I have no symptoms except for urgency when I do have to go. So I do not consider this remission....
Or the beginning of it? I had my 8th Remi infusion last thursday. Since then I have no blood(had very little before that but did have a bit on wiping.) No D..(haven't had that in months.). The only...
Thanks Quincy. I plan on giving the Canasa more time....
The only symptom I have left is urgency. Been on Remi for 7 infusions. No D, and until I started taking the Canasa (whole ones twice a day, as he had me taking 1/2 twice a day before this) no blood....
I started taking them morning and evening, and now I am showing some blood on the TP....
"We all have 'trigger foods' that we avoid." Not in my case. What I eat, or don't eat has had no effect in worsening or helping my UC....
Shalimar and Chanel#5 for me....Tuscany and Lacoste for him....
Just curious. I have refused any attempts of taking Pred, and truthfully when I told my doctor of my fears of why, he has never argued with me.Have had UC for about 7 years now,(at times completely...
anyone have a comment?...
I am supposed to go for my 8th(and last) Remicade dose on May 2. Doc wants me to go one more time. My colon shows improvement but problem is still in the rectum, which is why the only thing I have...
I will have a bowel movment a few times a day, nothing much. No D...just a bit here and there. All of a sudden by say the 7th or 8th day, I go in the bathroom and don't think I will ever stop going....
did someone already post this article? I'm surprised no one has made a comment....
C diff and finally recognizing fecal transplant. http://www.cleveland.com/opinion/index.ssf/2013/01/attacking_c_diff_from_the_bott.html ...
So far the worst I have had is a rash on my thighs that does not itch, and now itching on my front and back torso. I'll gladly trade those for the feeling of relief I have gotten since starting Remi....
I am soon to have my 4th infusion of Remicade. The last week or so, I can't stop itching. My arms, and torso. I carry around a long handled brush everywhere I go. I am always putting on Cortisaid...
Yes, just horrible for me when I had it. Had to take a bag even when I went out in case I had to vomit while in a public restroom while going to the toilet. It was when i was at the very top of my...
Ultimate Flora did that to me. I take Align now for over a year....
Can't use enemas. They make me bleed....
I just had my second infusion a week ago. Many things have improved. No D..(but that was the case before I started infusions..just long skinny stools) My daily nausea is gone. Aches have improved...
to me...no urgencey, no D = remission....
I have avoided it for 5 years, and will kep doing so unil I have exhausted all other possibilities....
I got it from Imuran. Soon as I stopped taking it the pain went away. I watched what I ate for about 3 days. Light foods....
I got my first Remi infusion Thursday. Today I had my first actual poo. No water, no mucus, no blood. It has been weeks even before my C diff that I had anything resembling a normal stool. It has...
Immodium stopped working for me 2 years ago. Even 4 of them didn't help. Had to graduate to Lomotil. I guess that's what I'll use today. Thanks. I wasn't sure exactly what Bentyl did....
I have both these meds. I have to go out tomorrow to an area that has bathrooms, but kind of far between. Which would be you pill of choice to take tomorrow before leaving?...
My next one is 08/09/12...
Everything went fine. I slept a bit, read a bit, and since I left there I feel great. Actually ate a steak dinner which I haven't done in months. Lets see how I feel tomorrow. I took a Lomotil so I...
Thank you all.....
First thing I want to know is, how fast they can get me to a bathroom during an infusion? Do they prepare for that? As you all know, when we have to go..we have to go now! If I'm all hooked up how do...
Anyone else, and will Remicade help this? I have diarrea about 5 times a day, plus a couple during the night. But the thing keeping me so sick is the nausea. I wake with it, and it stays with me most...
I always have homemade strained chicken broth in my freezer. Kool aid made nice and sour I like also.(allowed colors) Next time I will also have homemade beef broth ready also....
Quincy, I am also now taking Ultimate Flora along with the Align. Started that when I got home a couple weeks ago. What is a PPI med?...
The test for c diff came back negative a week ago, yes....
I have had colitis for about 7 years. Rode the wave and tried not to complain. A short while ago I was hospitalized with c diff. I was a few days fom starting Remicade. Had to cancel being so sick. I...
Thanks for the positive comments!...
I get my first infusion Tuesday the 22nd. I'm nervous, scared and excited all at the same time. I have been so bad the last week, and had a horrible accident that almost destoyed my whole bathroom....
"research I just found showed that of 12 people taking azathioprine in the study, 10 died!" Not calling you a liar, but that just doesn't sound right. They would have pulled that drug ASAP if the...
The paper says let your doc know if you have nausea or flu like symptoms. I have that daily with my UC. Sometimes I ache so bad I can't get out of bed. How am I to know when and if it's something to...
I would smoke again in a heartbeat, but I tried it last summer, and I got so horribly sick after each cigarette( I was trying 4 a day) I had to go to bed. The dizziness and nausea was terrible. I...
what's the problem with getting the vaccine?...
Yes, I even tried smoking again, and I get so sick from the nicotine I can't walk and have to lie down....
I don't do anything without asking my doctor first. I was looking to see if anyone else had the experience....
The shingles website says if you have had the chicken pox(I have) and especially of you are 50 + years (I am)you have a good chance of getting shingles. It also says if you are on drugs to supress...
I have had chicken pox and am over 65. You can't get the vaccine once you are on the meds. I am thinking of starting the meds(possibly Humira) next month after my doc appointment. Should I hurry and...
I will of course be asking my Uroligist and my colitis doc these questions, as I have an appointment with both this month. But I get reoccurring serious kidney infections (close to sepsis) and 3...
I was on Imuran, and got pancreatitis. Now considering Remicade. Are there any similar bad side effects to that drug? The pancreatitis was not fun....
I am not in a bad flare. Mild I'd say. No D, very little blood when I wipe occasionally. Urgency still there. But I am almost always nauseated, and have no hunger at all. I think I want something...
Tylenol doesn't even scratch the surface of the pain in my body. Ibuprophen works great, but we aren't supposed to take that. What do you do for pain when you can hardly walk?...
what is "reasonable urgency"?...
I have been doing fine since off the pills. I do believe they were starting to work for me....