks subdued. I'll keep you posted. The logic makes so much sense....
I've been reading the FT threads with interest and hope some of the folks who have done this are online to respond. I did quite a bit of research on this several months ago and am ready to give it a...
I have mild ulcerative colitis - most likely proctitis since it appears to be limited to the rectum. I've recently started seeing a new holistic family practitioner who suggested probiotic enemas and...
I'm not uninsured or low income, but my insurance coverage for this drug is horrible! I guess it's probably because it's not available as a generic yet. But if I can at least get it cheaper from...
As I posted last week, I've been experiencing a UC flare since the end of March, with a small amount of bleeding but no other symptoms. I follow the SCD diet and was completely med-free for about 9...
Thanks! I just left a message for my GI to see if he agrees with trying one of these. It really feels like the irritation is close to the opening - so I'm thinking that maybe the suppositories might...
Thanks GeminiSunset....
Sorry for the long post, but I'm new to this board and hope you can give me some suggestions. I was diagnosed with mild UC in May '06 in the sigmoid area (so I guess it's technically either proctitis...