OH! And one other thing I forgot to mention was the major case of covering themselves the nurse pulled. She said that they were running labs for "long while" when I was starting Remicade and was...
Ok, so I called the GI nurse and had her get the labs from my doctor's office. She called me back and said that everything looked normal. I said how about the development of antibodies.... Is that a...
I have been having very irregular bowel movements which is way different than when I started the Remicade. It could be 2 times a day to about 10 times. I also do have urgency at times but not all the...
My concern is that I have had A LOT of "problems" with cramping, diarrhea, fatigue for awhile now - probably a couple of years that I can remember but it hasn't been like it was when I first started...
I have been diagnosed with UC since 2008 - went years before they found out I had it. After doing treatments with steroids to control my flares my gastro-doctor decided to start me on Remicade. I...
First of all THANK YOU so much for all of your advice and guidance. It has been incredibly stressful trying to make sense of all of the things I need to consider when looking at a new position. I...
Liz, To clarify, I'm wondering if I can find out if it is an approved drug for coverage. How do I go about finding pre-authorization?...
Thank you Liz! Is that pretty standard to ask for their insurance plan info? Could I call prior to accepting a job to find out the things you mentioned above? I'm sorry for all the questions, I'm...
Hi Garylouisville, Thank you for your insight and advice. You hit 100% of my concerns with moving jobs. I have gone back and forth about being upfront and telling them I have been sick and have it...
Thank you Garylouisville! He made a comment during the interview that they "were able to dodge Obamacare for now".... Whatever that means?? Doesn't that mean they would see how expensive I am? My...
Hi Liz! Thank you for your response. I have researched the plans I have available but none show Remicade as an approved drug. Did you have to call the ins company to find out? Also, I have a friend...
ScienceGirl, I'm so sorry to hear of your insurance troubles! Right before Christmas of this year, I got a bill for over $27,000 from the hospital which included 3 treatments that were not covered by...
Good morning! I have had UC for 7 years and for the last 5 I have been getting Remicade treatments. I have worked for the same large company for 9 years and am looking at moving to a smaller company...
Hi Healing Well! I found some information that some may be aware of but after 2 1/2 years, this is my first time to see this. We can write to Congress to try to pass a bill that will allocate funding...
Hi Napacabs, I am just now getting this post, usually the site emails me when I have a response but this time it didn't. I'm sure it is something with my settings I need to update. Anyway, I have...
Hello Everyone! I wanted to see if anyone has been diagnosed with something called Dyshidrosis eczema or any other skin issue? I have had small fluid filled blisters popping up all over my hands,...
Hi Lonie! It is so GREAT to see that you are going on your 31st infusion - WOW! I would encourage NewShinyCD or anyone else considering the drug to read the posts of both good and bad - Thanks for...
I LOVE REMICADE!! I feel 100% better and have my life back!!! I love scheduling the appts and look forward to the visits. My family makes fun of me ;) Good luck, we're all pulling for a success...
Thanks for the posts!! absolutely gonna go with moderation - have 2 glasses of wine and a couple of beers and be done! It has been interesting to hear about everyones responses... goes along with the...
Hey There! My dermatologist told me to use dandruff shampoo like head and shoulders. It's definitely from coming off the pred but she said that the shampoo you use can also help. Try some head and...
Hi Ilovesunflowers15! I also had the same problem of not being able to go to the bathroom at times which was one extreme to the other when I flared. I went to the doctor before I found out I had UC...
Well it sounds like you're doing what you should be doing as far as meals go! I find myself eating until I'm miserable so that I can try to keep weight on :) I also had trouble gaining weight for...
Thanks for the responses - sometimes I have to put myself in check that I'm not 100% healthy regardless of how I feel. It took me a long time to get to the point of remission and I certainly don't...
I drink about twice a week which is one day for happy hour - (beers) and one night on the weekend - wine. I enjoy a few drinks which is why I'm concerned. I never read or was told anything about...
Just had an infusion today and woke up from a great nap! I FINALLY have my life back - I can't speak for everyone but my success was very quick and I feel 100% normal. I have my energy back. I would...
