I would suggest at this point, that if your father has tried all conventional treatments, he opt for surgery. There are also clinical trials for certain drugs if you are near a medical center...
I guess common is a relative term-5% co-morbidity is enough to be a concern, especially when most patients with PSC also have IBD. I would still see a doctor about it as yellow isn't really a normal...
Yellow stool probably means a high concentration of bile. You should be checked for liver or gallbladder disease ASAP-there is a disease called primary sclerosing cholangitis that is fairly common in...
If the disease is only affecting the very end, oral meds might not even hit it and the rectal meds should be fine. As for enemas, they're not so bad. Protip-if your butt is sore or you have...
I've been in remission for years at a time. That is: taking medication, 1-2 normal BMs a day, no blood, no real urgency, eating whatever and tolerating it like a non-sick person. Keep in mind,...
Were I your doctor, I would prescribe prednisone OR budesonide, but not both. The mechanisms are redundant-the only difference is that pred is absorbed systemically and budesonide is engineered to be...
I can eat white rice just fine when flaring. Brown rice tends to clean me out and create volume issues, though, so I tend to avoid it when I'm sick....
If you want something very gingery, may I suggest ginger beer? Gosling's is my favorite, it's got a nice, zesty ginger flavor unlike a lot of ginger ales that are pretty weak. It's also great with a...
I've been in a fairly secure remission with a few blips (short, mild flares that have been easily fixable with rectal meds) for...oh...4 or 5 years. I credit Azathioprine with keeping me there. I was...
Chances are, you'll be fine if you keep up a medication regimen that works. The key is open communication with your doctor, keeping an eye on your symptoms, and knowing when you need to slow down....
1. The constipation is a little weird, but not unheard of. Maybe try a stimulant laxative (or drink some coffee). 2. Diet shouldn't really affect your symptoms much. Some people have a hard time...
The biggest problem with microbiome research is that there's just so much data, it's hard to figure out what's meaningful. Especially since microbiomes vary tremendously from person to person. Hence,...
I'm assuming this is more effective at helping pain than anything else....
I've been on generic Imuran for...I guess 4 years now. It works fairly well, with a low rate of side effects for me. I also don't seem to get sick any more than I used to....
In the long run, 6MP and Imuran are less harsh on your body than prednisone is. I would start the 6MP. I'm taking Imuran (generic) currently and it's kept me mostly in remission. I've had maybe 2...
Calcium citrate is more readily absorbed than calcium carbonate, so I recommend choosing a supplement with that. Vitamin D and magnesium also increase absorption. Target's house brand has a pretty...
When I lived in NJ, I saw Dr. Katz in Highland Park. I had mostly good experiences with him and he was very good about emergency appointments....
Twins, whoa. You are gonna be one busy mama! I wish to ye an uncomplicated pregnancy, a short labor and two healthy babies. Fruitgirl is right about safety. CCFA's guidelines suggest having your last...
This stuff isn't really news if you're a researcher, but most of the mucosal immune systems (gut, lungs, genitals) are loosely linked. At least, moreso than the systemic immune system (ie the...
Have you talked to your doctor about your concerns about having IBS? If your IBD is completely healed and you're still having GI symptoms, I would look into trying some probiotics. Unfortunately it's...
From reading some of your comments on threads the past few days, I have to say: You're kind of a creep....
Odd results is right. Low sed rate, high CRP? So strange. You're almost definitely anemic. High neutrophils usually indicate infection, often bacterial but sometimes fungal. I suspect you may have an...
I've experienced some tiredness if I forget to take a multivitamin, but the ringing ears and stuffy head don't sound like imuran side effects, more like a head cold or allergies. If it keeps up, see...
twiggs, have you ever done an elimination diet or tried to see if you're lactose intolerant? That's my first line of thinking if you were doing fine til you had some cheese and yogurt. Lactose...
Old Hat, I'm already on antihistimines daily, a mast cell blocker, and nasal corticosteriods and I'm still symptomatic. I'm hoping to get a test and then shots, but the soonest I can get an...
Hate to be the one to ask this, but are you wiping well enough?...
You don't quite hit the temperature mark for DRESS, your rash would not be maculopapular (maculopapular rashes have raised bumps) and according to one diagnostic criteria the time frame is actually...
If you've got regular allergies, that can be part of the issue. I know my contacts get itchy and gross just because my eyes get so dry from my nasal allergies. Brand and lens solution definitely make...
I know for me, certain alcoholic drinks can upset my stomach the next day, especially if they're super yeasty like craft beer or unfiltered meads, irrelevant to UC. Cutting it out won't hurt anything...
Yeah, talk to your doctor about that next time you see them, since your diet seems pretty balanced so I doubt you have any glaring nutritional deficiencies....
That's weird that they won't do the piercing, the risk shouldn't be too high as long as you keep the area clean....
What's your diet like, and do you know if you're anemic? It's pretty normal to have lost muscle during a flare if you've lost weight, in which case you'll have to work your way up to being stronger....
Whoa, first off, paragraphs. They make long posts like this easier to read. Second, yes, it's possible and even likely that you have Crohn's, assuming the pathologist was even remotely competent. CD...
I know a lot of people on these forums are skeptical of medications, but Imuran pretty much gave me back my life. I've been in remission for over 3 years with only one very minor flare brought on by...
I'm skeptical. From the one bit of actual science included, in the mutant mice, it looks like the change in the gut is CAUSED by the mutation in the SERT gene, not the other way around. They also...
The fever and time you've been taking it, to me, seems to indicate something other than an allergic reaction to the drugs. Have you ever taken sulfa antibiotics? If you've taken them with without a...
Anything with caffeine....
Serenity-I was just really confused, tis all. quincy-Yeah, it's really funny because the immunological target for the drug is supposed to be one of the really pathogenic cytokines in IBD, but new...
I've never heard it before, for sure....
Oh, man. I feel like I can't have guests over unless I clean the toilet first because of this. Chlorox toilet cleaner works surprisingly well for these stains, at least on my toilet seat....
kazbern, not everyone actually enjoys cooking and preparing food. It's just not interesting to them or worth the effort. Some people just see food as a thing they have to put in their mouth to keep...
Some super easy things: Breakfast: either avocado (sprinkle a bit of salt) or nut butter and jam on toast, or yogurt parfaits with fruit, granola and honey. Bonus lazy points for the yogurt parfaits...
The conference I attended was general immunology and not IBD specific, though I attended a few talks geared toward mucosal immunology. Most of the people who spoke were doing basic rather than...
Hi! I've been pretty busy with grad school-I'm planning to submit my dissertation proposal soon so I've been working on that. I also went to a big conference in my field last month, IN HAWAII which...
You really need to eat more. As is there's no way you're getting enough calories and nutrients. Can you handle liquids? If so try some nutrient shakes and juice throughout the day. Sounds like you...
A quick literature search shows lympocytic gastritis is associated with celiac disease. That means you get an influx of T cells into the stomach, which causes damage/inflammation. Though if you have...
I know we're not supposed to talk politics on here, but the entire reason everything is so expensive here compared to elsewhere is because we have a for-profit healthcare system. Other than that,...
Everyone's different. You should keep a food diary to see what worsens or helps your symptoms. Like q and Jimbo, I'm of the school of thought that foods affect symptoms, but not prognosis. There are...
Do your dizzy spells happen when you stand up? Or is there no pattern? Could be hypotension, could be dehydration, could be vertigo. Another question: Do you have allergies? When mine get really bad...
Geeker: As someone who grew up in a dysfunctional home (both emotionally and physically abusive), you might not be doing your daughter a favor by staying. If you can get to a counselor, I strongly...