Hi Group! I have a question related to drinking and I looked through old posts to try to find one similar with no luck. A friend of mine has UC and his doctor told him he had to quit drinking all...
Here's my old post! Hope this helps you with the weight loss and move to weight gain! Hi Group! I am currently going through the same weight loss, down 20 lbs in the past 3 months. 5 foot 2 and 110...
Hi there! I have been on Remicade since June of last year and with great success. I am a bit concerned about the weight loss I have had but I contributed it to coming off of steriods. You are...
Hi there! I am shocked to read this post right because I am laying in bed with the same pain - under my belly button away from where my colitis is. I just got checked into a hotel which is 4 hours...
Hi! I have left-sided colitis and also inflammation in my rectum. Also a small portion of my small intestine has inflammation. I have found that it takes care of all of my symptons. I can't wait for...
Hi Group! I am currently going through the same weight loss, down 20 lbs in the past 3 months. 5 foot 2 and 110 lbs and losing weekly. Here is some advice from my nutritionist (also my sister). She's...
Remicade is truly amazing... I'm going for my 5th infusion on Wednesday and CAN'T wait!! I hope it keeps working for you :)...
Oh, and for those of you who have to purchase the Rogaine, Kroger food stores have a generic that costs 1/3 of what the Rogaine namebrand costs....
Ok, here's what I heard from my Derma... She was concerned at the amount of hair that I had lost (it is an old HS friend and she knew what my hair used to look like)... She told me to use Rogaine for...
Hi Gang! I have great news related to the Remicade & Asacol - so far no bowel issues since June... HOWEVER... I am losing my hair. I had super thick hair.... now my hair is about 1/3 of what it...
Good luck Carol! Mine was my colon too - small bowel. It made sense when I had my colonscopy - since I have been on the Remicade it has stopped bothering me. I see you have been having infusions for...
Hello Lonie! You are probably at your GI by now but my experience with the naval pain was one of two things... first, I had acid reflux which was irritated and causing me pain, secondly when they did...
Hi Twirlygirl! I'm not trying to push you one way or the other but there are many of us who just started the infusions and did get fast relief. Also, the IV infusions are easy breezy and you can get...
Hi Boxermom2! I just got back from my 2nd infusion and wanted to share with you what to expect. The whole process lasts just over 2 hours and you are so CLOSELY monitored. They give you Tylenol and...
Yayyyyy! So glad that we have great success stories to share! I would be guessing that diaper man is getting some zzzz's today which is well needed :)... I hope you are feeling even better tomorrow....
Hi aned! I had some side effects when I first starting taking Asacol that included dizziness, becoming naucious (sp?), and headaches. They subsided after about the first month. I every now and then...
So excited for you Princesa!!! It's wonderful for you to post your great news :)...
It looks like AmyWaffle, Hopeful4uc & librarychick, we all look to be starting about the same time... keep us all posted on how your treatments go... it may be the encouragement someone needs to make...
wanted to take a moment to say how excited I am about my first Remicade treatment! I was very scared about starting it... not because of the actual IV procedure but because I was afraid it won't last...
I take xanax as needed. I would say if you and your doctor have linked stress to your flare-ups, you should definitely look into taking something. I have very high anxiety and do not manage stress...
I was on steroids for 6 months and decided that this wasn't for me. All of the physical and mental side effects were not worth it. I now have bad ankles and bad wrists - by bad, I mean that I have...
I'm cracking up because I just noticed this too! I was going to yell at my housekeeper because I didn't think she was cleaning our toilet seats. I have pink stains all around my toilet seat and have...
Tons of Benefiber does the trick for me!!! It cures my constipation 100%!!...
Hi to everyone! I was diagnosed in Nov 08 with left sided colitis and my first doctor only treated me with Asacol 3 times daily and steroid enemas. For a period of 6 months (with about 2 1/2 weeks...
Hang in there! I think we all have been in that state as some point or another. I am guessing that you are in a flare right now... just remember how good you can feel when you get your flare under...